• I’ll Sleep When I’m Dead

I'll Sleep When I'm Dead

~ writing my way through motherhood, doctorhood, post-PTSDhood and autism. sleeping very little.

Tag Archives: children

i would be a terrible dance teacher

21 Saturday May 2022

Posted by elizabethspaardo in empathy, kids, love, parenting, romance

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children, empowerment, love, Possibility, trauma, truth

I’ve done this dance as long as I can remember

(not the foxtrot. We did that in Gym and I was awful)

This dance of give and give and be who they want and not who they don’t and when they step on your toes don’t say a word because they might leave you and dance without someone else, someone who doesn’t complain when they step on their toes. So even if your toes are raw and bleeding and you can barely stand up, you keep dancing, because the only way to win is for the dance to last Forever

But

Inevitably it gets to be too much and you realize how messed up this dance is and so you leave. It’s always better to be the one who leaves. And if you should find yourself in that old familiar black hole, well, you’ll figure that out when it comes

They used to have these dance marathons for charity on sitcoms where the couple who stops dancing last is the winner and they’d dance all day and all night and wacky funny things would happen. But really what happens when you lose if you quit dancing is that you get so damn tired and bitter and hopeless and then that’s all your children know of life

They need to know it is not healthy at all to dance all night and all day no matter what the cause. They need to know the Baker bunion is not inevitable just because every other female in the family has it. And so, you sit and rest. You know now in your bones that there are a lot of ways to win, not just dancing forever. Know that bone that is your bunion has been trying to tell you this all these years but you wouldn’t listen. Maybe you thought you deserved to live that way. Maybe you taught them they deserve to live that way. But not anymore.

I was so afraid she’d disappear and never come back. And she did. Afraid if I said even the littlest thing out of line and I was right.

I was so close to invisible I thought I’d found heaven when I heard those words that day. To be so watched you must do everything right and yet not seen at all. And so I see them dancing the dance. And I hope I show them that the way to win isn’t to never stop. That it’s just a silly show and at the end of the day the best part is getting to rest with your feet up at home with the people that love you. And to choreograph your own life to your own song with an audience of one.

Cha cha cha

addicted

12 Tuesday Apr 2022

Posted by elizabethspaardo in addiction, autism, Catholicism, christianity, empathy, kids, residency, Sin

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addiction, autism, beauty, children, death, empathy, fallen world, joy, laughter, love, medicine, original sin, Possibility, religion, residency, silence, trauma, true love, truth, viktor frankl

all of my patients are physically dependent on opioids. ICD 10 F11.20. some of them are addicted to opioids. a lot of them aren’t.

maybe you’re physically dependent on something. for which there is no ICD 10 code. caffeine, zoloft, dopamine, adrenaline. maybe you’re addicted. coffee, zoloft, social media, shopping, toxic relationships, speeding, gossip, little debbie Christmas tree cakes, work, success, sex, HGTV.

maybe you think I’m being cute. or metaphorical. just making a point. no one goes to rehab for gossip addiction (maybe they should). no one goes to jail for possession of little debbie Christmas tree cakes (maybe no one should go to jail for possession of anything. maybe the jails are a crime)

addiction is an escape from the pain of being human. being human is more painful for some than others. but it is painful for all of us. and if someone tells you it isn’t, that is because they are so deep in their addiction, they have lost touch entirely.

eve and adam ate that apple and it all went to shit, you see. our eyes were opened and sickness and pain and toil entered the stage. we all fell down, down, down. and ever since, we have very logically sought to numb the pain of it. because there is no way up, up, up. not in this life anyway.

we are afraid. to hope, to love, to ask for love, to speak our truth, to share our pain, to need or be needed, to want or be wanted. we are afraid to take up space and that we might disappear, to be silenced and to be heard, to be alone and that we might make a genuine connection. we are afraid we are unlovable and that to be loved would be the most unbearable pain imaginable. or perhaps, worse than that, ecstasy.

in addiction we connect with other people. no we don’t. we are with people and we are less lonely and so we think we are connecting. logical. understandable. but let me tell you a story about the time my friends let G die when he overdosed because they were high too and didn’t want to get in trouble and i knew they loved drugs more than they loved me or each other. and the time i went back to my dopamine adrenaline filled emotional intimacy free relationship because right at that moment i loved it more than my kids and i do not want to tell you that but how else can we do better?

and they told me my son played next to other children but not with other children and that he was too old for parallel play. but tell me how much time adults spend engaging with other people and not engaging next to other people? are we connecting spiritually or are we churching next to one another? and those residents we work 90 hours a week with that we save and lose lives with, do we know them at all? and so pass the pipe and hand me that spoon and we will share a hit of Netflix and yoga and pumpkin spice latte next to one another in this Fallen World.

there is no ICD 10 code for the unbearable lightness of being but maybe there should be

Fuck Ted Bundy

31 Thursday Mar 2022

Posted by elizabethspaardo in Catholicism, christianity, empathy, Evil, kids, love, marriage, my awesome husband, narcissism, outrage, parenting, PTSD, romance, Sin

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be my valentine, betrayal, children, divorce, empowerment, Evil, fallen world, family, good, Justice, love, meaning, narc, narcissism, original sin, Parenting, religion, silence, sock monkey, stars, trauma, true love, truth, vampire, viktor frankl

Flesh of my flesh

Bone of my bone

Leave your parents cleave to me 

I am your new home

Home forever

Til death do us part

And if I make you yearn for that end 

Why that’s hardness in your heart

For if you love God

You love marriage, you love me 

And you know when God joins together

You’ll never be free

Free to be who you really are

To follow the fate signed in your stars

No you are mine and I am yours 

Don’t lock your phone 

Don’t lock your doors

We are one in heart and soul 

We are both driven by the hole 

left behind by the barren wombs that birthed us underneath the moon

Mother moon has cried for us while Brigid’s fire inspired us 

To reach for something better than us 

Wait Did I say us? 

