• I’ll Sleep When I’m Dead

I'll Sleep When I'm Dead

~ writing my way through motherhood, doctorhood, post-PTSDhood and autism. sleeping very little.

Monthly Archives: November 2016

The World is Coming to an End

27 Sunday Nov 2016

Posted by elizabethspaardo in kids, love, marriage, my awesome husband, parenting

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Tags

fallen world, family, original sin, residency, truth

My husband is a filmmaker and he made our wedding video. I am blessed like that. He edited it, picked out the music and even hired an animator to make an animated version of the highlights of our relationship. Impressively, he did this while broke and during a really painful separation I had instigated. #MaritalSaint.

We watch it from time to time and we had been meaning to sit and watch it again for the past few months now. Our daughter Lena loves weddings and kept asking when we would watch it. We finally carved out some time to watch it last week. As Lena sat oohing and ahhing over my pretty dress and the “beauuuutyful flowas,” I found myself crying. Which was odd. You see, I am not a crier. I mainly cry when

  1. flooded with pregnancy hormones
  2. when extremely exhausted or
  3. when extremely depressed and heading into a panic attack. When it feels I am falling into the blackness and my world is coming to an end.

I cried several times during the video despite not wanting to do so in front of my sweet, very empathetic Lena. Unlike my boys, she notices any time I am sad or angry. Sometimes she notices before I do. #HighFunctioningAutism. And unlike the boys, I can never lie my way out of it.

I cried as we watched my father give me away and when my nieces walked down the aisle as little flower girls. My wedding was really the last time I saw my sisters and my nieces. I have since then physically seen them a few times, but it was a hollow, awkward exercise. It only served to remind me of what I’d lost.

I watched my two nieces in their pretty little dresses walking down the aisle. The older one was 6 1/2 and the younger one 4 1/2. Smiling and sweet. At the reception the younger one danced with abandon and ran around, often times chased by her father trying to get her to do something. She was quick and evaded capture often. As I watched them, I realized they will forever be caught in this age in my mind. They will never age. Forever sweet, spunky little girls.

I saw them for the first time since the wedding (the first time in 5 years, in 60 months, in 1,825 days) this past summer. 11 1/2 and 9 1/2. They were hard to recognize. They looked so much like their mother now. They looked so grown up. They did not talk to me or my boys.

My boys, especially the Axe, had been asking to see them for five years. He never gave up. He couldn’t understand why he wasn’t allowed. I didn’t understand either and couldn’t figure out how to explain it. I told him, my sister is mad at me and doesn’t want to see us. He asked why she was mad and I said, I don’t know. Because I don’t.

Now, they were strangers.

My sister gave her older daughter my name as her middle name. Because I had helped her through her very long, very difficult, downright heroic labor. It meant a lot to me. An overwhelming lot. I wonder now what she tells her when she asks where her name came from, as I often asked my mother when I was a little girl.

I cried because I will always miss them. Because they will forever be little girls in my mind even as they grow. And that is a very sad thing, to never grow up.

I cried too to see my parents. My father giving me away.

“Who gives this woman to be married?”

” I do.”

But they didn’t really give me away. They couldn’t bring themselves to let me go. They couldn’t stand the thought of letting me grow up. I was forever a little girl to them. *Their* little girl. They could let no one take me away. It did not occur to them I was choosing to go away, that no one was taking me. In their mind, I was theirs and now he was taking me to be his. After all, a little girl is not able to make such decisions.

If they’d let me go, I would have. I really did want to marry my husband and have a home of my own. Every time I’d left my home as an adult I always came back. I went away to college but then transferred to the local school and lived with them. Then I met my first husband and moved away with him and got married. But then I divorced him and again lived with them for four years during medical school. Then I met my forever husband and moved away again. If they’d let me go, I would have stayed with him. But they couldn’t and I didn’t. I left him twice. I left him in a sudden, jarring, couldn’t see it coming way. Twice. And each time returned to them. The first time I physically moved back in with them. The second time, only emotionally so.

And a man shall leave his parents and cleave to his wife. No mention of the wife in that one.

My husband would say to me I was too attached to my family and our marriage wasn’t going to work until I grew up and left the nest and learned to put my kids and marriage first. I kept insisting I had and offered up various bits of evidence to support the patently untrue assertion. He was never convinced.

They had made clear while we were dating they didn’t like him. My sisters broke off with me after the wedding. My parents remained and put up a show of liking him. When I left the first time, it was ay my family’s urging and we sat discussing their true feelings about him. When he and I attempted to reconcile shortly after the separation I kept it a secret as I knew they’d be upset. I was right. When they found out from reading text messages on my phone, my mother kicked me out. Me and my three kids. Me with nowhere to go. I remember calling my oldest sister crying uncontrollably, panicking, terrified. Terrified because I had nowhere to go but mostly because when this side of my mother came out, I felt that black hole feeling. That I was being sucked into the abyss. The world was ending.

