Category Archives: PTSD

June 19, 2008 (or, Tequila!)

19 Tuesday Jun 2018

Posted by in kids, love, marriage, medicine, my awesome husband, PTSD, Rape, Uncategorized

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It was raining this morning as I headed out for my run. Ten years ago on this day, though, it was hot and sunny. I know this because I can remember the beads of sweat rolling down the back of my legs as I sat in my green minivan in that long, heavy, black Land’s End skirt I’d bought on clearance a few weeks before. My air conditioner was broken and the van churned out warm air as I sat staring down at my phone.

I’d programmed the phone number for the Pittsburgh field office of the FBI into it a couple months before under the name “Hope.” It was finally time to call. I knew he might kill me. Knew he might kill my two boys. Mies had just turned 4. Max was 2 1/2. I asked God to please protect them but told Him if something happened to them, I knew it just was what it had to be. I had to turn him in. I could never face my babies again if I didn’t. I didn’t want them to live in that kind of world. Abraham, I am feeling you, brother.

I operated purely through adrenaline at that time. Until he was arrested in August. And released on bail to a local podiatrist. And jailed again since he, ya know, had threatened to kill me and my kids and all. And then as I fought to stay in school as my med school slut shamed me and tried to get rid of me. Once the adrenaline stopped flowing continuously later that Fall, the real hell began. PTSD.

I wanted to give up but I somehow got to a place where I told myself, this isn’t it. Someday things will get better. You will watch your babies grow up. You will become a doctor and take care of your patients. You might even get married and have more babies. Maybe a daughter. Maybe. I fought off the hopelessness. I convinced myself there was possibility.

Here I am ten years later. With five beautiful kids (including a sassy-sweet daughter). With a handsome, devoted husband. With a practice of my own, complete with amazing patients I care about more than I knew I could. Healed of my PTSD. Having forgiven Jeremy and even Sylvia, the head of my med school, and all those professors who betrayed me. Training for a semi-impossible obstacle course race with my husband and a trainer, for goodness sake. A trainer. More than I dreamed possible.

I am so grateful to God my babies are alive. That I am alive. That I am a doctor. That I have the husband and kids I do.

I skipped work today and drove through the country to Deer Lakes park to go running. The rain and grey gave way to fluffy white clouds and sunshine in a beautiful blue sky. I held my hand out the sunroof as I drove. I felt the sweat run down my legs from my run as I drove.I sang along to Tequila! like a fool. I’m sure I looked and sounded ridiculous.

I pray the little girls he hurt find the peace I have. I pray he does too.

I am so grateful for today. I am alive, I am free. Thank you God.

Tequila!

Until then, rape culture will thrive

05 Saturday May 2018

Posted by in PTSD, Rape, Sin

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A few things have happened in Pennsylvania recently that we should find encouraging. Bill Cosby was finally found guilty of sexual assault and two friars were charged for protecting a priest who they knew was molesting children. The near complete absence of legal consequences for rapists and those who stand by and do nothing about them is horrifying. That it may slowly be changing is a victory for activists. I felt a swell of hope when they announced the Cosby verdict. I belted out some Kesha on my drive home and cracked open a cider as I told my husband the news.

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But as this tide shift begins, there are certain things that must be said.

I have been seeing patients in my office for medical marijuana certification these past few months since Pennsylvania’s first dispensaries opened. It is amazing work to do. I hear so many heartbreaking stories of patients not only suffering illness but being abandoned by the medical system, struggling to hold onto hope. Their diagnoses range from cancer to pain to ALS to autism to seizures. And PTSD.

As a certifying physician, I am simply assessing if a patient has one of the 17 qualifying diagnoses Pennsylvania has designated to receive a medical marijuana card. As such, patients bring records from their treating physician and I use those records along with a history and physical exam to determine if they do indeed have the condition and are appropriate for medical cannabis therapy. They come to me because their physician either doesn’t believe in cannabis or, more often, recommends it for them but cannot certify them. A physician in Pennsylvania must go through a special process in order to be able to certify for medical marijuana and many physicians are reluctant to do so for a variety of reasons.

When I see a patient for PTSD I ask them about their symptoms, what other treatments they’ve tried, how long they’ve had PTSD and how its changed over time, and what their treatment goals are for medical marijuana. I do not ask them for the details of their trauma. It’s not medically necessary for what I am doing with them and just as I’d never perform an unnecessary pelvic or rectal exam, I am obligated as a physician to avoid being unnecessarily intrusive on a patient. If you’ve lived trauma then you know talking about it can be a more vulnerable and difficult procedure than an internal exam.

Still, patients often tell me their stories. I hope it is because they feel safe with me. I hope it helps them to speak their truth to me. It certainly helps me to hear their stories. It makes me a better physician and a better human being.

For the most part, I just listen. There are rarely words powerful enough to reflect back to them what they have just told me. I know it and they do too. Trauma is a language like no other. Sometimes I say to them, that’s horrible. I can’t imagine. I’m so sorry that happened. Sometimes I just listen and look and they know that they’re heard and that’s what matters.

I say nothing here of anyone’s story. Of any specifics. Anonymous or not. But I will tell you, dear reader, that something has surprised me. After spending all these years learning about trauma, thinking about trauma, writing about trauma, speaking to other rape trauma survivors, I have taken something new from it.

Many of my patients have gotten PTSD from being in prison. I wasn’t expecting that. And it makes me think of Jeremy. There was a time in my trauma healing process where I savored the idea of him being attacked in prison. I’m not proud of it but I do accept it as part of my journey through PTSD to the other side. It is not something I allowed myself to get stuck in. I believed before I ever met Jeremy in the importance of the corporal act of mercy of visiting the imprisoned. I recognized the inhumanity of our criminal justice system. And that wasn’t something I was going to let Jeremy take from me.