I meant me. 

You conjure planks in all our eyes 

But yours are fine 

(It’s a disguise) 

A pleasant reflection outside of you 

Rot and decay is what is true

What god has joined together I will put asunder 

For how can we be one when your trunk is putrid and diseased at its core?

Swoop up the fruit before it hits the floor 

If you can tell a tree by the fruit it bears you’ve done a damn good job of fooling God 

For our children are precious fruit indeed 

Owing little to your bitter seed 

They grow and bloom in spite of you 

Soaring so far past the height of you 

Knowing there is something not right with you

People look at the women that fell in love with Ted Bundy

Stood by Ted Bundy

Accepted a proposal in a courtroom from Ted Bundy

And they think these women are naive or dumb or victims themselves

But has it ever occurred to you that they were there because being in love with Ted Bundy worked for them?

Instead of looking at him as this charming manipulative sociopath fooling these women

Has it occurred to you that she was manipulating him too?

Judas and Ted Bundy and Jeremy Noyes 

Sinners that God so loved he gave his only son 

God and Abraham would sacrifice their sons for the sins of the world

And so do you think yourself holy when you hurt your kids to hurt their mother? To punish her for leaving? For putting asunder what You joined together?

Because it was never about God 

And always about you 

And you, are a jealous and vengeful little demigod 

So easily beat by Brigid and Mother Moon

Drip, drip, drip (better times up round the bend)

25 Friday Jun 2021

Posted by elizabethspaardo in empathy, Evil, kids, love, marriage, my awesome husband, narcissism, PTSD, Rape, romance, Sin, Uncategorized

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abuse, addiction, be my valentine, betrayal, children, divorce, empowerment, fallen world, family, feminism, forget paris, joy, Justice, laughter, love, morality, narcissism, Parent, patriarchy, Possibility, PTSD, rape, silence, Sin eater, trauma, true love, truth, twinflame

Water torture encompasses a variety of techniques using water to inflict physical or psychological harm on a victim as a form of torture or execution

I’d like to start this post by pointing out the term “Chinese water torture” is racist and nonsensical actually. When this torture technique has been used, it has been mainly by Europeans and there’s no recorded instances of the Chinese ever having used it.

Ok, onward and upward.

There’s this book by Lundy Bancroft I bought years ago titled “Why Does He Do That?” It’s about abusive partners and the many myths that surround our ideas of abuse. He’s a counselor that works with abusive men who either want to change or have been forced by the courts to undergo counseling. We often say abusive men need to learn to manage their anger but Bancroft argues that abuse isn’t an issue of out of control anger. Rather, it is a systemic, deliberate process used to control for the benefit of the abuser. They don’t need to learn to control themselves; they need to learn to stop controlling their partner (and everyone else in their lives they’re controlling).

In the book, he details ten different categories of abusers. The one I am going to talk (err-write) about today is the Water Torturer.

We’re all familiar with the idea of water torture. Not the waterboarding done by the US government. Rather, this idea of tying someone down and dripping water down onto their forehead slowly, drip by drip. The drops come randomly and it induces a psychological breakdown.

Lundy uses this as a metaphor for the kind of abuser who doesn’t yell or hit. He is always calm and appears to the outside world to be a great guy. He rarely slips up and lets anyone see what he’s really like. He knows how to push his partner’s buttons and get *her* to scream and get emotional. Then he says “why are you getting so worked up?” “you really need to work on your mental health problems” “stop abusing me.” He doesn’t punch or kick but he engages in subtle physical abuse such as blocking her from leaving the room or following her around the house arguing when she tries to get away. He doesn’t engage in blatant sexual abuse such as rape but rather makes degrading comments about her sexual interests, her appearance or withholds sex. He makes extensive use of sarcasm, put downs, controlling where she goes, controlling money, undermining her sense of self worth, isolating her from friends and family, badmouthing her to other people and gaslighting. Lots and lots of gaslighting.

Because you see, like Harry Houdini who helped popularize the idea of water torture, he depends upon an illusion to keep her with him. He depends on creating distractions so neither she nor the outside world can see what he really is and what he’s really doing.

The good news, friends, is that you don’t have to remain strapped down to that table. The damage done by this abuse is extensive, but most definitely something you can heal from.

You just have to keep in mind the Wizard of Oz is not real and keep your eyes on the little man behind the curtain. It’s hard to do, but you’re a badass so you got this.

I see this a lot in my practice. I have women who come in with black eyes and broken ribs, but more often they come in telling me stories of emotional abuse like this. They’ve been so worn down by it, like a pebble in a stream that becomes small and smooth over time from the water flowing over it. They are too tired and broken to leave. And they’re in love. And they’re addicted to the chemicals our brains grow to crave when we’ve been in toxic, tumultuous relationships for so long.

The University of Illinois did some research and noticed there are 5 stages to leaving an abusive relationship. The first two stages encompass the very beginning of the abused partner noticing there is something very wrong, something that goes beyond normal relationship issues. She’s nowhere close to leaving, but the spell has started to wear off. Stage three, women start to notice the effect of the abuse on their children. They start viewing the abuser’s behavior as abuse on a regular basis. And they start preparing to leave. Maybe they tell a friend what’s going on. Start stashing away cash in case they need to run. Call a domestic violence line. Stage four is an interesting one.

Stage four is the yo yo stage. You leave but then you come back. You might end up yo yo-ing several times before you truly leave. Why? Because he says he’ll change. Because being on your own is hard, financially, logistically (with kids), emotionally. Because he gets other people to guilt trip you. Because he won’t “give up on you.” Because you’re addicted to the brain chemicals. Because this dynamic is comfortable to you. Because you love him.

Stage five is the final one. You have left and you have stayed away and aren’t going back. The researchers define this as having left and stayed away 6 months or more. The abuse can continue if there are children involved and you are forced to have continue contact with your abuser, but it’s much less than before and you can begin to heal and move on.