Our mothers are the source of life. They are supposed to be the safe womb we can always return to in times of distress. Mine was not. It was in times of distress she was most likely to turn from a seemingly sweet cookie baking, nurturing mom to an ugliness words cannot describe. A cold hate would flow from her and destroy me. My world spinning around me, closing in on me, suffocating me into non-existence.  I would go from being a sacrificial devoted mother in her eyes to a crazy, unfit mother who put men before her children. She would threaten to give my ex-husband money to get a lawyer and take my kids away. Crazy. Unfit mother. Woman who puts men before her children. These were the things I feared most. These were the demons that haunted me. Was she right? Is that who I truly was? That doubt, that possibility, was an endless source of shame deep within me.

You never really knew when she would turn. I grew up in a minefield. Trying so hard not to set her off. And always failing.

I remember going back to my bedroom, the room I had slept in all my life, that I had returned to once again, and calling my husband. Speaking in hushed tones and sobs about my mother kicking me out. He couldn’t understand what I was saying. I was terrified for my mother to hear me so I spoke quietly and ended the call quickly. He had no idea what had happened.

My mother soon summoned me to the living room with an offer. She would not kick me and my babies out on condition that:

  1. I send my two boys to live with their father as she did not have the energy for them. My daughter could remain and she would watch her while I completed residency and
  2. I was to cut off contact with my husband. Any time we met for visitation with our daughter, I was to be chaperoned by my father. They didn’t want my manipulative evil husband sucking me back in. After all, I was just a little girl and easily tricked.

I agreed, so scared. I cut off all contact with my husband without even explaining why. They soon rescinded the demand I send my boys to live with their father, but not the second. We met for visitation with my father awkwardly standing with us. My husband brought me gifts, sweet gifts. A CD he’d made me. Sweet, thoughtful gifts and cards. My family rolled their eyes and laughed. How could he think gifts would make up for what a horrible person he was?

In time, I began communicating with my husband again and we decided again to reconcile. This time, I knew I couldn’t let them find out as we prepared, finding a house to live in and meeting as often as we could (he was living 3 1/2 hours away). My parents rarely left the house, but in August there was a family reunion they would be at for a few hours. In those few short hours we packed up my belongings, disassembled my boy’s bunkbeds and moved all of it out to the new house, an hour away, where I was completing residency. I left them a note saying goodbye.

Their little girl had once again been stolen.

In time, I unpacked the dysfunction of my family in therapy. I began slowly to set boundaries and view my family and my childhood for what it was. I realized there was no emotional intimacy. I realized I had been raised to trust no one but the family. I realized how afraid I had been all these years of my mother disowning me, as she had other people in her life. I realized my mother and I were enmeshed and yet not close at all. Not in the ways that matter.

I left my husband again this past summer just as suddenly, just as secretly, just as heartbreakingly. We reconciled again. And my parents said they were fine with it, but began to punish me in subtle unspoken ways. But still I kept them in my life.

The breaking point came a few months later with the dog incident I have explained in previous posts. I found after I broke with them, my marriage was suddenly so much better. My opinion of my husband so much better, my love for him unconditional. I was not expecting this. I came to see all the subtle ways they had undermined our marriage while, on the surface, appearing to be supporting it. How incredibly cruel. To me and to my kids. Crazy. An unfit mother. Projection.

I no longer have my family in my life and so I cried as I watched my father giving me away in my pretty white dress. They say in Catholicism that we are not waiting for the world to end when Christ comes. The world ends many times in our lives. When we get divorced, get a bad diagnosis, lose a loved on. It ended for me when I found out my son was sick at 6 days old, when a guy I’d been in love with broke my heart, when my medical school tried to ruin my career for turning in a child molester. The world ends but a new one begins. It prepares us for death, they say. For it is in dying that we are born again.

My world has come to an end once again as it has before. But this time I can see clearly the new world that has been created in its place. My children growing up healthier and happier than I, my marriage finally solid, my body and mind stronger than they’ve ever been, my connection to God growing.

They couldn’t give me away and so now I have left of my own will. I am not a little girl. I have grown up.

food is not love ( or: Hail keystone party mix, full of carbs…)

12 Saturday Nov 2016

Posted by elizabethspaardo in kids, love, parenting

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Tags

children, forgiveness, Possibility, truth

I’m working a lot of days this week. 6 out of 7 days. Which when you work 12-13 hour days, is a lot. For me and for my kids and husband. #UrgentCareLife.

