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40 Days and 40 Nights (or, what doesn’t kill you also makes you more grateful (if you let it).

03 Sunday May 2020

Posted by in Catholicism, christianity, doctors, empathy, kids, love, medicine, parenting, PTSD, Rape, residency, Uncategorized

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We have now had a fever for 42 days. Off and on. Mine had gone away yesterday and I thought, maybe this is it. Maybe this was a fever that lasted 40 days and 40 nights, that started two days before I stopped being 40 years old. And maybe if that’s true, there is a deeper spiritual meaning to it. So, I researched the number 40.

They say 40 in the Bible essentially means, a really long time. It rained for 40 days and 40 nights when Noah was out on the ark. The Israelites wandered in the desert for 40 years. Moses’s life is divided into three 40 year phases. Jesus was tempted by Satan for 40 days. He stayed with the disciples 40 days before ascending to Heaven where he is seated at the right hand of the Father.

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They also say 40 represents a new beginning. It has to do with it being a factor of 5 and 8, and 4 and 10. I will skip over those details. After 40 days, the flood receded and it was a new world. After 40 years the Hebrews were considered to have paid the price for their disobedience and given a new life in the promised land. After 40 days, the Holy Spirit anointed the disciples and they were reborn. In Judaism, the embryo is considered to be formed at 40 days gestation. And a pregnancy lasts 40 weeks.

It also represents water, baptism, mikvah. There is the great flood. In traditional Judaism a woman goes to the mikvah ritual bath for purification 40 days after having a son, 80 days after a daughter. The mikvah is filled with 40 seah of water.

According to the Jewish Talmud, at 40 years old you gain the gift of understanding. You come to begin to fully understand all you’ve been taught.

I have been feeling exhausted lately, burdened. And feeling like I will forever be wandering in the wilderness, the promised land always just slightly out of reach. Time and again telling myself, you just need to get through this phase and then things will get easier. At what point do I admit to myself it’s a lie, that this is as good as it gets? In other words, I have been hopeless and have lost that sense of possibility I’d been so grateful to regain back in 2015 when my PTSD was healed.

My life is better than a lot of people’s and I know this in my head and I know this in my heart. But their suffering did not seem to alleviate mine. I kept telling myself to get over it, but I just couldn’t.

Perhaps it’s the nature of this fever. You feel good for a day or two or three. Really good. And you’re so grateful. You have energy and joy and you can run and get things done and enjoy life. And you think this is it, I’m better. I can get on with my life. And then it comes back.

Perhaps it’s this quarantine grinding us all down. Or the fact I had three people close to me in my life a year ago and now I have none. And I’m in isolation and can’t replace them. I cannot picture my future because none of us can. We do not know what will happen with the economy, with the pandemic, with the election, with the way things are done and the way we relate to one another. And so, how do we have a sense of possibility? There are infinite possibilities and none at all.

And so I looked to the number 40 for hope. If my fever lasted 40 days then maybe there was a divine reason God had allowed it to go on so long. Maybe God had a plan for me. Maybe beyond 40 years and 40 days and nights I would emerge from the wilderness and finally enter the promised land. Purified and born again.

But here I sit on day 42. Maybe sometimes a fever of unknown origin is just a fever of unknown origin.

I had the energy to play with my daughter today. She couldn’t believe it. We ran shuttle runs and played charades and had a jumping competition. I felt great. For now, I’ll take that and be grateful. We’re not promised a damn thing in this life. If I ever return to good physical health and energy I will be grateful in a way I couldn’t have been before. When we emerge from this quarantine and I can be with my patients in my office again, I will be grateful in a way I couldn’t have been before. And when the second forty years of my life are easier than the first (and they will be. I know this much is true), I will be grateful in a way I couldn’t have before.

I hate the saying what doesn’t kill you makes you stronger, even though it’s true. I mean, what a crappy gift: the knowledge now you can make it through something even more awful. But this truth has saved my butt more than once and I put faith in it that my children’s difficulties have done that for them. Because life is hard and the best thing we can do for our kids is prepare them to face whatever it throws at them without falling apart. But what doesn’t kill you also makes you more grateful (if you let it).

I’m grateful for my kids’ fever because at one time their immune systems were so dysregulated, their bodies couldn’t mount a fever response to invading pathogens. I’m grateful every time my 14 year old acts like a jerky teenager because he gets to a live a relatively normal teenage life now instead of being in PANDAS hell. I’m grateful every time I eat a meal without an abusive husband there criticizing what I’m eating or not eating because that was not always the case. I’m grateful to be a doctor, the good and the bad, because it was almost taken from me and I gave literal blood, tears and a piece of my soul (and my cervix) to get through my training. I’m grateful for the sense of possibility because for so many years in PTSD, it wasn’t there as I dwelled in that place between life and death.

So maybe that’s what the promised land really is: gratitude. If we never wandered through the desert for forty years, how could we even know we were in the promised land? Maybe it is not a static place, this promised land. Maybe it can’t be. Maybe it’s an oasis where we replenish ourselves and get a rest before heading out again. We never know how far into the wilderness we will go and for how long, but we know the promised land is always there. Until we reach the end of this life and enter the world without end and find that possibility we have been been seeking once and for all.