It’s hard as doctor to have patients in those first four stages. Hard for friends and family too. But you can’t skip stages and you can’t rush someone through them. They have to make the choice to leave and stay left. You can support them by listening without judgement and validating their feelings. If you’re a friend or family, offering help with kids and other logistics can help too. And if they yo yo back, be there for them. They may be afraid to tell you. They may avoid you. Don’t give up on them. The abuser will likely make even greater attempts to isolate his partner if she goes back, so stay in her life whatever way you safely can and let her know you’re there is she ever needs you.

A lot of doctors shy away from dealing with the issue of intimate partner violence because they find it so frustrating to have a patient that won’t leave or who goes back. There are a lot of reasons women stay or return. And the sad reality is, sometimes it’s safer or necessary for her to stay. Being there to keep her as safe and supported as possible is hard, but it can be life changing for her. If you abandon her because she won’t leave, you’re just continuing the patten of the abuser, seeking to control her.

The longer you stay, the harder it is to leave. So, if you’re in a relationship with a water torturer, don’t put off considering leaving. A lot of times the reasons we come up with to stay aren’t as convincing if we discuss them with someone outside the relationship like a therapist, domestic help line or friend. Once you’re down in his world of gaslighting, isolation and control, your sense of reality is skewed. You need someone who isn’t riding that Tilt-A-Whirl.

Once you are out, the healing is not necessarily the most fun process. It’s kind of like when someone is getting over opiate addiction. There’s a lot they need to dig out from. A lot of pain and sadness and the practical part of rebuilding your life. But there’s also joy. And as the months pass, there is less and less pain and more and more joy. And you will look back and say, how did I do that all those years? How did I survive? And you’ll see what a badass you are. And that there are far better things at the carnival than the broken Tilt-A-Whirl. And you and your kids will eat cotton candy and laugh and sleep soundly at the end of the day cozy in your warm, safe beds.

40 Days and 40 Nights (or, what doesn’t kill you also makes you more grateful (if you let it).

03 Sunday May 2020

Posted by elizabethspaardo in Catholicism, christianity, doctors, empathy, kids, love, medicine, parenting, PTSD, Rape, residency, Uncategorized

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beauty, children, death, dying, empowerment, fallen world, family, friendship, love, medical school, medicine, mental illness, Parent, play, PTSD, religion, trauma, truth

We have now had a fever for 42 days. Off and on. Mine had gone away yesterday and I thought, maybe this is it. Maybe this was a fever that lasted 40 days and 40 nights, that started two days before I stopped being 40 years old. And maybe if that’s true, there is a deeper spiritual meaning to it. So, I researched the number 40.

They say 40 in the Bible essentially means, a really long time. It rained for 40 days and 40 nights when Noah was out on the ark. The Israelites wandered in the desert for 40 years. Moses’s life is divided into three 40 year phases. Jesus was tempted by Satan for 40 days. He stayed with the disciples 40 days before ascending to Heaven where he is seated at the right hand of the Father.

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They also say 40 represents a new beginning. It has to do with it being a factor of 5 and 8, and 4 and 10. I will skip over those details. After 40 days, the flood receded and it was a new world. After 40 years the Hebrews were considered to have paid the price for their disobedience and given a new life in the promised land. After 40 days, the Holy Spirit anointed the disciples and they were reborn. In Judaism, the embryo is considered to be formed at 40 days gestation. And a pregnancy lasts 40 weeks.

It also represents water, baptism, mikvah. There is the great flood. In traditional Judaism a woman goes to the mikvah ritual bath for purification 40 days after having a son, 80 days after a daughter. The mikvah is filled with 40 seah of water.

According to the Jewish Talmud, at 40 years old you gain the gift of understanding. You come to begin to fully understand all you’ve been taught.

I have been feeling exhausted lately, burdened. And feeling like I will forever be wandering in the wilderness, the promised land always just slightly out of reach. Time and again telling myself, you just need to get through this phase and then things will get easier. At what point do I admit to myself it’s a lie, that this is as good as it gets? In other words, I have been hopeless and have lost that sense of possibility I’d been so grateful to regain back in 2015 when my PTSD was healed.

My life is better than a lot of people’s and I know this in my head and I know this in my heart. But their suffering did not seem to alleviate mine. I kept telling myself to get over it, but I just couldn’t.

Perhaps it’s the nature of this fever. You feel good for a day or two or three. Really good. And you’re so grateful. You have energy and joy and you can run and get things done and enjoy life. And you think this is it, I’m better. I can get on with my life. And then it comes back.

Perhaps it’s this quarantine grinding us all down. Or the fact I had three people close to me in my life a year ago and now I have none. And I’m in isolation and can’t replace them. I cannot picture my future because none of us can. We do not know what will happen with the economy, with the pandemic, with the election, with the way things are done and the way we relate to one another. And so, how do we have a sense of possibility? There are infinite possibilities and none at all.

And so I looked to the number 40 for hope. If my fever lasted 40 days then maybe there was a divine reason God had allowed it to go on so long. Maybe God had a plan for me. Maybe beyond 40 years and 40 days and nights I would emerge from the wilderness and finally enter the promised land. Purified and born again.

But here I sit on day 42. Maybe sometimes a fever of unknown origin is just a fever of unknown origin.

I had the energy to play with my daughter today. She couldn’t believe it. We ran shuttle runs and played charades and had a jumping competition. I felt great. For now, I’ll take that and be grateful. We’re not promised a damn thing in this life. If I ever return to good physical health and energy I will be grateful in a way I couldn’t have been before. When we emerge from this quarantine and I can be with my patients in my office again, I will be grateful in a way I couldn’t have been before. And when the second forty years of my life are easier than the first (and they will be. I know this much is true), I will be grateful in a way I couldn’t have before.