I needed to prepare for this by making freezer meals for both this hellish week and then the week after since I’d have no time to make *those* meals as I normally would the week before. Because I’m working 6 out of 7 days this week. Did I mention I’m working 6 out of 7 days this week? It’s kind of awful.

I was making a new recipe for the freezer. One I had never attempted before: chicken cacciatore. As it was simmering, I thought of my childhood, of my grandmother’s house. She used to make chicken cacciatore. She wasn’t Italian; she was a farm wife whose people had come from Scotland and England like the people of Appalachia tended to have done. She always cooked from scratch. Three meals a day. No sandwiches for lunch. It was boiled potatoes and pork chops and sliced tomatoes and fruit and… Something was always cooking, the scents hanging in the house when you walked in the door. She wasn’t much into baking so when we would walk the mile down the road to her house on hot summer days to go swimming in her pool, she would bring us Keebler Soft Batch chocolate chip cookies as a snack. Something we did not get at home. Something we absolutely loved.

I thought back on the chicken cacciatore she made as I watched mine coming along. I felt my heart warming to think mine was turning out as well as hers. And then I thought, my Grandma never seemed to love me. I mean, I’m just being brutally honest here. It sounds awful, but I come from a dysfunctional family where I just had no emotionally intimate connection with anyone. It astounded me when I grew up and found out how other people felt about their grandparents, the close bond they shared. Not so with me and mine. I had just assumed that’s what a grandchild-grandparent relationship was *supposed* to be like. Turns out I was wrong.

So, why was the chicken and peppers boiling away in our cast iron skillet making me feel all soft and gooey?

I thought back on my grandmother’s chicken cacciatore and my mother’s snickerdoodle cookies. The peanut butter bread my mother made for us with raisins that made a smiley mouth and two mini marshmallows for eyes. The trips to McDonalds with my mom when my sisters were at school, just me and her. I told myself that food was her way of showing love. But it wasn’t. It was the desperate attempt of a little girl to believe her mother loved her in a way she definitely did not. Children are completely dependent on their parents for their very lives. They have to believe in them, in their love. And so I found a way.

What I didn’t realize until that moment in the kitchen next to the hot stove with the chicken cacciatore wafting into my pores, is that it wasn’t love at all. It was just food. And for all these 37 years I’ve been alive, I have comforted myself with food because, to me, it is love. Not a symbol of love, not a sign. It is literally love. When you’re upset, you should be able to go to your mother to be comforted. I never could. But I could eat chocolate. I could pour my sadness out to Little Debbie cakes and my anger into Doritos.

If your parents don’t comfort you when you’re young, you never learn to comfort yourself. Not in a healthy way, anyway.

For me, food has been my answer to sadness, worry, uncertainty, joy, anger, boredom, frustration. It’s been my self care and entertainment. It has been my secret, my rebellion, my hiding place, my distraction.

I remember being 10 years old in 4th grade and we had to all cross the road to the YMCA and take swimming lessons. I felt horrible about my body. I thought my thighs were just massive. I couldn’t stand the thought of being seen in a bathing suit. I’d never been made fun of. But the idea was there because of what I heard discussed at home as well as the messages we get in our culture. I began looking for excuses not to participate. I would forget my clothes on purpose. Say I wasn’t feeling well.

There was a vending machine at the Y that we were forbidden to use (this is in the days before there were vending machines in schools). I used to try to be the first one out of the locker room after class so I could quickly deposit my quarters to get a snack size bag of Keystone Party Mix. A compilation of pretzels, cheese covered tortilla chips, barbecue corn chips and cheese doodles. I would hide it away in my bag and save it for later. I would take it back to my bedroom and eat it in secret.

My parents found out I was missing swimming class and sat me down and asked me why. Was someone picking on me? No, I answered honestly. But I knew I couldn’t tell them why I was really skipping class. An unwritten, unspoken rule of the family. Don’t have negative emotions. Don’t expose your vulnerability or they will pounce. Everything. Is. Fine. And so I said what I was supposed to. Made up some unbelievable excuse which they readily believed. Everything. Is. Fine. After all.

My Keystone Party Mix comforted me. My Keystone Party Mix was the secret I kept from them. It was mine and mine alone. A protective wall. The more they know about you, the more they will hurt you. Reveal as little as possible. Protect yourself.

Hail Keystone Party Mix, full of carbs, … protect us, Mother.

That was the beginning of it. This is the end.

I know I deserve more now. I deserve love. And food is not love. I am finally able to eat healthily and be happy. I am able to comfort myself without turning to cake. I can get angry with my husband and not stop off at McDonald’s on my way to work for a Sausage McMuffin. I can make it through a boring, frustrating day at work without noshing on candy all day. I can stop after a handful of chips or a single brownie, because I am not empty and searching. I hope I am giving this to my children too. The ability to sit with the hardships of life, to turn to people who love and support them, to know they’re worth more.