Lassoing the Beast

24 Friday Apr 2020

Posted by in christianity, empathy, Evil, kids, love, marriage, medicine, my awesome husband, narcissism, PTSD, Rape, Sin, Uncategorized

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I do not think that I have ever seen a case where the sentencing goal of protection of the public figured more predominantly. Anyone who sat through this trial would realize that this defendant is the worst nightmare of every child’s parent. The entirely credible and overwhelming evidence demonstrated that the defendant is a dangerous predatory sadist…
Hon Sean McLaughlin, sentencing of Jeremy Noyes

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A package arrived today. A hoody. Oh, how I love a good hoody. Is there anything better? Cozy and comfy and flattering on people of all shapes and sizes. Maybe it’s because I grew up crushing on boys with long hair in hoodies and Vans, but hoodies hold a special place in my heart. Back to present day: the hoody that arrived was blazoned with Beast on the Bay. Because I have decided to run the Beast on the Bay again this year.

Regular readers may recall that in 2018, I ran the Beast as part of my ten year anniversary of my trauma. It inspired me to get into shape and do something that felt impossible. It also happened to be in Erie, where my trauma occurred and is sponsored by my old med school, who made the trauma significantly worse. I was not able to run the race in 2019 because the previous summer, in the best shape of my life, I had suddenly developed a mysterious autoimmune neurologic disorder a week before I was to run a different obstacle course race, the Spartan. Now, within this surreal time of quarantine, I’ve decided to do it again this September (if it’s not cancelled).

I had come to some new revelations on Easter Sunday. Not regarding God or Armageddon or resurrection. Regarding my immune system.

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In order for me to explain, let’s rewind to June 2019.

I’d been in training for 14 months and was in peak form. My body fat percentage was its lowest ever. I could run a 9 minute mile. I was pumping out burpees like a champ. I felt amazing. On Sunday, my husband I went to a local Crossfit gym to do a class and practice rope climbing. I’d never climbed a rope in my life. I never even tried in gym class as a kid because I was convinced I couldn’t do it and would just embarrass myself. I knew I needed to climb one for the race coming up the following Saturday so we went and the owners gave me some tips and I did it! I was so damn proud of myself.

The next morning I woke up and felt sick: I was exhausted, my muscles ached and felt weak. It wasn’t the way I felt after a really brutal workout. It was the way I felt when I had the flu. I decided I better give into it and rest as much as possible but I’d been planning on working out leading up until a couple days before the race. I needed to get better quick, though , so I cancelled the workouts. By the time Friday came, I was still exhausted and I knew I needed to cancel the race. I was heartbroken. I’d worked so hard and it meant a lot to me. It was odd I was still feeling just as bad six days in, so on Saturday instead of going to the race, I went to Quest to get some bloodwork drawn.

Over the next few months I saw neurologists and rheumatologists. I had bloodwork, MRIs, EMGs, and EEGs. I began to piece together symptoms I’d been having in the months leading up to my exhaustion. Blistering on my lips I’d assumed were cold sores (they weren’t). Neuropathy in my arms and legs after showering. A tightening of my rib muscles during a run. At one point, my calves swelled and hardened during a run, forcing me to stop. My fine motor skills were off and I was having more of the involuntary muscle movements I’d gotten for years. I was losing my balance more often too.

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None of the doctors ever arrived at a diagnosis and I was told to deal with it and be grateful it wasn’t something bad. I wasn’t. How could we know if it would get really bad or not if we didn’t know what it was? I had plenty of patients in the same boat. Vague autoimmune symptoms and slightly off labs but no clear clinical picture of a known disorder. They often found their way to my doorstep looking for help from medical marijuana (Which is smart because it helps both the symptoms and has immune modulating effect which can help longterm outcomes). I was now one of them.

I tried changing to a plant based ketogenic diet but it only seemed to make it worse (and was unpleasant as hell to eat). I tried forcing myself to exercise but it made it worse too. I would have a few days where I felt pretty good, but the symptoms always returned. That is, until November.

In late November, my husband moved out. Our marriage ended. And so did my symptoms. I hadn’t been expecting such a dramatic reaction on the part of my body, but there it was. Fatigue, pain, weakness, skin blistering, muscle jerking, neuropathy. Gone. My toxic marriage had been killing me. My body was sending me one last desperate message before it gave up the fight. And it worked.

What can make you more grateful for the movement of your body than losing it?

There has been a lot going on in my life since then. Divorce, buying a new house and moving in less than two weeks before Christmas, and the in and out of court of a high conflict divorce and custody battle. Finally as February came to a close I felt like things had settled down and I was ready to start working out again and go on a diet to shed the weight I’d gained since June. It went well for a couple weeks and then buh buh buh, quarantine! And it all went to pot. Like it did for all of you.

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No more daycare. No more school. Time to homeschool 3 kids and take care of a preschooler. And now you have to take your medical practice and completely restructure it because you can’t do office visits anymore. And no one can help you because it’s a freaking quarantine. And did I mention the high conflict divorce I’m in? Yeah, those don’t improve with quarantine either.

And then we got sick. March 22nd, my four year old and I woke up with a fever, sore throat and cough. Exhausted, body aches, chills, no appetite. Then the other three kids got it. We didn’t qualify for COVID testing so I put us into complete isolation (actually considerably worse than regular quarantine life, believe it or not) and waited for it to pass. But it didn’t. The fever would sometimes for 24 or even 72 hours, but it always came back. We’re now on Day 33. I eventually coerced an urgent care into giving me a test despite not meeting criteria on Day 24 when our fevers went up higher than ever. The test came back negative but they told me false negatives were common and I should consider getting tested again. I consulted with my mentor, the best doctor I know. He said he thought it was COVID and a false negative. I agreed.

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If you consider the other things in the differential diagnosis (cancer, rheumatoid arthritis, Epstein Barr virus, CMV, Lyme disease), none of them made as much sense as COVID.

And so, here we sit in isolation. Now, back to the Beast. I was in a lull of symptoms two weeks ago on Easter Sunday. I was sitting watching a local church service on my big screen TV while my kids ate their candy and watched their iPads, and a verse struck me.