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I cannot imagine how hard it would have been to let this idea go if I hadn’t been one of the extremely rare few whose attacker actually gets prosecuted, found guilty and imprisoned. I have a safety and a sense of justice that is almost unheard of (even in the case of convicted rapists, it is rare they get the 45 year sentence that Jeremy did. I need not worry about the day he gets out and comes for me. I did not face the indignity of him getting a slap on the wrist sentence). Letting go of anger and the desire for vengeance when justice is denied seems almost impossible.

What I cannot excuse or validate is the similar sentiments expressed by those not involved in a particular perpetrator’s trauma. We have all heard and seen on the interwebs the comments of so many people when someone is found to be a rapist or child sexual predator. They make comments, some purely serious and others sickly comical, about the fact they hope the perpetrator will be raped in prison. An eye for an eye, a rape for a rape.

It perpetuates the idea that prison is a place where the “regular” prisoners will institute vigil ante justice and give these deserving sexual predators their come-uppance. Not only does it violate morality in its wishes for violent harm of the sexual perpetrators, it presents a narrative of prison where those who’ve committed so called victimless crimes are seen as being free from being targets of violence. Prison is a macho sort of wild west where unsavory elements make up for their crimes by using their lack of obligation to societal norms to take care of the dirty work of making these rapists pay appropriately. They atone for their sins and satisfy out blood lust in one fell swoop.

The reality is that prison brings trauma to every prisoner whether they’re their for drug possession, repeated DUI, writing bad checks or murdering their mother. And the reality is, most prisoners are there for something like drug possession or writing bad checks and end up being punished not with time away from their families, home and work, but with assault, both sexual and non. They live in a constant state of fear and hypervigilance. They suffer violence, witness violence and are forced at times, in order to survive, to perpetuate violence. This is something those of us who’ve experience protracted trauma can identify with. This is trauma. This is hell. And no one deserves it. Not even rapists and men who kill their mothers. And certainly not twenty year olds who made a stupid decision and got caught (I speak not here of rich white twenty year olds who make stupid decisions. They don’t go to prison). Their sentence may only be a few years but the PTSD lasts the rest of their life. It is not moral. It does not benefit society. And it deadens all of our souls as a culture for perpetuating this brutal system.

When you call joyfully for anyone to be raped, whether they themselves are a rapist or not, you are promoting rape culture. You are ensuring little girls will go on being raped. I realize it makes *you* feel better and that’s just great because it’s all about you, but you sacrifice the bodies, minds and souls of little girls and boys and women and men.

No one deserves to be raped. Period. Ever.

We do need justice for survivors in this country. I am glad that Bill Cosby and these friars and Jeremy Noyes will be held accountable and it is vital for ending rape and for providing survivors what they need to heal. Prison as we have it in this country, however, is not the answer. When will we establish a humane justice system that truly serves victims and keeps us safe as a society? Until then, rape culture will thrive.

Fish oil and marshmallow foldovers will be served at our Gala banquet

10 Saturday Feb 2018

Posted by in autism, PTSD, Rape, special needs, Uncategorized

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I had fish oil the other day for the first time in a decade. I’d bought an especially high quality one called OmegaCure for my two littlest ones who can’t swallow pills and was excited when it arrived. It is flavorless according to what I’d heard from my sources and I was hopeful I could get it past them. I made them each a peanut butter and marshmallow foldover and put a glug in between the peanut butter and mini marshmallows. They gobbled it right up. Now, marshamllows are such a treat for them it’s possible I could have put just about anything in there and they’d still have inhaled it. But I was pretty confident it was due to the true flavorlessness of the oil. The next morning I opened the fridge to get some berries out for my morning smoothie and the beautiful glass bottle of golden oil was there shimmering at me. I thought, why not put a tablespoon in my smoothie? And I did. And I drank it. I ran into the laundry room and excitedly told my husband the news.

“I had fish oil!”

Silence

“I had fish oil! For the first time since 2008!”

Silence

More laundry folding

“Ya know?”

Silence. Folding,

“Since Jeremy. I couldn’t take it because of the trauma…”

“Ok good.”

Clearly not something that broke his usual daily laundry folding routine

For me, it’s a big deal. For me, the question “why not put a tablespoon in my smoothie,” has a lot of answers.

The first time I asked that question and ended up vomiting was in 2012. I was pregnant with my daughter Lena and knew I should be taking fish oil heavy in DHA for brain development. It was even more important for me than a lot of moms because I already had a son with autism and malformation of his brain and optic nerves which meant any baby I carried was at higher risk for having issues and needed the best possible start, including fish oil, folic acid and vitamin D. I managed the vitamins fine but the fish oil did me in. When my husband asked me why I wasn’t taking the fish oil capsules he’d gotten me, I had to admit to myself I wasn’t throwing them up because I was pregnant. It was because of *him*. Jeremy. The Ordeal.

No big story attached to it. Jeremy made me take fish oil capsules daily, amongst his other weirdities. Some people are health nuts. He was a health sociopath.

I’ve attempted fish oil a few times since then and it was always a No Go. Couldn’t bring myself to swallow them. The one time I forced myself to swallow them and keep them down, the resultant fishy burps sent me into a daylong relapsing remitting flashback. From that point on, I decided I was going to concede the battle for fish oil. We lose certain things to trauma. It just is. You have to fight to save the things that really matter but you have to learn to let go of the things you can afford to. Lose the battle, win the war. And all that.

But as I stood peering into my fridge this week, that fish oil looked so lovely. (Like nectar collected by little hummingbirds and their magical fairy friends. I’m not kidding. See for yourself, it’s gorgeous.)And I know my kids need me healthy. And so, I figured, why not? What’s the worse that could happen? A day of fishy burp induced flashbacks again? I’ll live.

No fish burps and no flashbacks. It was a little hard to get myself to drink it, I admit. I’ve never been so afraid of a smoothie. But my two littles were sitting there with me at the table watching and I knew I had to play it cool. So down the hatch it went. And stayed.

2018 is a big year as far as my trauma goes. A decade since the trauma started, since I turned him in, since his arrest, since my school initiated their illegal persecution of me for my decision to turn him in, since I got the school’s suspension overturned, since the PTSD began.