I hate the saying what doesn’t kill you makes you stronger, even though it’s true. I mean, what a crappy gift: the knowledge now you can make it through something even more awful. But this truth has saved my butt more than once and I put faith in it that my children’s difficulties have done that for them. Because life is hard and the best thing we can do for our kids is prepare them to face whatever it throws at them without falling apart. But what doesn’t kill you also makes you more grateful (if you let it).

I’m grateful for my kids’ fever because at one time their immune systems were so dysregulated, their bodies couldn’t mount a fever response to invading pathogens. I’m grateful every time my 14 year old acts like a jerky teenager because he gets to a live a relatively normal teenage life now instead of being in PANDAS hell. I’m grateful every time I eat a meal without an abusive husband there criticizing what I’m eating or not eating because that was not always the case. I’m grateful to be a doctor, the good and the bad, because it was almost taken from me and I gave literal blood, tears and a piece of my soul (and my cervix) to get through my training. I’m grateful for the sense of possibility because for so many years in PTSD, it wasn’t there as I dwelled in that place between life and death.

So maybe that’s what the promised land really is: gratitude. If we never wandered through the desert for forty years, how could we even know we were in the promised land? Maybe it is not a static place, this promised land. Maybe it can’t be. Maybe it’s an oasis where we replenish ourselves and get a rest before heading out again. We never know how far into the wilderness we will go and for how long, but we know the promised land is always there. Until we reach the end of this life and enter the world without end and find that possibility we have been been seeking once and for all.

Lassoing the Beast

24 Friday Apr 2020

Posted by elizabethspaardo in christianity, empathy, Evil, kids, love, marriage, medicine, my awesome husband, narcissism, PTSD, Rape, Sin, Uncategorized

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children, empowerment, family, Justice, love, medical school, medicine, mental illness, patriarchy, Possibility, PTSD, rape, religion, sexual assault, silence, trauma, truth

I do not think that I have ever seen a case where the sentencing goal of protection of the public figured more predominantly. Anyone who sat through this trial would realize that this defendant is the worst nightmare of every child’s parent. The entirely credible and overwhelming evidence demonstrated that the defendant is a dangerous predatory sadist…
Hon Sean McLaughlin, sentencing of Jeremy Noyes

golden lasso

A package arrived today. A hoody. Oh, how I love a good hoody. Is there anything better? Cozy and comfy and flattering on people of all shapes and sizes. Maybe it’s because I grew up crushing on boys with long hair in hoodies and Vans, but hoodies hold a special place in my heart. Back to present day: the hoody that arrived was blazoned with Beast on the Bay. Because I have decided to run the Beast on the Bay again this year.

Regular readers may recall that in 2018, I ran the Beast as part of my ten year anniversary of my trauma. It inspired me to get into shape and do something that felt impossible. It also happened to be in Erie, where my trauma occurred and is sponsored by my old med school, who made the trauma significantly worse. I was not able to run the race in 2019 because the previous summer, in the best shape of my life, I had suddenly developed a mysterious autoimmune neurologic disorder a week before I was to run a different obstacle course race, the Spartan. Now, within this surreal time of quarantine, I’ve decided to do it again this September (if it’s not cancelled).

I had come to some new revelations on Easter Sunday. Not regarding God or Armageddon or resurrection. Regarding my immune system.

antibody_1_1

In order for me to explain, let’s rewind to June 2019.

I’d been in training for 14 months and was in peak form. My body fat percentage was its lowest ever. I could run a 9 minute mile. I was pumping out burpees like a champ. I felt amazing. On Sunday, my husband I went to a local Crossfit gym to do a class and practice rope climbing. I’d never climbed a rope in my life. I never even tried in gym class as a kid because I was convinced I couldn’t do it and would just embarrass myself. I knew I needed to climb one for the race coming up the following Saturday so we went and the owners gave me some tips and I did it! I was so damn proud of myself.

The next morning I woke up and felt sick: I was exhausted, my muscles ached and felt weak. It wasn’t the way I felt after a really brutal workout. It was the way I felt when I had the flu. I decided I better give into it and rest as much as possible but I’d been planning on working out leading up until a couple days before the race. I needed to get better quick, though , so I cancelled the workouts. By the time Friday came, I was still exhausted and I knew I needed to cancel the race. I was heartbroken. I’d worked so hard and it meant a lot to me. It was odd I was still feeling just as bad six days in, so on Saturday instead of going to the race, I went to Quest to get some bloodwork drawn.

Over the next few months I saw neurologists and rheumatologists. I had bloodwork, MRIs, EMGs, and EEGs. I began to piece together symptoms I’d been having in the months leading up to my exhaustion. Blistering on my lips I’d assumed were cold sores (they weren’t). Neuropathy in my arms and legs after showering. A tightening of my rib muscles during a run. At one point, my calves swelled and hardened during a run, forcing me to stop. My fine motor skills were off and I was having more of the involuntary muscle movements I’d gotten for years. I was losing my balance more often too.

pemphigus

None of the doctors ever arrived at a diagnosis and I was told to deal with it and be grateful it wasn’t something bad. I wasn’t. How could we know if it would get really bad or not if we didn’t know what it was? I had plenty of patients in the same boat. Vague autoimmune symptoms and slightly off labs but no clear clinical picture of a known disorder. They often found their way to my doorstep looking for help from medical marijuana (Which is smart because it helps both the symptoms and has immune modulating effect which can help longterm outcomes). I was now one of them.

I tried changing to a plant based ketogenic diet but it only seemed to make it worse (and was unpleasant as hell to eat). I tried forcing myself to exercise but it made it worse too. I would have a few days where I felt pretty good, but the symptoms always returned. That is, until November.

In late November, my husband moved out. Our marriage ended. And so did my symptoms. I hadn’t been expecting such a dramatic reaction on the part of my body, but there it was. Fatigue, pain, weakness, skin blistering, muscle jerking, neuropathy. Gone. My toxic marriage had been killing me. My body was sending me one last desperate message before it gave up the fight. And it worked.