A good man brings good things out of the good stored up in his heart, and an evil man brings evil things out of the evil stored up in his heart. For out of the abundance of the heart the mouth speaks.

And I realized my husband had ruined my relationship with God. Because that’s what abusive people do. They isolate you. From friends and family and, sometimes, if they’re really good at it, God. I realized how far from God I’d gotten, and how I couldn’t separate God from my husband and the harm he does. And I realized it was now time to stop. And I said hello to God again.

I realized something else that night as I stayed up late journaling about all my newfound epiphanies. I was ready to get in shape and lose weight again. But I needed something to focus on, a race. I thought of the Beast. But when I thought of it, my stomach dropped. I realized the thought of running it alone, without my husband, scared me. That I felt like his ghost would be haunting me the entire time. And most things that scare you, are the things most worth doing. And then it occurred to me. The timing of the onset of my autoimmune issues. I’ve always noted the cruel irony of it beginning right as I was to run an obstacle course race even harder than the Beast, that I’d trained for for so long. Right at my physical peak. My husband was going to run the Spartan with me just like he’d run the Beast with me. He jumped on the Beast wagontrain late in the game. He said he didn’t think I’d actually train and go through with it so he waited. Like it was such a big freaking honor to have him run it. He took something that was mine and made it his. He was jealous. And he was going to take the Spartan from me too. He had spent years complaining I was fat and had a flat butt but when I got in shape, he was so damn jealous, he did everything he could to undermine me. And he couldn’t let me have the Beast, my moment. I didn’t finish high in the Beast, mind you. I couldn’t do about a third of the obstacles. But I finished. And I was so damn proud. He acted proud too: proud of us, proud of his wife, of himself. His wife, not me. His possession that reflects on him. That was what he showed the world. A few weeks after we finished it, I put a “I Beat the Beast” bumper sticker on my car and he looked at it and said “You didn’t beat the beast. You didn’t finish all the obstacles.” And that, ladies and gentlemen, is what he shows his family. For out the abundance of the heart the mouth speaks. I stood up to him and told him I had finished and tried all the obstacles and that was a big accomplishment for me. He gave me a shitty look and walked off.

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He took the Beast from me and my body wasn’t going to let him take the Spartan. Maybe that’s why it shut down. Maybe my heart called up my immune system and said, if he does it to her one more time I’m going to break. And my immune system said, ok, time for the Hail Mary. We will throw the switch and shut the whole plant down and give her some time to sit and think. And if she won’t walk away, we’ll leave her there sitting. And if she does, she’ll run it for her. And my heart blew my immune system a kiss and my immune system blushed. Maybe. Maybe it was a gift from my body.

So, I signed up for the Beast. And ordered a hoody. And the next day fruits and vegetable and water became a thing again at our house. Planning and cooking dinners because a nightly thing. And working out resumed for me and my kids too. Life was good. I was triumphant!

But then life happened. Our fever has taken up residence and work and homeschooling are getting harder instead of easier. Yada yada yada. I’m back down for the count. But I’m not cancelling the Beast. I am running it, come hell or high water or fever or economic collapse. Even if it takes me ten hours, I’m running it.

I cried a good bit during the Beast the last time I ran it. Cried for what Jeremy did to me, for what my school did to me, for what their mom having PTSD took from my kids, for all the other survivors I know who will never see justice like I did. I imagine I will cry this time too, for a whole other set of reasons.

My high conflict divorce has been nastier than ever this past week. We may soon go before the judge via teleconference (ya know, quarantine) and I am scared my husband will convince the judge he’s the guy out there bragging about his wife running the Beast, instead of who he really is, the guy denigrating his wife when she dared to be proud of herself. But this is not my first rodeo, dear reader. I have sat in court with a man who accused me of lies before and I have spoken the truth and justice prevailed. I will lasso the Beast again this time. And I will put on my hoody and take a run and thank my heart for being so damn good to me.

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America we’ve given you all and that’s not nothing (or Narcissus needs a drink)

11 Wednesday Mar 2020

Posted by in empathy, Evil, love, medicine, narcissism, Uncategorized

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America
I’m addressing you.
Are you going to let your emotional life be run by Time Magazine?
I’m obsessed by Time Magazine.
I read it every week.
Its cover stares at me every time I slink past the corner candystore.
I read it in the basement of the Berkeley Public Library.
It’s always telling me about responsibility. Businessmen are serious. Movie producers are serious. Everybody’s serious but me.
It occurs to me that I am America.
I am talking to myself again.
*
*
*

I have spent a lot of time reading about narcissism lately. I have my reasons I won’t go into here. An unexpected outcome of this research is the realization almost every politician in the Democratic primary is above average on the naricissim spectrum, some just as high as Trump. One in particular. The one who had to drop his bid in 1988 because he was exposed as a pathological liar and plagiarist. The one whose toxic masculinity led him to challenge someone to a fist fight recently. The one who has assured the billionaires “nothing will change.” And a relationship with a narcissist, my dear reader, only ends one of two ways: you wake up and leave or they suck the life out of you. The Democratic electorate has chosen the latter. It is narcissist versus narcissist in 2020 (it has been before, to be fair) . We will all lose no matter which one wins. If Biden wins, we are left with an America still under the conditions that created Trump and we will either get another Trump or …. Trump. Do you really think leaving the White House will make Trump go away? He has created a movement and they will follow him where he leads. The presidency,  my dear reader, may become significantly less relevant. The question is, will the movement Bernie is driving remain intact to counter it?