It’s not a sad thing. It’s a triumphant thing, I’ve decided to call it my Gala Year. The resumption of fish oil is just the beginning. There’s going to be a whole calendar full of activities commemorating the events, remembering the heroes and making sure it doesn’t happen again.

I was looking for a race to run today. Now that I’m taking fish oil, by God, I ought to be ready to start running again and eat healthy and all that, right? It’s going to take a good while to get me in shape so I Googled “races november 2018 pittsburgh” to give myself ten months. I happened upon one of those obstacle races which I’ve always had an interest in despite being painfully uncoordinated. And it was a charity run for a group that serves people for autism. Perfect, I thought, I can motivate myself to run by raising money for autism. But then when I looked into it further, it wasn’t in November and wasn’t in Pittsburgh after all (thanks Google). It’s called the Beast on the Bay and it’s on Presque Isle in September. Presque Isle, Erie PA. The city of My Ordeal. The home of Sylvia Ferretti. She who sought to shame me out of being a doctor.

And so, please note on your calendar of Gala Year events, the date of September 8th. I will be completing the Beast to raise money for autism services and for The Exodus Road, a nonprofit group that rescues sex slaves throughout southeast Asia, India, and the US using a network of covert surveillance teams and individuals. (i.e. Jeremy Hunters). It will be my first time returning to Erie since his trial in February of 2011 so I imagine there were will be other Gala events added to the calendar for that weekend. Be sure to stay tuned.

2018 will mostly be comprised of healing my children of PANDAS and building up my practice. Of watching my Auggie learn to speak and sending my Lena to kindergarten. Seeing my Max become an excellent cellist and trying not to ball my eyes out on my Mies’s first day of high school (getting dizzy just typing those words). Fighting for my PANDAS patients’ recovery and learning all I can to defeat the Bear once and for all. But it will be my Gala Year too. Let the festivities begin.

“I’m sorry but I can’t look you in the eye because you remind me of my rapist. Nothing personal. I’m just fairly terrified right now.”

23 Tuesday Jan 2018

Posted by in medicine, PTSD, Rape

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I went into a patient room at my urgent care day job today to see a patient with chief complaint “sinus symptoms.” A routine visit, I was in and out in 3 minutes flat. It’s a very mechanical process when you’re seeing 50 a patients today, 95% of whom have one of ten diagnoses seen over and over. I walked in, though, and said, “I’m Dr. Spaar. I understand you’ve been having sinus symptoms,” as I always do. And I turned and got some hand sanitizer from the pump om the wall as I always do. And turned around to face the patient as I always do. And I’m sure he said something like, “Yeah it’s just all this pressure right here,” and he probably gestured to his face like patients always do when they present with a sinus infection. But I didn’t hear him.

Something about him, something about the look he gave me, reminded me so much of Jeremy. The look in his eyes. My stomach dropped. My body went numb. My heart started racing and things started closing in and going black. I quickly moved away from him to get the otoscope off the wall as he talked. I couldn’t look at him, at his eyes. And I needed a moment to panic without him seeing. I went about examining his ears and sinuses and lungs and asked the questions I was supposed to. I finished as quickly as I could and told him his diagnosis and plan and escaped the room. I did not look him in the eye.

And afterwards I found myself thinking, I wish I could have just said to him, “I’m sorry but I can’t look you in the eye because you remind me of my rapist. Nothing personal. I’m just fairly terrified right now.” It would have made me feel better, I think. And if rape survivors did this, wouldn’t the world be a better place? Why do we carry the burden alone? I think about what he did to me daily and yet there are so many people allowing themselves the comfort of pretending rape and child trafficking are not common. And it will never end as long as so many people remain so comfortable.

And maybe I’m wrong about this patient. Maybe he’s a rape survivor too. But rape is a systematic method of oppressing women and so I speak of women here as survivors and men as perpetrators and those conspiring in silence. Because statistics.

I rarely get triggered these days. It was a small blip in my day. But so many women are not as lucky as I am. They are living in the day in day out hell of PTSD. It is holding them back from who they are supposed to be. Creating a space for mediocre men to take the rightful place of exceptional women in many cases. Very few women in my situation would have graduated medical school, gotten a residency and graduated it as well. How many women have dropped out of college and grad school because of rape? How many have set aside ambitions and settled for a small life? And how many men have benefitted from this?

Perhaps the next time this happens I will tell the patient what I am feeling and why. And perhaps he will complain and I will be reprimanded. But I have learned long ago it is the keeping quiet that destroys your career, not the speaking out. Because it is the keeping quiet that takes your soul. There will always be another way forward even if your school or your job or your family or your husband reject you. Silence will eat you from the inside and take it all away. You will pretend at being alive until you can’t anymore.

And so perhaps next time I will tell the patient what I am feeling and why as I go about examining his sinuses and writing his prescription. Because a life of silence, however small, is not living.

Aluminum and gold

21 Thursday Dec 2017

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The CBS national news is featuring a story today that I appeared in as a PANDAS expert. PANDAS is a medical condition affecting kids where their immune system attacks their brain when they get sick and gives them things like tics, OCD, anorexia, rage and cognitive impairment. It’s vital that awareness is raised because so many kids get misdiagnosed and don’t get the treatment they need.

Check it out here

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End of PSA. Here’s the deal:

The story is a personal vindication for me. After my trauma, the story-slash-international-sex-scandal hit the AP wire and was featured in national and international news. It was not a flattering story for me. My name isn’t mentioned; I’m called simply, Noyes’s sex slave (should have read RAPE slave. there I fixed it for them). It led to a public shaming that contributed to my chronic PTSD settling for seven long years.

The head of my med school said I’d never be a doctor because of my moral failings. Not only am I a doctor (make that, an expert) but I am using my degree to fight the good fight. Quite the opposite of what she uses hers for.

Forgive them Lord for they know exactly what they do and do it anyway but you are a merciful God. Good way to flex your mercy muscles.