What can make you more grateful for the movement of your body than losing it?

There has been a lot going on in my life since then. Divorce, buying a new house and moving in less than two weeks before Christmas, and the in and out of court of a high conflict divorce and custody battle. Finally as February came to a close I felt like things had settled down and I was ready to start working out again and go on a diet to shed the weight I’d gained since June. It went well for a couple weeks and then buh buh buh, quarantine! And it all went to pot. Like it did for all of you.

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No more daycare. No more school. Time to homeschool 3 kids and take care of a preschooler. And now you have to take your medical practice and completely restructure it because you can’t do office visits anymore. And no one can help you because it’s a freaking quarantine. And did I mention the high conflict divorce I’m in? Yeah, those don’t improve with quarantine either.

And then we got sick. March 22nd, my four year old and I woke up with a fever, sore throat and cough. Exhausted, body aches, chills, no appetite. Then the other three kids got it. We didn’t qualify for COVID testing so I put us into complete isolation (actually considerably worse than regular quarantine life, believe it or not) and waited for it to pass. But it didn’t. The fever would sometimes for 24 or even 72 hours, but it always came back. We’re now on Day 33. I eventually coerced an urgent care into giving me a test despite not meeting criteria on Day 24 when our fevers went up higher than ever. The test came back negative but they told me false negatives were common and I should consider getting tested again. I consulted with my mentor, the best doctor I know. He said he thought it was COVID and a false negative. I agreed.

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If you consider the other things in the differential diagnosis (cancer, rheumatoid arthritis, Epstein Barr virus, CMV, Lyme disease), none of them made as much sense as COVID.

And so, here we sit in isolation. Now, back to the Beast. I was in a lull of symptoms two weeks ago on Easter Sunday. I was sitting watching a local church service on my big screen TV while my kids ate their candy and watched their iPads, and a verse struck me.

A good man brings good things out of the good stored up in his heart, and an evil man brings evil things out of the evil stored up in his heart. For out of the abundance of the heart the mouth speaks.

And I realized my husband had ruined my relationship with God. Because that’s what abusive people do. They isolate you. From friends and family and, sometimes, if they’re really good at it, God. I realized how far from God I’d gotten, and how I couldn’t separate God from my husband and the harm he does. And I realized it was now time to stop. And I said hello to God again.

I realized something else that night as I stayed up late journaling about all my newfound epiphanies. I was ready to get in shape and lose weight again. But I needed something to focus on, a race. I thought of the Beast. But when I thought of it, my stomach dropped. I realized the thought of running it alone, without my husband, scared me. That I felt like his ghost would be haunting me the entire time. And most things that scare you, are the things most worth doing. And then it occurred to me. The timing of the onset of my autoimmune issues. I’ve always noted the cruel irony of it beginning right as I was to run an obstacle course race even harder than the Beast, that I’d trained for for so long. Right at my physical peak. My husband was going to run the Spartan with me just like he’d run the Beast with me. He jumped on the Beast wagontrain late in the game. He said he didn’t think I’d actually train and go through with it so he waited. Like it was such a big freaking honor to have him run it. He took something that was mine and made it his. He was jealous. And he was going to take the Spartan from me too. He had spent years complaining I was fat and had a flat butt but when I got in shape, he was so damn jealous, he did everything he could to undermine me. And he couldn’t let me have the Beast, my moment. I didn’t finish high in the Beast, mind you. I couldn’t do about a third of the obstacles. But I finished. And I was so damn proud. He acted proud too: proud of us, proud of his wife, of himself. His wife, not me. His possession that reflects on him. That was what he showed the world. A few weeks after we finished it, I put a “I Beat the Beast” bumper sticker on my car and he looked at it and said “You didn’t beat the beast. You didn’t finish all the obstacles.” And that, ladies and gentlemen, is what he shows his family. For out the abundance of the heart the mouth speaks. I stood up to him and told him I had finished and tried all the obstacles and that was a big accomplishment for me. He gave me a shitty look and walked off.

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He took the Beast from me and my body wasn’t going to let him take the Spartan. Maybe that’s why it shut down. Maybe my heart called up my immune system and said, if he does it to her one more time I’m going to break. And my immune system said, ok, time for the Hail Mary. We will throw the switch and shut the whole plant down and give her some time to sit and think. And if she won’t walk away, we’ll leave her there sitting. And if she does, she’ll run it for her. And my heart blew my immune system a kiss and my immune system blushed. Maybe. Maybe it was a gift from my body.

So, I signed up for the Beast. And ordered a hoody. And the next day fruits and vegetable and water became a thing again at our house. Planning and cooking dinners because a nightly thing. And working out resumed for me and my kids too. Life was good. I was triumphant!

But then life happened. Our fever has taken up residence and work and homeschooling are getting harder instead of easier. Yada yada yada. I’m back down for the count. But I’m not cancelling the Beast. I am running it, come hell or high water or fever or economic collapse. Even if it takes me ten hours, I’m running it.

I cried a good bit during the Beast the last time I ran it. Cried for what Jeremy did to me, for what my school did to me, for what their mom having PTSD took from my kids, for all the other survivors I know who will never see justice like I did. I imagine I will cry this time too, for a whole other set of reasons.

My high conflict divorce has been nastier than ever this past week. We may soon go before the judge via teleconference (ya know, quarantine) and I am scared my husband will convince the judge he’s the guy out there bragging about his wife running the Beast, instead of who he really is, the guy denigrating his wife when she dared to be proud of herself. But this is not my first rodeo, dear reader. I have sat in court with a man who accused me of lies before and I have spoken the truth and justice prevailed. I will lasso the Beast again this time. And I will put on my hoody and take a run and thank my heart for being so damn good to me.