 

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I think of the people most affected by all this and I cry. My addiction patients in rural Pennsylvania, their children. They don’t even realize just how different much of America is living. And most of America doesn’t realize how they’re living. If they did, I’d like to think things would be different. But narcissists are very good at gaslighting and projecting and lying. Lying especially. Lots of lying. And if you’re a decent, feeling, empathetic human being, it is hard to resist. It is hard for for you to conceive that such a person could exist. Someone with no empathy and no remorse. Entirely self serving with nothing to limit what they’ll do to get it. Try to imagine. It should scare you. Terrify you.

I believe most Americans are decent people trying to get by in the face of a lot of hardship. I see it in my office everyday. Not just my most vulnerable patients, my middle class medical marijuana patients too. The cop with PTSD who had to retire because of it and now has no insurance or income to pay for the therapy he so badly needs. The single mom of an adult son with autism, trying to get services that aren’t there, trapped in her house. Chronic pain patients that were abruptly kicked off their pain meds once doctors started facing consequences for over-prescribing, not offered any help for withdrawal or to manage their pain. And I see the upper middle class patients who benefit from the system but have so much anxiety and depression, the money does them no good. And still they hold onto it tightly, unwilling to see letting some of it go would not only save so many struggling; it would save them too.

Greed is an illness. An ugly dark emptiness that cannot be filled and will not stop making you hunger for more. Like any addiction. Are the heads of the pharmaceutical companieds just projecting then? Turning so many into addicts so they can see themselves? And Trump, who will never have enough cheering angry supporters or enough money. He pulls the worst from us, feeding off negative emotions and chaos as narcissists do. Projecting onto America the darkness inside of him.

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I do not mean for this post to sadden you or leave you feeling hopeless. Indeed, that is exactly what a narcissist wants. I want you to see that once you know you’re dealing with a narcissist, you begin your steps towards recovery. Leaving is not easy. They will try to suck you back in. They will love bomb you, bring you flowers and tell you how wonderful you are. But if you stay strong, it gets easier in time. And the best part? The thing narcissists hate most is someone who heals and is happy and strong. Our revenge would be a healthcare system that takes care of us, universal childcare, a Green New Deal, a living wage, an end to mass incarceration. Our revenge would be joy. Like an army of Care Bears shooting out beams of love and kindness and hope from our chests. They would keep trying, but with no one to reflect their image back to them, narcissists wither. Like Narcissist himself, when the reflecting pool they’re so addicted to dries up, so do they. And we, America, will have won.

***

America, by Allen Ginsburg

America I’ve given you all and now I’m nothing.
America two dollars and twentyseven cents January 17, 1956.
I can’t stand my own mind.
America when will we end the human war?
Go fuck yourself with your atom bomb.
I don’t feel good don’t bother me.
I won’t write my poem till I’m in my right mind.
America when will you be angelic?
When will you take off your clothes?
When will you look at yourself through the grave?
When will you be worthy of your million Trotskyites?
America why are your libraries full of tears?
America when will you send your eggs to India?
I’m sick of your insane demands.
When can I go into the supermarket and buy what I need with my good looks?
America after all it is you and I who are perfect not the next world.
Your machinery is too much for me.
You made me want to be a saint.
There must be some other way to settle this argument.
Burroughs is in Tangiers I don’t think he’ll come back it’s sinister.
Are you being sinister or is this some form of practical joke?
I’m trying to come to the point.
I refuse to give up my obsession.
America stop pushing I know what I’m doing.
America the plum blossoms are falling.
I haven’t read the newspapers for months, everyday somebody goes on trial for murder.
America I feel sentimental about the Wobblies.
America I used to be a communist when I was a kid I’m not sorry.
I smoke marijuana every chance I get.
I sit in my house for days on end and stare at the roses in the closet.
When I go to Chinatown I get drunk and never get laid.
My mind is made up there’s going to be trouble.
You should have seen me reading Marx.
My psychoanalyst thinks I’m perfectly right.
I won’t say the Lord’s Prayer.
I have mystical visions and cosmic vibrations.
America I still haven’t told you what you did to Uncle Max after he came over from Russia.
I’m addressing you.
Are you going to let your emotional life be run by Time Magazine?
I’m obsessed by Time Magazine.
I read it every week.
Its cover stares at me every time I slink past the corner candystore.
I read it in the basement of the Berkeley Public Library.
It’s always telling me about responsibility. Businessmen are serious. Movie producers are serious. Everybody’s serious but me.
It occurs to me that I am America.
I am talking to myself again.
Asia is rising against me.
I haven’t got a chinaman’s chance.
I’d better consider my national resources.
My national resources consist of two joints of marijuana millions of genitals an unpublishable private literature that jetplanes 1400 miles an hour and twentyfive-thousand mental institutions.
I say nothing about my prisons nor the millions of underprivileged who live in my flowerpots under the light of five hundred suns.
I have abolished the whorehouses of France, Tangiers is the next to go.
My ambition is to be President despite the fact that I’m a Catholic.
America how can I write a holy litany in your silly mood?
I will continue like Henry Ford my strophes are as individual as his automobiles more so they’re all different sexes.
America I will sell you strophes $2500 apiece $500 down on your old strophe
America free Tom Mooney
America save the Spanish Loyalists
America Sacco & Vanzetti must not die
America I am the Scottsboro boys.
America when I was seven momma took me to Communist Cell meetings they sold us garbanzos a handful per ticket a ticket costs a nickel and the speeches were free everybody was angelic and sentimental about the workers it was all so sincere you have no idea what a good thing the party was in 1835 Scott Nearing was a grand old man a real mensch Mother Bloor the Silk-strikers’ Ewig-Weibliche made me cry I once saw the Yiddish orator Israel Amter plain. Everybody must have been a spy.
America you don’t really want to go to war.
America its them bad Russians.
Them Russians them Russians and them Chinamen. And them Russians.
The Russia wants to eat us alive. The Russia’s power mad. She wants to take our cars from out our garages.
Her wants to grab Chicago. Her needs a Red Reader’s Digest. Her wants our auto plants in Siberia. Him big bureaucracy running our fillingstations.
That no good. Ugh. Him make Indians learn read. Him need big black niggers. Hah. Her make us all work sixteen hours a day. Help.
America this is quite serious.
America this is the impression I get from looking in the television set.
America is this correct?
I’d better get right down to the job.
It’s true I don’t want to join the Army or turn lathes in precision parts factories, I’m nearsighted and psychopathic anyway.
America I’m putting my queer shoulder to the wheel.
Berkeley, January 17, 1956