2017 is drawing to a close and here I am again, writing another reflective end of year post. I haven’t written in this blog in quite some time as I have a blog on my medical practice’s website now. This blog is really about trauma (although that’s not what I intended when I started it. Life’s funny that way I suppose). It’s about trauma in general and about one trauma in particular. The trauma Jeremy brought to me that cold snowy winter of 2008.

The trauma started January 2008. I began healing in January 2009. I got the subpoena written out by he himself to testify at his trial January 2011. I had my final healing from PTSD January 2015. And so…. January. January is coming again.

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It will be ten years since The Ordeal. An anniversary. What are you supposed to give as a gift for your tenth anniversary? I looked it up and it said tin/aluminum for traditional and diamond jewelry for the modern gift tradition. It’s too bad I skipped our ninth anniversary because that one’s leather (get it? He was into BDSM. Leather. Get it? It’s ok. You can laugh. Or look at me awkwardly. You do you)

So what should I get to commemorate the occasion? A tin man? A Coke can? Perhaps an aluminum foil hat to block aliens from stealing his thoughts?

The thing I have in common with him is that he and I both think about The Ordeal everyday of our lives without fail. No one else does. Not consistently. Not without prompting.

My relationship with Jeremy has changed over time but I will always have one with him. From Stockholm Syndrome to fear to anger to forgiveness and then back and forth a few times. To compassion. Ok, sarcastic compassion at times, but compassion nonetheless.

My husband is reading a book about domestic violence right now and we ended up having a conversation last night about the importance of being able to confront an abuser and bring them to task.

“Did you ever do that with Jeremy,” he asked me

“No. I sent him to prison for the rest of his life. I really didn’t need to say anything”

“No but did you ever assert yourself with him verbally. In the courtroom maybe? I wasn’t there when you testified.”

“No… no. He was completely out of touch with reality. He said “I forgive you.” to me”

Eric continued on about the importance of this confrontation of the abuser and I interrupted him and shut him down. Just… no. No. This conversation wasn’t happening. I had no energy for it.

His point was that Jeremy needed that in order to come to terms with what he’d done. Bullies will never change if no one stands up to them. My point was that Jeremy is delusional and believes my sister and I orchestrated a grand conspiracy to frame him with the entire FBI backing us. He honest to Jesus Joseph and Mary believes that raping little girls is actually good for them, so… I’m really not seeing this asserting myself thing doing a whole lot. And quite frankly, if sitting staring at prison bars for 45 years doesn’t cause you to do a little soul searching, I’m pretty sure a sassy physician confronting you ain’t gonna do it either.

He continues the discussion of abusers as bullies and you need to stand up to bullies and all that and my mind wanders back to the courtroom. Back to the bedroom. Bitter, grey Erie. That uneasy feeling in my stomach. That fight or flight in my muscle fibers. In my eyes, always darting, scanning for danger. As it laid next to me.

There was a discussion at work today about what each of us would do if we won the lottery. Conversation drifts to the importance of buying land as it’s a limited resource and I find mySelf saying “or gold.” They begin discussing the merits of gold versus silver for price stability and my mind wanders back to the gold shop in Erie.

Jeremy was fixated on buying gold. He thought he could make money buying and selling it. He watched the gold markets obsessively. He never slept. I remember that. He was up all night on his computer. Barely slept. He watched the markets and talked to Alex in New ZeLand and researched evil.

He thought he was amazingly smart. Smart enough to outsmart the police. Smart
enough to make it rich buying and selling little gold bars. (Spoiler alert: he’s not)

At some point in The Ordeal he had me take my money and buy gold. I lived off student loans At the time so the money I was to live off of was dispersed in two
payments: one in August and one in January. He had me lend him this money I had set aside to live off of later in the year so he could buy gold. He would then sell it back and pay me back and keep the interest I suppose. I don’t remember the details. I remember very little about it. I remember driving to the bank near the Moe’s to withdraw the money (Welcome to Moe’s!)

I remember sitting in the Cheesecake Factory with my sisters that spring and mentioning the gold to them. I remember the look on my sister’s face and the way she spoke. She spoke to me the way you’d speak to someone holding a gun in their hand about to shoot. She looked horrified. She spoke calmly and slowly. She told me I needed to sell the gold back and put the money back in my savings account. I told her I would. I was glad she wasn’t angry. I was worried by the way she’d talked. Was I crazy, I wondered. She talked to me like I was crazy.

I remember insisting Jeremy give me the gold back in June. He said, the price of gold has gone down. You should wait and I’ll sell it and you won’t lose money. But I insisted and he complied. I don’t know what excuse I gave him. It worked. That’s all that matters.

I needed to get the money back because I was turning him in. Soon the government would seize his assets. I remember sitting there in the minivan with the broken air conditioning outside the gold shop in Erie. Sweating in my heavy black Land’s End skirt.

I still have that skirt. Still looks good. Damn good quality skirt.

Purple scrubs now, standing in urgent care a few lifetimes later. I walk away from the lottery discussion to work on notes. The memory of the Cheesecake Factory is unsettling. It fills me with shame. What decisions I made at that time of my trauma were mine and which were not? Maybe I would have done something crazy like buying up gold even if I hadn’t been in a situation where he controlled me through force.

If so, do I deserve to feel ashamed? No. I remind myself of this. I take a deep breath and let the shame go. Sort of. Hey, life’s a process. Don’t rush me.

So maybe I should get Jeremy something gold for our anniversary? No. Gold was a mistake. I’ll definitely stick with aluminum this time. Maybe foil for the rabbit ears on the prison TV so he can learn about PANDAS and the good fight.

13 years

03 Wednesday May 2017

Posted by in autism, doctors, kids, love, medicine, PTSD, Rape, special needs, Uncategorized

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I am sitting here reading immunology. Cytokine storm, interleukin-1, natural killer cells. I am doing the thing I have been doing for almost 13 years now. I am trying to fix my babies.