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Epstein is not a freak and neither are you who stay silent

12 Monday Aug 2019

Posted by elizabethspaardo in doctors, Evil, kids, medicine, outrage, PTSD, Rape, Sin, Uncategorized

≈ 1 Comment

Tags

children, epstein, fallen world, feminism, innocence, Justice, medical school, medicine, patriarchy, PTSD, rape, sexual assault, silence, trauma

Jeffrey Epstein, the billionaire pedophile, died in a presumed suicide a few days ago. I cannot get over how similar his plans were to Jeremy Noyes’s, my perp from med school who now sits in federal prison in Arizona.

epstein

I am not just referring to their love of raping children. Jeremy often spoke of having a private island or farm where he would propagate his colony of child sex slaves and work towards creating the perfect race through the use of bought DNA. So did Epstein. In fact, Epstein spent millions seeking the advice of Harvard scientists , hosting a conference on his private island at one point.

Jeremy spoke frequently to others like him online. There was a whole community. I told myself they were lying, that it was all just a sick fantasy world. But, clearly, it was not.

I am a doctor who treats patients for PTSD. They tell me about the powerful men who’ve taken their childhood. They have no reason to lie to me. They don’t speak about it publicly. Oftentimes I’m the only person they’ve told.

Jeffrey Epstein is not an isolated case. He is not a freak. His crimes do not die with him.

There were so many people who knew what Epstein was doing and they did nothing. Made zero effort to save these girls. I cannot comprehend it. I can’t. I risked my life, my children’s live,s my career, everything. I risked everything to try to save one little girl. How is it that children matter so little that we would allow this go on? I didn’t understand it with Sandusky and I certainly don’t here.

It is not a conspiracy theory to not believe Epstein killed himself. In fact, to accept the story that this was suicide is a choice to talk yourself out of obvious reality. Men like Epstein don’t kill themselves. I know. I knew a man like him very well. Epstein’s case clearly held the potential to expose just how widespread the culture of child trafficking is. The media can try to shame me into not saying this publicly all they want. If their lame attempts work on you,you’re part of the problem too. Real shame comes if you have lived as a child sex slave. Shame you will never completely heal from. Boohoo to you, dear reader, if speaking out on this could be embarrassing for you. What would the neighbors think? The real question is, what are the neighbors up to themselves? This isn’t rare.

The choice to turn in a man like Jeffrey Epstein, like Bill Cosby, like Jerry Sandusky, like Jeremy Noyes, is difficult to follow through on but really quite simple to decide on. It is not a morally ambiguous situation. You will never find such a clear ethical quandary: try to stop a child rapist or not. You will not lie on your death bed at the end of your life and say, my only regret is that I turned that predator in. Unfortunately, it doesn’t seem very many of these people are likely to lie there and regret the fact they didn’t. And that truth makes it ever more difficult for survivors to heal. The truth that they’ve done nothing wrong is easy to see, but accepting it and moving on is the most difficult thing anyone will ever have to do.

I still feel some level of shame when I look at this. I still remember how I was made to feel by my medical school, the medical community as a whole, my family and complete strangers talking about me online. I spent years believing I was a crazy slut and bad mother. I wasn’t even consciously aware of it, but it drove everything I did. Like the trauma itself, the afermath almost cost me my medical career. It almost cost me my life. It stole a lot of things from my children.

Speaking truth is the only antidote to shame so I will tell my story over and over, to anyone willing to listen. I will tell you the heroic parts and the horrific parts and the parts that might make you not like me. To remind myself I did nothing to be ashamed of. They did. And to remind all my fellow survivors out there they’ve done nothing to be ashamed of. They are goddamned heroes and all the many people who failed to protect them are the ones who ought to be ashamed. And that, dear reader, might include you.

June 19, 2008 (or, Tequila!)

19 Tuesday Jun 2018

Posted by elizabethspaardo in kids, love, marriage, medicine, my awesome husband, PTSD, Rape, Uncategorized

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Tags

children, family, forgiveness, Justice, laughter, love, medical school, medicine, Possibility, PTSD, rape, sexual assault, trauma, truth

It was raining this morning as I headed out for my run. Ten years ago on this day, though, it was hot and sunny. I know this because I can remember the beads of sweat rolling down the back of my legs as I sat in my green minivan in that long, heavy, black Land’s End skirt I’d bought on clearance a few weeks before. My air conditioner was broken and the van churned out warm air as I sat staring down at my phone.

I’d programmed the phone number for the Pittsburgh field office of the FBI into it a couple months before under the name “Hope.” It was finally time to call. I knew he might kill me. Knew he might kill my two boys. Mies had just turned 4. Max was 2 1/2. I asked God to please protect them but told Him if something happened to them, I knew it just was what it had to be. I had to turn him in. I could never face my babies again if I didn’t. I didn’t want them to live in that kind of world. Abraham, I am feeling you, brother.

I operated purely through adrenaline at that time. Until he was arrested in August. And released on bail to a local podiatrist. And jailed again since he, ya know, had threatened to kill me and my kids and all. And then as I fought to stay in school as my med school slut shamed me and tried to get rid of me. Once the adrenaline stopped flowing continuously later that Fall, the real hell began. PTSD.

I wanted to give up but I somehow got to a place where I told myself, this isn’t it. Someday things will get better. You will watch your babies grow up. You will become a doctor and take care of your patients. You might even get married and have more babies. Maybe a daughter. Maybe. I fought off the hopelessness. I convinced myself there was possibility.

Here I am ten years later. With five beautiful kids (including a sassy-sweet daughter). With a handsome, devoted husband. With a practice of my own, complete with amazing patients I care about more than I knew I could. Healed of my PTSD. Having forgiven Jeremy and even Sylvia, the head of my med school, and all those professors who betrayed me. Training for a semi-impossible obstacle course race with my husband and a trainer, for goodness sake. A trainer. More than I dreamed possible.

I am so grateful to God my babies are alive. That I am alive. That I am a doctor. That I have the husband and kids I do.