That’s me in the corner, that’s me in the spotlight (or, the fault in our star)

03 Tuesday Mar 2020

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losing my religion:  southern term for losing one’s temper, “flying off the handle,” going insane  etc. Note that the R.E.M. song of this title has nothing to do with religion, despite the common misinterpretation of the phrase.

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up

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I don’t remember which one became my patient first. I think it was Him. But it could have been Her. He was initially more memorable. He liked to show me pictures. Of his woodworking and antiques he’d restored. Of his boys. Of the squirrels they’d killed that year. I asked him not to show me the squirrels but he did anyway. She was quiet. Told me about the jewelry she made and the things she grew in her garden and foraged for in the forest. I do remember the day I realized they were a couple. That he was the he she talked about and she was the she he talked about. The “Ohhhhh” moment. The “oh wait, she’s *that* She and he’s *that* He!” It happens a lot in my rural practice. Six degrees of separation is not a thing in rural northwest Pennsylvania. It’s more like two.
*
They started coming to their appointments together eventually. They would tell me about their garden and their yard and the retaining wall they were battling to put up. And they would tell me about things addiction patients in rural northwest Pennsylvania tell you about. Meth and heroin and jail and stealing from the people you love and five year old kids calling 911 when their mom overdoses. They’d both been clean a long time, but everyone had relatives and friends still lost in it. They were no exception.
*
They gave me things. A piece of amethyst they’d hunted and extracted themselves. A small glass vase with a flower from her garden. She gave me gardening tips, foraging tips, taught me some herbalism.
*
They were always late. Always. That was a given. And that was okay. As long as they came. Sometimes they mixed up their days and we’d get a call a couple days later and fit them in the schedule for another day. I always held my breath until they called. Because you never know. You never really know if something didn’t happen and if they’re really all right.
*
And so it happened that they came in a week or so after their appointment in early February. I wasn’t at my office in northwest PA so they came to my office in Verona. Sam got to meet them for the first time. They got to see my other office, which is fairy tale themed. I knew she’d like it.
*
She wasn’t herself that day, though. She was sad. So damn sad. He had to talk for her for most of the appointment because she couldn’t stop crying. She’d been depressed. But it was more than that. She’d been having pain in her side a while now and it was getting worse. She’d gone to the ER and they’d drawn blood work which came back with an abnormality but when they tried to get an IV in so they could run some imaging tests, the nurse couldn’t get it. They kept poking her over and over and she ended up leaving the ER.
*
I asked her some questions to see if I thought she needed to go to the ER right now (it had been a couple days since leaving the ER and she hadn’t gone back yet). Based on her answers I told her I didn’t think it was an emergency but she needed to go back and get the test done. I said maybe she could try going to a different ER where the nurses were better. We talked about her depression and I started her on an antidepressant and told her to email me in a couple weeks to let me know if it seemed to be helping at all so we could work on the dosing.
*
I had a crystal sitting there. Malachite. A pretty dark green stone. I’d been feeling for a couple of days I was supposed to do something with it. An odd feeling kind of hard to describe. Like, restlessness. But with a stone. And before she left I took it and said, here, I want you to have this. And she told me she had something for me too. It was a necklace she’d made but she’d felt timid about giving it to me. But when I gave her the crystal, she said, she felt okay to give me the necklace.
*
He said, (or maybe she said?) that it was fitting because it had a star on it and pointed to my walls. The room we were in has a Sleeping Beauty theme and is covered in stars. (It is based off something I wrote about kids with PANDAS battling the disorder and emerging from it, like sleeping beauties waking up). I took it and told her I loved it. And I did. When I went to put it on, the chain broke, so I put it in my pocket. My back jeans pocket. And we walked out together and said our goodbyes. And Sam said they were sweet and I said I was worried about her. And I was.
*
Somewhere between there and my kitchen, I lost it. The necklace, that is. I realized it later that night and told myself, it’s here somewhere. It’s not gone. It hasn’t fallen off planet Earth. You’ll find it (this is the same thing I say to my children when they are panicking over something they’ve lost. I find it is helpful to give myself the same talks I give them pretty often). I looked a couple places I thought it must be (the cubby over my coat hook by the front door, the back pocket of those jeans I’d since thrown in the hamper) but it wasn’t. Over the next few days I looked a few other places and it wasn’t there either. I tried to remain calm.
*
Then a week later I found it. I was trying to dig a quarter out of my left coat pocket for a cashier, in line ahead of a grumpy resentful old man in the Giant Eagle “12 Items or Fewer” lane and I pulled it out instead. I was relieved. He didn’t care. At all.
*
I went to coffee with a friend that morning (please note: this is a rare occurrence) and stopped in at the crystal shop across the street (please note: this is not a rare occurrence). It had been quite a while since I’d received that amethyst. A lot had changed. And I now frequented the local crystal shop (thus, the malachite). I was browsing on this particular day and saw a necklace with a stone in it that looked like the one my patient had given me. I excitedly drew the necklace from my left pocket and held it up side by side to the other and they were an exact match. I told the women in the shop the story of the necklace and asked what the crystal was. They told me and I asked if I could take the little card that had the name of it and its meaning and they said yes. And they said how sweet it was my patient had made me a necklace. And I said, yes she’s very sweet.