Autism and PANS and Lyme and on and on. Their immune systems have betrayed them. They are attacking their own brains. I must stop the marauding hordes. I must. I’m their mother, after all.

I decided to become a doctor almost 13 years ago. Soldier Boy was a few months old. He’d already had more medical tests and seen more specialists than most of us will see our whole lives. Diagnosis after diagnosis. The idiot doctors couldn’t see he was perfect.

He was perfect. He is perfect. But, he’s not. His body betrays him.

I decided to become a doctor for a lot of reasons. Some noble and some not so much. One of the reasons I became a doctor was because I wanted to fix my son. I wanted to save my perfect baby from the many sicknesses he’d been born with.

I had his little brother while I was studying to apply to medical school. He was different. He was not sick. No tests, no specialists. He never even got a cold or had a fever. Ever.

Then, when he was 3 1/2 he stopped eating and began threatening to kill us and… you can read about it here. He got PANS.

Doctors have been no help. I am now finally a doctor all these years later. Almost 13. And now it is my job to figure things out, to help them, to fix them, to save them.

And so I am sitting up, exhausted, reading through immunology slides trying to understand the autoimmune nature of autism. Trying to understand the things I can do for Lyme triggered PANS that has been going on for eight years.

Innate immune system, cellular immunity, microglial activation, …

As I sit looking at the diagrams of these various immune processes, they are familiar to me. You learn so much in medical school they say it’s like drinking from a fire hydrant. You retain the things you use in whatever specialty you wind up in. But I am finding now the things you haven’t thought of in 10 years come back quickly when you need them.

Ten years ago I sat studying Immunology in my living room in Erie. Its a very clear memory. Sitting in the large overstuffed brown arm chair next to the end table with the touch lamp. The same end table I’d placed our Little People manger scene on at Christmas time. We lost baby Jesus and I replaced him with a Matchbox car because… because little boys. The chair was in front of the big bay window where my boys would climb up excitedly when the garbage truck came by.

I remember so clearly sitting there reading my Immunology book the night before the exam. I was behind on studying and I was excited it was clicking. I think I will do well on this test, I thought.

I was behind on my studying because of The Ordeal. Because of Jeremy. I failed the exam the next day.

Amazingly, the unit after that, Neuroanatomy, I rocked. It was considered the hardest course of first year. I was being actively traumatized by a sociopathic sadist, and I somehow managed to kick some ass. I’d gone from scared to pissed off at that point. I’d decided I was going to find a way to turn him in no matter what. Once I got to that place in my head, focusing on studying wasn’t a problem. I’m very good at compartmentalizing my mind when it’s required

But Immunology, I failed. And so I had to remediate it that summer. Immunology and Pharmacology. He did too. I saw him there. It was in those two weeks of remediation that I turned him in. I passed the remediation exam. And then went and turned him in. I was busy.

For so many years this trauma has been at the center of the story I tell of myself. Not so much to other people but to myself. For years it made me believe I was worthless. And then I entered recovery and I became defined as a survivor. Each step closer to becoming an attending physician was marked with a “screw you Sylvia” (Sylvia being the head of my med school who slut shamed me and tried to kick me out) and a “you’re in jail, Jeremy but look at me”.

I had come to accept this. But now, it isn’t true anymore. It isn’t the biggest part of my story.

Being a doctor was always about my boys. And now it is again. They’re the reason I fought to stay in med school when Sylvia was trying to force me out, heaping degradation on me. They’re the reason I stayed up til 2 in the morning studying organic chem long before I ever met Jeremy Noyes. They’re the reason I have started my own practice now. The thing I have been dreaming of for almost 13 years.

In some respects, it is easier to have rape and torture at the center of your story than to have your sick babies there. What mother wouldn’t rather endure suffering herself than to see her babies suffer? But we are not put on Earth to choose the easy path.

I named this blog I’ll Sleep When I’m Dead when I was in residency working 90 hour weeks, 36 hour shifts. But the truth is, for doctors, the sleepless nights and exhaustion pretty much end when graduation day comes and attending life begins. For autism moms, there is no graduation. There is no finish line. We really will wait our whole lives for a sound sleep.

I went into medical school to become a different kind of doctor than the ones my son had. Condescending, close minded, clueless. I went undercover. Deep cover. And I unavoidably lost my way. Drank the Kool-Aid because there really is no other way to make it out alive.

But I’m on the other side now and I remember who I was. I am an autism mom who became a doctor. I am an autism mom. I am an autism mom who knows immunology and pharmacology and neuroanatomy. I am an autism mom who gave her soul and body and mind and heart for her medical degree. And I have it. And *that* is the story of me. Jeremy and Sylvia were mere diversions.

I am going to help my children and my patients. I am going to speak out and challenge all they do that is wrong. I am going to sleep very little. Because that’s what autism moms do.

Good night. I have some reading to do. 

the smell of collard greens and sickness: 38 today

24 Friday Mar 2017

Posted by in kids, marriage, my awesome husband, parenting, PTSD, Sin, Uncategorized

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Today was the kind of day you question this whole having-5-kids thing. It’s my birthday and I’ve spent it tending 3 sick kids and taking another one to the psychiatrist. We’re talking wall to wall puke and diarrhea. Kids whining and crying. Wailing and gnashing of teeth. And always, always, the cry from all directions: Mom!

That said, 38 is a good birthday. The sun is shining. My husband surprised me with some beautiful flowers (even more a surprise because I ran into him at the store as he was buying them-he thought it ruined the whole thing but I found it more of a unique thrill). Granted, the 16 month old knocked the flowers and the 2 quarts of water they were in on the floor, but still. Clean up efforts of the spill were difficult secondary to every single rag in the house being in the wash, dirty or currently used as a puke reservoir. But still.

I spent my 28th birthday in the midst of my five month long trauma. So, Hell. I spent my 28th birthday in Hell. The great thing about trauma is that it makes puke and diarrhea look pretty damn good.