I do cook for my family because I love them. I work urgent care for them and clean for them and kiss boo boos too. But I do not offer food as a substitute for love and compassion, emotional validation and open, safe, discussions. Sometimes our family *isn’t* fine. Sometimes we’re a wreck. No, like, a flaming tire fire kind of wreck. And that’s okay. It’s life. It is what it is. We all have permission to feel whatever it is we’re feeling at that moment. We’re allowed to have boundaries. I hope they like my cooking and the birthday cakes I make them, but I hope that’s the least of what I mean to them. They deserve more.

 

I have slept in the bed with evil

09 Wednesday Nov 2016

Posted by elizabethspaardo in autism, Evil, PTSD, Rape, Sin

≈ 1 Comment

Tags

autism, fallen world, original sin, PTSD, rape, trauma, truth

I am wearing all black today. I am in mourning. I am not going to make a joke about my goth days in high school. I am not going to compare the title of this post to that awful made-for-TV movie from the nineties starring Tori Spelling, “Mother May I Sleep with Danger.” This is no joke. This is not a nightmare we will wake up from tomorrow, a bipolar fugue we will not remember when it ends and we find ourselves far from home. It may be the 1930s.

I do not use the word evil lightly. A lot of people have referred to Hillary Clinton as evil in this election cycle. I am as big a critic of Bill Clinton’s policy and Hillary’s record on free trade, her foreign policy, and her “super predator” comments as anyone. But she’s hardly evil.

For four months, I slept in the bed of a man who can rightly be called evil. A man who loved raping and torturing little girls above all else, who admired Hitler, who raped me again and again and again and threatened to kill my children. A man who disturbed even the seasoned federal judge and the FBI agent who were involved in his case. He was a medical student on his way to becoming a doctor. Nobody suspected. None of us even knew such evil existed as it all came out, certainly not that our fellow medical student possessed the evil.

Trauma changes you. It changes your relationship with yourself, with your family and friends, with God, with the world itself and every person you encounter day by day. They say the fundamental experience of trauma is the feeling you have been abandoned. By the people you love, by the ones who were supposed to protect you, and by God himself.

My Ordeal changed me in so many ways but one of the worst was the knowledge of just what evil exists in our world. Evil I did not know existed. And I had not lived a sheltered life to that point. I was not naïve. And yet I was. My fear now is that we as a country are being naïve. Despite our very violent history.

We cannot underestimate the possibilities of this new world. We cannot afford to be naïve. I do not know what will happen but I know it could be very, very bad.

A few years ago we were at a festival at a place called City Island in Harrisburg. Our three sons went off on their own while my husband and Princess (still a baby) and I stayed and chatted with some friends. Eventually two of our sons came back, but not the third. Our legally blind, autistic son was not with them. They told us they’d had some kind of fight with him and decided to leave him. They were too young to know not to do this. Too naive.

My husband and I split up to cover the island looking for him. And as I looked in booths and the dense woods that framed the island, pushing Princess in the stroller, terror went through my body. My mind went to Jeremy. To the people he talked to on the internet who also loved raping and torturing children. Who sent him images of their horrific acts, recorded in stills and movies. The ones presented at trial that took any remaining innocence from anyone in that courtroom. I cried as I looked. I pictured what might happen to him. Things that are worse and more common than we allow ourselves to believe. I didn’t want to scare Princess, but I could not hold back the tears. My husband found him and I ran up to him, shaking and crying and finding it hard to bring the oxygen into my lungs.

I do not know how so many people at Penn State stood by while little boys were raped and did little or nothing. I will never comprehend that. The coaches, the janitor, Mike McQuery whatever the hell he was. I could have been killed. My children could have been killed. I laid down my body. I laid down my mind. I lost seven years of my life to PTSD. So did my children and husband, lost seven years of me being truly present in our lives. I have no regrets and never have. Not for a second. But I know the men of Penn State are much more common than people like me. And this election confirms it.

Evil can flourish, slowly, insidiously. I see friends who loved Bernie so much now so glad they voted Trump. I can see the mainstream Republicans now falling in line or being eliminated (we’re assured by Trump’s people the are making “a list” of “his enemies”). I can see the inevitable persecution of journalists and violent crackdown on peaceful protests. Hate crimes and sexual assault rates rising (if you don’t believe me, look at what happened in the aftermath of Brexit). Muslims forced to wear badges identifying them (yes, Trump said this).

You think I exaggerate. You think this couldn’t be the 1930s. And I hope you’re right. But I know in my bones you probably aren’t.

God bless and protect the Union.

 

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