*
The next day I was answering the phone (Sam was out of town and I was like a dad on a laundry detergent commercial, drowning in ineptness with a lost look on my face, trying to perform basic office functions). I was relieved when a familiar voice spoke back to me. It was him. And then it happened. One of those moments. One of those moments that create a Before and After in your life. He told me she had cancer. One of the really bad ones. There’s no such thing as a good cancer. But there are such things as really bad ones. That’s what she had. I stopped breathing for a few seconds. Parastalsis slowed. I got goosebumps (the medical term for that is piloerection. It’s the same thing that makes a porcupine’s quills stand up when it sees a predator. It’s supposed to make us look bigger and scarier, in theory. It does not, in practice). In my head I thought, “Fuuuuuuuuccccckkkkk.” I did not say this to him. I asked how she was. I asked him a series of questions trying to get more medical type details. I tried to get him to say something that would make me realize he’d gotten it wrong and it wasn’t actually cancer. It didn’t work. He said she was resting but I should call her later. I said I would. Even though I was scared to. Because there’s nothing really great you can say. Because you’re a doctor and you’re supposed to fix people and this is not something you can fix.
*
Her palliative care doctor called a little while later while I was on the other line with someone considering making a medical marijuana appointment for anxiety. They had a hundred questions and, in the end, said they’d call back once they decided what to do. I listened to his voicemail and frantically wrote down his number and called him right back. He was nice. God help me, he was a genuinely nice, caring doctor. If you knew doctors like I know doctors, the way they actually talk when there aren’t patients around, you’d know how rare a thing that is. He hadn’t seen her yet (the appointment was for the next day) but he wanted to touch base with me since I prescribe her a controlled substance and his role was pain management (also prescribed substances).
*
When I talked to her that night (well, to her voicemail), I let her know the pain doc was good people and would take good care of her. And he did. We have texted and talked since then, each step along the way, She and I. He and I. And even the palliative doc and I. There is more to it than this, various details you might not expect. But the heart of it is this: a really beautiful human being is sick with something she likely won’t survive. She is in a lot of pain. And the man who loves her is doing an amazing job supporting her through it. He is an unlikely romantic hero. Not a sappy, trite one. A genuine romantic hero. And she is a warrior. Strong and smart and intuitive and kind and creative and honest. And she is so damn young. Too damn young for this shit.
*
And so it was that I came to wear a star necklace everyday (I ordered a new chain for it the day he called with the news. I kept it in my pocket until the chain arrived). And so it was that I came to wear that necklace the night I ran into a good Christian I know.
*
The Good Christian looked at it in horror. Genuine fear in his eyes. And he said, “Have you lost Jesus?” He was distressed. I looked at him and said, “What?” And he pointed to my necklace and said it was a witch’s necklace, a Wiccan necklace. I said, it’s a star. A patient made it for me. That doesn’t mean I’ve lost Jesus. He looked… freaked the hell out.
*
And I thought of the word the palliative care doctor had used when he told me about her CT scan. Innumerable mets. Meaning, the cancer had spread to so many spots, the radiologist gave up counting. I remember when he told me that I wondered, at what point do they stop counting? 10, 20, 100? Maybe that particular radiologist was lazy and she really only has 3. But that’s not likely. When he used that word, innumerable, the hope I’d held out faded away. And I began to focus on how we could all support her in finding peace and being comfortable and doing the things with her last months she’d like to do. Because, lets be honest, doctors very rarely actually fix patients anyway. So maybe this very nice palliative care doctor and I could help her with these things. Hopefully I could be of use.
*
I thought of that word, innumerable. And I thought of the cancer growing inside her. And about how brave she is. And how sweet her he is. And I looked at this Good Christian and saw something in him. A different kind of cancer. One with innumerable mets to the soul. Dark and sticky. Inoperable. Incurable.
*
And I thought, this patient knows more about Jesus than you ever will. Because Jesus is love. And she is full of love. And she has brought joy and love to so many people. And she will keep doing that. Despite it all. She will keep inspiring other people to love. And she knows that I love her. And she lets me love her. And loves me back.
*
And that, dear reader, is not something the Good Christian is capable of. Not something he even understands. And that is why a necklace can inspire a look of dread and disgust in him. A star. An innocent little star.
*
I told my kids a bedtime story tonight. The boy in the story was looking up at the night sky when a shooting star appeared. My daughter got so excited and was urgently shouting “make a wish quick! Before it’s gone!” She was nervous the boy in the story would miss it. Because everyone knows if you make a wish on a shooting star, it comes true. Because that is what stars are for. To wish upon, to make our dreams come true as we sleep beneath their lovely glow. They’re magical. And shooting stars? They’re actually little burning meteors,  magical, glowing rocks. Kind of like amethyst or malachite.
*
If taking comfort in that means I’ve lost Jesus, dear reader, then consider me lost. Because not every sleeping beauty wakes back up at the end of the story. Sometimes her true love kisses her goodnight one last time. And releases her to shine down on us and remind us of who we are, innumerable stars in an endless universe connected to one another always.