I took my sick babies for a walk in the double stroller today around our neighborhood on the river. I ate Thai food and vegan cheese cake with a very nice raspberry sauce, made by my hubs. I drank some wine and even convinced my teetolaller hubs to join me. My kids all made me cards (ten minutes before the party once forced to by the hubs) that were very sweet. My hubs spent the day, when not reducing raspberry sauce or walking our daughter to the dollar store for more pink balloons, working on the medical practice we are opening. The best present ever.

And  I got one other very important gift: time to write this.  Luxury living at its finest. I do not know how I could have made it to 38 without writing. It was my escape as an outcast Aspergery tween, was my voice against oppression in high school and beyond, won me scholarships and fellowships that made me feel like maybe I really did belong in academia, inspired lyrics that gave me the drive and the confidence to sing in a punk band in front of hundreds of people despite being completely terrified, got me published in a legit medical journal at a time when I struggled with feeling like I was a *real* doctor. Most importantly, writing got me through the weeks and months directly after Jeremy was arrested. Through the second trauma of my medical school shaming me and trying to ruin my career. And it preserved my memories. A true privilege few trauma survivors have.

This blog helped me recover from my PTSD. It helps me still. The core of PTSD is shame. The only way to battle shame is to speak your truth. More specifically, to have someone hear your truth. And not walk away. It is a small little blog with a small group of followers, and I am grateful for each and every one of you. You are a precious gift to me on this my 38th birthday.

It surprises me how I begin to write these entries with a problem and think to myself “Why are you dwelling on this problem with no solution? Cut the pity party.” And I start to write and by the time I am done, I have found an unexpected solution or a new way of looking at it, or have found a path to accepting it as it is. It makes me wonder if anyone can recover from PTSD without creating something. Trauma is the opposite of creation. It is destruction. It is the Fall in the Garden, the closing of the gate. What is it that Eve suffered for the Fall? Pain in childbirth. Pain in creation. But she did not lose the ability to create new life.

There is a certain pain to my writing now that wasn’t there when I was younger. Before my trauma. Before I had my first little boy and was told he was sick at 6 days old (and on the 7th day God rested. I cried the deepest cry I ever have while God rested. He and I are still hashing that one out). Before. But there is still this gift of the ability to create, as God does. And there is a healing in it. And a connection. Maybe not to God so much, but to other people, other survivors–not just of trauma, but all the sad things we live– to time, tradition, cyclical history. And a connection of ideas, of the points of my life, of the people who’ve passed in and out of it. Maybe, just maybe, if I keep writing, it will all make sense. The connections will be drawn, the pattern will show itself. There will be an answer.

I made a big batch of smoky vegan collard greens today for lunch. I made a lovely kale strawberry smoothie for breakfast. I took my medication. I exercised. The day was still utter chaos. I was still pretty damn grumpy for most of it. But I still ate my greens. I did not resolve my ongoing spiritual struggle over the nature of God (he can’t be all loving and  all powerful, so he mustn’t be all powerful so… where the hell does that leave us?)  But I still ate my greens. I was a highly imperfect mother and wife. But I still ate my greens. I was lonely for a lot of reasons. But I still ate my greens.

And so, the house came to smell of sickness and collard greens on this my 38th birthday. But it was 74 and breezy and so we opened the windows and doors and aired the place out. Took the baby out in the yard barefoot. Walked down to the public dock and watched the water. Hung pink streamers and balloons and had a little party. Watched a cheezy terrorist movie starring Morgan Freeman with my husband with the volume down and made up our own dialogue (lip reading did reveal Mr. Freeman called one of the characters “son” as I predicted he would). Spilled some wine on the couch and laughed about it.

We aired the place out because, as I realized shortly before my 29th birthday, I am not in prison. I am alive and I am free. This is not a cell without windows. The sun is not kept from us. And I am not alone. I am eating my greens and cleaning up the messes as they come. The stuff of life. 38 years alive. Booyah.

happy valentine’s day

22 Wednesday Feb 2017

Posted by in kids, love, PTSD, Rape

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Those of us who’ve lived trauma have our anniversaries. There are no greeting cards or flowers as a general rule, but you never fail to remember it, year after year. There’s not a daft husband among us, covering his calendar in sticky notes to try not to forget to get his someone special that something special.

The peculiar thing about a trauma anniversary is that you share it with someone horrible. You’re the two people in the world who hold it an anniversary. Thinking of each other but hopefully not sending chocolates or poems. My 11 year old would say that doing so would be “cringy.”

Jeremy’s trial started the week of Valentine’s day 2011. The Ordeal with him began around the same time in 2008. So, it’s our special time of year. Me and Jeremy.

The thought had occurred to me a few months ago that the only two people in the world who think of my trauma everyday. Who will think of it everyday for the rest of our lives. The only two people are me and Jeremy.

I double checked with my husband on this one. He doesn’t think of it everyday. Probably most days but not everyday.

It took some getting used to, this idea that I will most likely continue to think of him and of It everyday for the rest of my life. Me at 87 still thinking of it everyday. Maybe I’m wrong. But that’s not likely.

It’s not that I think of him for very long. Something reminds me of It and the thought flits through my mind and it’s gone. It doesn’t linger. I don’t ruminate on it. It doesn’t ruin my day or activate my sympathetic nervous system. No fight or flight. No pupil dilation or rapid heartbeat or paresthesia. Not anymore.

Valentine’s Day this year for me was filled with sweets from my beloved and my four year old daughter squealing with joy over the Shopkins pens her Secret Admirer got her (hint: it’s me. I’m the Secret Admirer). The rad tech at work made a coconut cake. I got the joy of making my husband smile with the surprise I got him. I also looked up articles on the trial and re-read the chapter in my book on it, lost in the quotes of what was actually said on the stand. Remembering. I’m okay with that. I don’t find it cringy. Maybe you do. Eh.

PTSD is a result of fighting these things. It is allowing the cringiness of sharing Valentine’s Day with your trauma memories to keep you locked in it. How do we find a way to be so brave as to face a thousand little things like that? To let go of how we know things should be, of how we thought they would be.