I skipped work today and drove through the country to Deer Lakes park to go running. The rain and grey gave way to fluffy white clouds and sunshine in a beautiful blue sky. I held my hand out the sunroof as I drove. I felt the sweat run down my legs from my run as I drove.I sang along to Tequila! like a fool. I’m sure I looked and sounded ridiculous.

I pray the little girls he hurt find the peace I have. I pray he does too.

I am so grateful for today. I am alive, I am free. Thank you God.

Tequila!

Until then, rape culture will thrive

05 Saturday May 2018

Posted by elizabethspaardo in PTSD, Rape, Sin

≈ Leave a comment

Tags

children, fallen world, Justice, patriarchy, rape, sexual assault, trauma

Bill-Cosby-Mugshot1

A few things have happened in Pennsylvania recently that we should find encouraging. Bill Cosby was finally found guilty of sexual assault and two friars were charged for protecting a priest who they knew was molesting children. The near complete absence of legal consequences for rapists and those who stand by and do nothing about them is horrifying. That it may slowly be changing is a victory for activists. I felt a swell of hope when they announced the Cosby verdict. I belted out some Kesha on my drive home and cracked open a cider as I told my husband the news.

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But as this tide shift begins, there are certain things that must be said.

I have been seeing patients in my office for medical marijuana certification these past few months since Pennsylvania’s first dispensaries opened. It is amazing work to do. I hear so many heartbreaking stories of patients not only suffering illness but being abandoned by the medical system, struggling to hold onto hope. Their diagnoses range from cancer to pain to ALS to autism to seizures. And PTSD.

As a certifying physician, I am simply assessing if a patient has one of the 17 qualifying diagnoses Pennsylvania has designated to receive a medical marijuana card. As such, patients bring records from their treating physician and I use those records along with a history and physical exam to determine if they do indeed have the condition and are appropriate for medical cannabis therapy. They come to me because their physician either doesn’t believe in cannabis or, more often, recommends it for them but cannot certify them. A physician in Pennsylvania must go through a special process in order to be able to certify for medical marijuana and many physicians are reluctant to do so for a variety of reasons.

When I see a patient for PTSD I ask them about their symptoms, what other treatments they’ve tried, how long they’ve had PTSD and how its changed over time, and what their treatment goals are for medical marijuana. I do not ask them for the details of their trauma. It’s not medically necessary for what I am doing with them and just as I’d never perform an unnecessary pelvic or rectal exam, I am obligated as a physician to avoid being unnecessarily intrusive on a patient. If you’ve lived trauma then you know talking about it can be a more vulnerable and difficult procedure than an internal exam.

Still, patients often tell me their stories. I hope it is because they feel safe with me. I hope it helps them to speak their truth to me. It certainly helps me to hear their stories. It makes me a better physician and a better human being.

For the most part, I just listen. There are rarely words powerful enough to reflect back to them what they have just told me. I know it and they do too. Trauma is a language like no other. Sometimes I say to them, that’s horrible. I can’t imagine. I’m so sorry that happened. Sometimes I just listen and look and they know that they’re heard and that’s what matters.

I say nothing here of anyone’s story. Of any specifics. Anonymous or not. But I will tell you, dear reader, that something has surprised me. After spending all these years learning about trauma, thinking about trauma, writing about trauma, speaking to other rape trauma survivors, I have taken something new from it.

Many of my patients have gotten PTSD from being in prison. I wasn’t expecting that. And it makes me think of Jeremy. There was a time in my trauma healing process where I savored the idea of him being attacked in prison. I’m not proud of it but I do accept it as part of my journey through PTSD to the other side. It is not something I allowed myself to get stuck in. I believed before I ever met Jeremy in the importance of the corporal act of mercy of visiting the imprisoned. I recognized the inhumanity of our criminal justice system. And that wasn’t something I was going to let Jeremy take from me.

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I cannot imagine how hard it would have been to let this idea go if I hadn’t been one of the extremely rare few whose attacker actually gets prosecuted, found guilty and imprisoned. I have a safety and a sense of justice that is almost unheard of (even in the case of convicted rapists, it is rare they get the 45 year sentence that Jeremy did. I need not worry about the day he gets out and comes for me. I did not face the indignity of him getting a slap on the wrist sentence). Letting go of anger and the desire for vengeance when justice is denied seems almost impossible.

What I cannot excuse or validate is the similar sentiments expressed by those not involved in a particular perpetrator’s trauma. We have all heard and seen on the interwebs the comments of so many people when someone is found to be a rapist or child sexual predator. They make comments, some purely serious and others sickly comical, about the fact they hope the perpetrator will be raped in prison. An eye for an eye, a rape for a rape.

It perpetuates the idea that prison is a place where the “regular” prisoners will institute vigil ante justice and give these deserving sexual predators their come-uppance. Not only does it violate morality in its wishes for violent harm of the sexual perpetrators, it presents a narrative of prison where those who’ve committed so called victimless crimes are seen as being free from being targets of violence. Prison is a macho sort of wild west where unsavory elements make up for their crimes by using their lack of obligation to societal norms to take care of the dirty work of making these rapists pay appropriately. They atone for their sins and satisfy out blood lust in one fell swoop.

The reality is that prison brings trauma to every prisoner whether they’re their for drug possession, repeated DUI, writing bad checks or murdering their mother. And the reality is, most prisoners are there for something like drug possession or writing bad checks and end up being punished not with time away from their families, home and work, but with assault, both sexual and non. They live in a constant state of fear and hypervigilance. They suffer violence, witness violence and are forced at times, in order to survive, to perpetuate violence. This is something those of us who’ve experience protracted trauma can identify with. This is trauma. This is hell. And no one deserves it. Not even rapists and men who kill their mothers. And certainly not twenty year olds who made a stupid decision and got caught (I speak not here of rich white twenty year olds who make stupid decisions. They don’t go to prison). Their sentence may only be a few years but the PTSD lasts the rest of their life. It is not moral. It does not benefit society. And it deadens all of our souls as a culture for perpetuating this brutal system.