 

***

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
Every whisper
Of every waking hour
I’m choosing my confessions
Trying to keep an eye on you
Like a hurt lost and blinded fool, fool
Oh no, I’ve said too much
I set it up
Consider this
Consider this
The hint of the century
Consider this
The slip that brought me
To my knees failed
What if all these fantasies
Come flailing around
Now I’ve said too much
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
That was just a dream
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
Try, cry
Why try?
That was just a dream, just a dream, just a dream
Dream

June 19, 2008 (or, Tequila!)

19 Tuesday Jun 2018

Posted by in kids, love, marriage, medicine, my awesome husband, PTSD, Rape, Uncategorized

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It was raining this morning as I headed out for my run. Ten years ago on this day, though, it was hot and sunny. I know this because I can remember the beads of sweat rolling down the back of my legs as I sat in my green minivan in that long, heavy, black Land’s End skirt I’d bought on clearance a few weeks before. My air conditioner was broken and the van churned out warm air as I sat staring down at my phone.

I’d programmed the phone number for the Pittsburgh field office of the FBI into it a couple months before under the name “Hope.” It was finally time to call. I knew he might kill me. Knew he might kill my two boys. Mies had just turned 4. Max was 2 1/2. I asked God to please protect them but told Him if something happened to them, I knew it just was what it had to be. I had to turn him in. I could never face my babies again if I didn’t. I didn’t want them to live in that kind of world. Abraham, I am feeling you, brother.

I operated purely through adrenaline at that time. Until he was arrested in August. And released on bail to a local podiatrist. And jailed again since he, ya know, had threatened to kill me and my kids and all. And then as I fought to stay in school as my med school slut shamed me and tried to get rid of me. Once the adrenaline stopped flowing continuously later that Fall, the real hell began. PTSD.

I wanted to give up but I somehow got to a place where I told myself, this isn’t it. Someday things will get better. You will watch your babies grow up. You will become a doctor and take care of your patients. You might even get married and have more babies. Maybe a daughter. Maybe. I fought off the hopelessness. I convinced myself there was possibility.

Here I am ten years later. With five beautiful kids (including a sassy-sweet daughter). With a handsome, devoted husband. With a practice of my own, complete with amazing patients I care about more than I knew I could. Healed of my PTSD. Having forgiven Jeremy and even Sylvia, the head of my med school, and all those professors who betrayed me. Training for a semi-impossible obstacle course race with my husband and a trainer, for goodness sake. A trainer. More than I dreamed possible.

I am so grateful to God my babies are alive. That I am alive. That I am a doctor. That I have the husband and kids I do.

I skipped work today and drove through the country to Deer Lakes park to go running. The rain and grey gave way to fluffy white clouds and sunshine in a beautiful blue sky. I held my hand out the sunroof as I drove. I felt the sweat run down my legs from my run as I drove.I sang along to Tequila! like a fool. I’m sure I looked and sounded ridiculous.

I pray the little girls he hurt find the peace I have. I pray he does too.

I am so grateful for today. I am alive, I am free. Thank you God.

Tequila!

No Fear in (I) Love (New York)–or, Our Lady of Perpetual Selfies

12 Monday Mar 2018

Posted by in Catholicism, love, New York City, romance

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I got to go to New York this week. I love New York. Well, to visit anyway. Wasn’t so crazy about living there in grad school, but glad I did it. I feel very comfortable getting around the city when I visit now. And it stirs up a lot of happy memories.

I planned my trip carefully. There wasn’t much free time outside the conference I was there for, but I made the most of it. I went straight to Chinatown from Penn Station when my train got in. wonton garden. Go there the next time you’re in New York. Damn good Chinese comfort food.

I bought some Asian pears from a fruit stand on the sidewalk on my way there like I used to when I lived there. I took in the energy of the city. Whether you love New York or hate it, you have to admit it has a life to it that you feel in your cells.

I went to the top of Rockefeller Center before I left. I was the first one in line actually so I stood on top of New York by myself for a moment. I’m not one for views to be honest with you. it drives my poor husband crazy sometimes. He’s big on views. We used to go on hikes and get to the top of a big hill or a small mountain and he’d say, “Look at that view!” He couldn’t believe how underwhelmed I was. Guess I’m not a visual person.

I looked at the city below me and took pictures. Got some panoramic shots for my son Max. He’s a big fan of panoramic pictures. Guess he is a visual person.

I was hoping, quite cliché-ly, that going up there would help give me some perspective on my life.

I’ve been exhausted and overwhelmed lately, Taking in the suffering of addiction and PANDAS patients is draining sometimes. A lot of my patients have been having especially bad weeks lately.

And so has Max.

Sometimes it feels impossible. Like I’m living the Book of Job. I’m sure we all feel that way sometimes. Most of us anyway. Just one difficulty on top of another. Enough already.

It helped to get away from Verona, to spend time with a group of entirely new people, to spend some time alone too. Some calm and stillness.

Standing on top of New York wasn’t especially helpful though. Not my thing. Mountains, buildings, planes. Views don’t do it for me.

I stopped at a French bakery to get my sweetie some sweets and then on to my last stop before catching the train home. Back to reality.

I went to St. Patrick’s. St. Patrick’s is where I found God 15 years ago when I was 23. It wasn’t intentional. I went as a tourist, but from the moment I entered, it hit me. And I’ve never been the same.