It’s the same thing I went through with accepting my son’s special needs. It’s the same thing so many of us go through in so many ways throughout life. The only difference with trauma is that it’s a whole fucking lot harder. Terrifying actually.

I saw on the news today that Milo Yiannopoulos gave an interview saying pedophilia (that is, child rape) is okay as long as the kid is 13 or so. And now his career’s hit a slight blip. And I thought of Jeremy and his love of Foucault and his love of Ron Paul. Of Trump’s friend Jeffrey Epstein and the man who protected him and of Trump himself.

Jeremy wasn’t a freak. He was just a working class predator who got caught and couldn’t afford an expensive lawyer, whose parents didn’t have connections. Child predators are literaly running our damn country. And no one really cares.

I wish I could send a Valentine to all the little girls out there suffering under predators like Jeremy (and our President). I wish they could know how wonderfully made they are, how strong they are to go on surviving and how much I admire and love them for that. How wrong it is we leave them there because talking about the epidemic of child rape is cringy. I wish they were opening Shopkins pens and squealing instead of drifting off in their minds to another place as they are hurt.

I share my Valentine’s Day with them too. And it may not be okay, but it is what it is.

 

Merry Christmas to you, Jeremy, in jail!: A very PTSD Christmas Eve

24 Saturday Dec 2016

Posted by in christianity, Evil, kids, PTSD, Rape

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I love Christmas. I’m a Christmas nut. Perhaps the result of growing up on a Christmas tree farm. I love the music and the movies and the pine cones on the mantle and the gingerbread cookies my four year old insisted using the cowboy hat cookie cutter for. Christmas Eve is a very special day for me. But it’s also one of the 365 days a year I have at least a passing thought about my trauma. It’s the gift that keeps on giving.

One of my favorite Christmas movies is “It’s A Wonderful Life” starring Jimmy Stewart (who is from my hometown, by the way. I used to volunteer at the world famous Jimmy Stewart museum) as George Bailey. There’s a scene in the movie where greedy villain Potter gleefully shouts “Merry Christmas to you, in jail!” at George. (I’m not going into the context here but I’d encourage you to watch it if you’re curious)

So, I have a Christmas Eve tradition that those of you who haven’t known trauma might find a little… odd. Creepy maybe. Depressing perhaps. I like to shout,

Merry Christmas to you, Jeremy, in jail!

Jeremy’s the one who did trauma to me(read about it here if you like). I’m an anomaly in that my rapist actually went to prison. Not many do. It’s a merrier Christmas this year and the next 40 of them for the little girls he was planning to traumatize. So, I don’t see this tradition as odd or creepy or depressing at all.

Christmas is a season of hope. What was the birth of Jesus if not the creation of a whole new hope for us all? Hope that there is something more than this fallen world. And hope, I’ve learned through my PTSD, is the stuff of life. Without it, we’re not dead, but not really alive either (read about it here if you like). My hope was resored when I recovered from PTSD. I like to think sharing my recovery on here could give other survivors in the purgatory of PTSD have some hope too.

I’m a big believer in speaking your truth, in the toxicity of silence. The time I spent singing/screaming in a riot grrl band were some of my most empowered. Maybe it’s the autism in me, but screaming is liberating for me. When the problems of life seem unsolvable, I scream and it helps. For so many years I was told be quiet about what Jeremy did to me. I was told it would ruin my career. I was told it was my fault, that I was a slut and I mustn’t advertise this. I have seen the damage this did to me and so, I don’t just speak my truth in this season of hope. I scream it.

Joy to the world, you fucker.  Joy to you, little girls. There is hope.

pretending to grill in the garden of eden

04 Sunday Dec 2016

Posted by in love, PTSD, Rape, Uncategorized

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I have lost some weight recently. A goodly amount, I think it’s fair to say. Only ten more pounds to go. I weighed 150 pounds nine years ago when my trauma began and by 2013 I was 224 pounds. I ate for a lot of reasons. I’ll tell you about it some time.

Today I am thinking about a picture of me grilling. Well, pretending to grill. It was 2007 and I had left my first husband and was just starting medical school. I was young. So damned young. 28 to be precise. I just knew my soul mate awaited me out there. And I would of course find him on the internet. A single mom going to med school doesn’t have time to go out, so she would of course take advantage of online dating. But, I needed a profile picture. This was before the advent of selfies and not too many of us had a gaggle of carefully angled, flattering pictures of ourselves lying around in our smart phones. I didn’t even have a smart phone. So I asked my mother to take a picture of me.

I wanted to look natural so I said, take a picture of me in the kitchen cooking spaghetti. (Because everyone has a picture of them in full make up smiling as they cook spaghetti. So natural. And maybe I could use it if I ever decided to sell my own brand of jarred spaghetti sauce. Kill two birds with one stone. Bam) Unfortunately, the lighting in the kitchen was bad so we went out on the back patio of my little ranch house in Erie. Unsure of how to keep up the natural theme, I went for the grill. Here, I said, take a picture of me pretending to grill.

And so here I am today, looking at a picture of me with my hair perfectly done, pink lip gloss shining, smiling with my mouth and my eyes (so it wouldn’t look fake. Even though it was). Holding a large grilling spatula in my hand, the cold grill lid opened. No sign of my special needs toddlers to be seen. None of the dark circles I’d soon earn staying up late studying. The flat stare of depression that had occupied my face most of my life, the fear of the abuse I’d lived under, the wide eyes of my mania, absent. I’m beaming with hope in that picture. An endless stream of possibility before me. Faith that I will have a wonderful life. (I did work in the Jimmy Stewart Museum in high school, after all).

I do have a good life now. Nine years later. I have been blessed and I have fought for it. I certainly do not have the life I imagined then, when I was young. How many of us do? I have walked through my darkness these years and come out on the other side.