When you call joyfully for anyone to be raped, whether they themselves are a rapist or not, you are promoting rape culture. You are ensuring little girls will go on being raped. I realize it makes *you* feel better and that’s just great because it’s all about you, but you sacrifice the bodies, minds and souls of little girls and boys and women and men.

No one deserves to be raped. Period. Ever.

We do need justice for survivors in this country. I am glad that Bill Cosby and these friars and Jeremy Noyes will be held accountable and it is vital for ending rape and for providing survivors what they need to heal. Prison as we have it in this country, however, is not the answer. When will we establish a humane justice system that truly serves victims and keeps us safe as a society? Until then, rape culture will thrive.

the smell of collard greens and sickness: 38 today

24 Friday Mar 2017

Posted by elizabethspaardo in kids, marriage, my awesome husband, parenting, PTSD, Sin, Uncategorized

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Tags

autism, children, family, love, trauma

Today was the kind of day you question this whole having-5-kids thing. It’s my birthday and I’ve spent it tending 3 sick kids and taking another one to the psychiatrist. We’re talking wall to wall puke and diarrhea. Kids whining and crying. Wailing and gnashing of teeth. And always, always, the cry from all directions: Mom!

That said, 38 is a good birthday. The sun is shining. My husband surprised me with some beautiful flowers (even more a surprise because I ran into him at the store as he was buying them-he thought it ruined the whole thing but I found it more of a unique thrill). Granted, the 16 month old knocked the flowers and the 2 quarts of water they were in on the floor, but still. Clean up efforts of the spill were difficult secondary to every single rag in the house being in the wash, dirty or currently used as a puke reservoir. But still.

I spent my 28th birthday in the midst of my five month long trauma. So, Hell. I spent my 28th birthday in Hell. The great thing about trauma is that it makes puke and diarrhea look pretty damn good.

I took my sick babies for a walk in the double stroller today around our neighborhood on the river. I ate Thai food and vegan cheese cake with a very nice raspberry sauce, made by my hubs. I drank some wine and even convinced my teetolaller hubs to join me. My kids all made me cards (ten minutes before the party once forced to by the hubs) that were very sweet. My hubs spent the day, when not reducing raspberry sauce or walking our daughter to the dollar store for more pink balloons, working on the medical practice we are opening. The best present ever.

And  I got one other very important gift: time to write this.  Luxury living at its finest. I do not know how I could have made it to 38 without writing. It was my escape as an outcast Aspergery tween, was my voice against oppression in high school and beyond, won me scholarships and fellowships that made me feel like maybe I really did belong in academia, inspired lyrics that gave me the drive and the confidence to sing in a punk band in front of hundreds of people despite being completely terrified, got me published in a legit medical journal at a time when I struggled with feeling like I was a *real* doctor. Most importantly, writing got me through the weeks and months directly after Jeremy was arrested. Through the second trauma of my medical school shaming me and trying to ruin my career. And it preserved my memories. A true privilege few trauma survivors have.

This blog helped me recover from my PTSD. It helps me still. The core of PTSD is shame. The only way to battle shame is to speak your truth. More specifically, to have someone hear your truth. And not walk away. It is a small little blog with a small group of followers, and I am grateful for each and every one of you. You are a precious gift to me on this my 38th birthday.

It surprises me how I begin to write these entries with a problem and think to myself “Why are you dwelling on this problem with no solution? Cut the pity party.” And I start to write and by the time I am done, I have found an unexpected solution or a new way of looking at it, or have found a path to accepting it as it is. It makes me wonder if anyone can recover from PTSD without creating something. Trauma is the opposite of creation. It is destruction. It is the Fall in the Garden, the closing of the gate. What is it that Eve suffered for the Fall? Pain in childbirth. Pain in creation. But she did not lose the ability to create new life.

There is a certain pain to my writing now that wasn’t there when I was younger. Before my trauma. Before I had my first little boy and was told he was sick at 6 days old (and on the 7th day God rested. I cried the deepest cry I ever have while God rested. He and I are still hashing that one out). Before. But there is still this gift of the ability to create, as God does. And there is a healing in it. And a connection. Maybe not to God so much, but to other people, other survivors–not just of trauma, but all the sad things we live– to time, tradition, cyclical history. And a connection of ideas, of the points of my life, of the people who’ve passed in and out of it. Maybe, just maybe, if I keep writing, it will all make sense. The connections will be drawn, the pattern will show itself. There will be an answer.

I made a big batch of smoky vegan collard greens today for lunch. I made a lovely kale strawberry smoothie for breakfast. I took my medication. I exercised. The day was still utter chaos. I was still pretty damn grumpy for most of it. But I still ate my greens. I did not resolve my ongoing spiritual struggle over the nature of God (he can’t be all loving and  all powerful, so he mustn’t be all powerful so… where the hell does that leave us?)  But I still ate my greens. I was a highly imperfect mother and wife. But I still ate my greens. I was lonely for a lot of reasons. But I still ate my greens.

And so, the house came to smell of sickness and collard greens on this my 38th birthday. But it was 74 and breezy and so we opened the windows and doors and aired the place out. Took the baby out in the yard barefoot. Walked down to the public dock and watched the water. Hung pink streamers and balloons and had a little party. Watched a cheezy terrorist movie starring Morgan Freeman with my husband with the volume down and made up our own dialogue (lip reading did reveal Mr. Freeman called one of the characters “son” as I predicted he would). Spilled some wine on the couch and laughed about it.

We aired the place out because, as I realized shortly before my 29th birthday, I am not in prison. I am alive and I am free. This is not a cell without windows. The sun is not kept from us. And I am not alone. I am eating my greens and cleaning up the messes as they come. The stuff of life. 38 years alive. Booyah.

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