I am now almost to the weight I am in that picture. And as I have dropped each pound, run each mile, I have thought, this is a victory over my trauma. I have reclaimed my mental health and now I am reclaiming my physical. He can’t take this from me. I am leaving behind my trauma pound by pound. I am escaping a body that is not really mine. Getting back to being myself after so long.

But now I am close to the weight in the picture, to wearing the clothes I wore then, all of which I have saved in anticipation of this day. And I look in the mirror and I have not returned to looking like myself at all. I am not the girl at the grill.

My stomach has gone from that of a 28 year old whose had 2 kids to that of a 37 year old whose had 4 and gained and lost a lot of weight. My face has crow’s feet and laugh lines it didn’t then. And my eyes don’t smile the same. They’ve seen too much to smile so damned naïve. They smile not with happiness, but with the joy that comes from knowing sadness.

I’ll be honest with you, I wish my body looked like it did back then. I’d love to be a good feminist and not feel that way. I know I shouldn’t subconsciously convey such attitudes to my sweet daughter. But, life’s a process, okay? And I wish I was a little firmer, a little perkier. Less stretch marks. Less lines. But I don’t wish my eyes were perkier. I don’t wish these past nine years had been different. Don’t wish I could return to being naïve.

I’ve never believed in regret. It’s never made sense to my logical autistic brain. If you can’t do something over, why would you possibly sit around thinking about what might have been? It is what it is, I often say. Life is what it is.

I have no regrets about choosing the medical school I did. About pursuing the awful man I did. About turning him in as I did. Never have, never will. But I have been continuing to labor under the false idea we get after trauma. The idea that keeps us from moving on, that locks us into PTSD if we believe it enough. The idea that we can make this trauma not matter. That it can become a minor footnote in our life story. That we can go back to being who we were before. Before. Before *it*. You know, that event that doesn’t matter anymore. Even though it’s the yardstick we now measure every accomplishment by. Constantly claiming victory. Telling yourself, living well is the best revenge. Tallying up everything you have that your perpetrators never will. Telling yourself, I’m not like those whiny survivors who blame all their problems on their trauma. I’m different. I have overcome.

The truth is, your life was divided the day the trauma began. There was before the trauma and after. And it drives you mad. You just want that damned line erased. You want your life whole again. A beautiful continuous flowing story arc. With twists and turns and dips and peaks, but unbroken. But that fucking chasm, fault, break, schism, crack, gully, canyon, whatever you call it, it’s still there. Won’t budge. It’s not something you can remove. Because it’s not something. It’s the absence of something. You can try and try to fill it, but it’s still there. Go ahead, dump in food, pills, booze, drugs, sex, work, reckless driving, overspending, self injury, reality television, starvation, obsessive relationships, obsessive religion, hours of staring blankly at walls… It’s still there. Fill it til it overflows. It’s still there.  It. Will. Always. Be. There.

The Garden of Eden will not be restored. The fallen world remains.

And that’s okay. Well, it’s not *really* okay. It’s trauma. And trauma’s hell. But… it is what it is. It doesn’t have to be okay. It just is. And you have to learn to accept that it is. Over. And over. And over. You build up a life on the other side of it. You peer down into it and thank God you haven’t fallen into it. That you’re here. Looking back at it as you run, mile by mile.

I swallowed a vitamin yesterday. A really big vitamin. I’ve always been good at swallowing pills. So are my kids. Family skill. (baggy esophagus maybe? we’re not the most coordinated family so it’s certainly not that we have an especially athletic swallowing mechanism). The thing is, Jeremy raped me a lot of ways but the scariest one was the oral rape. Because I thought I would die. He would suffocate me and count to ten slowly and I thought he might just hold me there long enough to kill me and I’d never see my babies again. I felt so utterly powerless. I was so utterly powerless. He would tell me he was training the gag mechanism out of me.

It didn’t work and ever since then, I have had trouble swallowing certain things like big pills. Vitamins in particular I guess since he had me on a vitamin regimen of sorts. It wasn’t something I ever wanted to deal with. I  just took gummy vitamins. But yesterday my husband said, these are really good vitamins, maybe you could try and see. And so I did. I put this rather large vitamin and my probiotic capsule and my two medications in my mouth and took a big gulp of water and threw my head back. And they all went down. Down the hatch.

I felt so victorious. I thought, I wish I could tell someone. I was so happy that he’d now taken one less thing from me. I thought about telling people, though, and how I would need to explain that whole oral-rape-until-you-suffocate thing. And then I remembered the whole orally-raped-until-I-suffocated thing. And I felt so powerless. So utterly powerless. There in my living room, my babies’ toys strewn on the floor, the fireplace I love, the pictures of our wedding and our first communion at the Easter vigil and… I felt so terrified and so sad and… I thought to myself, a really awful thing happened to me. A freaky, awful thing. A thing no one deserves. That happened. It happened to me. And it can’t be undone.

The moment passed quickly. In a matter of seconds it was done and I was back to my life. To my beautiful fireplace and crazy bubalink babies and my devoted husband and I stumbling through Catholicism. And now I was doing all that with the benefit of a wonderful multivitamin.

You tell yourself, you need to stop running *from* the trauma and start running *towards* the good things. And the truth is, I do have runs where I think about the healthy habits I’m giving my kids and going on hikes with my husband, maybe learning tennis or kickboxing. How good it feels to be lighter on my feet, to get around easier, to know I’m probably going to dodge the bullet of diabetes type 2 and keep the arthritis at bay as long as I can. But sometimes I think of how far I’ve come. Sometimes I think of him, of her (the head of my medical school),  of the sickness in their hearts that makes them do the things they do. Of the happiness they tried to deny me.

They did, in a way. They took from me the naïve happiness I had then. They put a fault in my life. Made it into a before and after. But I have made a home on the other side. I am not hanging off the edge. I am not in the darkness of it. My happiness has given way to joy and wisdom and a greater love than I could have known. The fault is there to stay. And that’s okay. Well, it’s not okay. But it is. It is what it is. And after all, it really is a wonderful life.