I walked in now, 15 years and what feels like a few lifetimes later. I decided to pray by the statue dedicated to the Holy Family. Our family has not had peace for so long. We need peace so desperately in our house. I put my candle offering in and went to light my candle, to carry my prayers up to Heaven long after I’d left the Cathedral and headed home. But a tourist using a selfie stick and her phone to take pictures pushed me out of the way so she could extend her selfie stick over the candle and get a good shot of the statue. Really? Do you get at least a few minutes in Purgatory for that? I of course instantly forgave her and moved over to the candles on the other side and said my prayers and left my offering. I prayed for peace.

I then went to my favorite place in St. Patrick’s, the painting of Our Lady of Guadalupe. An area generally occupied by immigrants from various parts of Latin America. And me. She’s the only vision of Mary ever to appear where Mary is pregnant. So very… motherly.

Mary’s a mom so I know she gets me. So I let it all out. Told her everything while tears streamed down my cheeks and tourists walked by. I asked her for some rather specific answers, not expecting an immediate reply, but Mary’s an awesome mom and got right down to it.

Insight into who I am and how to treat my children and my patients. And insight into what is really at the heart of these things that trouble us all.

I feel renewed. Centered. In terms of my family and my medical practice. I have been living fearfully but there is no fear in love. I have not wanted to take care of myself, to be happy, because it seems selfish to take care of myself when my baby can’t, when so many of my patients and their families can’t.

It’s not a sustainable way to live. And it’s not good for my patients or my kids. I have known this intellectually for a long time. But it was always in my head, an idea unrealized, without form.

In the Catholic Church we are sensual. Protestants have formless ideas, a weekly service with a sermon that nourishes the mind. But Christ was both fully Man and fully God. We are physical creatures in this world. And so we have sacraments and incense and statues. Monks chanting and and holy water and the body and blood of Christ physically within us.

It is this smelling, hearing, tasting, touching, seeing that evokes the presence of God in us. Physical creatures seeking to know something so hard to grasp. I got up from the kneeler and looked at Our Lady one last time. I looked up at the great stone arches high above me. Took in the stained glass images of Christ and the Saints. And I felt so… protected, content, loved. Like I was home. The way a perfect home would be. What home should be. Peaceful and warm. A place you can be completely vulnerable and know you will be safe.

I realize something now. It is not that I’m not a visual person or I don’t like views. It’s that I like to look up instead of looking down. Not to see myself high above the small world below but to see the vastness of it all above and feel how small I really am. Part of something much bigger. Something very good.

No fear in love.

Fish oil and marshmallow foldovers will be served at our Gala banquet

10 Saturday Feb 2018

Posted by in autism, PTSD, Rape, special needs, Uncategorized

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I had fish oil the other day for the first time in a decade. I’d bought an especially high quality one called OmegaCure for my two littlest ones who can’t swallow pills and was excited when it arrived. It is flavorless according to what I’d heard from my sources and I was hopeful I could get it past them. I made them each a peanut butter and marshmallow foldover and put a glug in between the peanut butter and mini marshmallows. They gobbled it right up. Now, marshamllows are such a treat for them it’s possible I could have put just about anything in there and they’d still have inhaled it. But I was pretty confident it was due to the true flavorlessness of the oil. The next morning I opened the fridge to get some berries out for my morning smoothie and the beautiful glass bottle of golden oil was there shimmering at me. I thought, why not put a tablespoon in my smoothie? And I did. And I drank it. I ran into the laundry room and excitedly told my husband the news.

“I had fish oil!”

Silence

“I had fish oil! For the first time since 2008!”

Silence

More laundry folding

“Ya know?”

Silence. Folding,

“Since Jeremy. I couldn’t take it because of the trauma…”

“Ok good.”

Clearly not something that broke his usual daily laundry folding routine

For me, it’s a big deal. For me, the question “why not put a tablespoon in my smoothie,” has a lot of answers.

The first time I asked that question and ended up vomiting was in 2012. I was pregnant with my daughter Lena and knew I should be taking fish oil heavy in DHA for brain development. It was even more important for me than a lot of moms because I already had a son with autism and malformation of his brain and optic nerves which meant any baby I carried was at higher risk for having issues and needed the best possible start, including fish oil, folic acid and vitamin D. I managed the vitamins fine but the fish oil did me in. When my husband asked me why I wasn’t taking the fish oil capsules he’d gotten me, I had to admit to myself I wasn’t throwing them up because I was pregnant. It was because of *him*. Jeremy. The Ordeal.

No big story attached to it. Jeremy made me take fish oil capsules daily, amongst his other weirdities. Some people are health nuts. He was a health sociopath.

I’ve attempted fish oil a few times since then and it was always a No Go. Couldn’t bring myself to swallow them. The one time I forced myself to swallow them and keep them down, the resultant fishy burps sent me into a daylong relapsing remitting flashback. From that point on, I decided I was going to concede the battle for fish oil. We lose certain things to trauma. It just is. You have to fight to save the things that really matter but you have to learn to let go of the things you can afford to. Lose the battle, win the war. And all that.

But as I stood peering into my fridge this week, that fish oil looked so lovely. (Like nectar collected by little hummingbirds and their magical fairy friends. I’m not kidding. See for yourself, it’s gorgeous.)And I know my kids need me healthy. And so, I figured, why not? What’s the worse that could happen? A day of fishy burp induced flashbacks again? I’ll live.

No fish burps and no flashbacks. It was a little hard to get myself to drink it, I admit. I’ve never been so afraid of a smoothie. But my two littles were sitting there with me at the table watching and I knew I had to play it cool. So down the hatch it went. And stayed.

2018 is a big year as far as my trauma goes. A decade since the trauma started, since I turned him in, since his arrest, since my school initiated their illegal persecution of me for my decision to turn him in, since I got the school’s suspension overturned, since the PTSD began.

It’s not a sad thing. It’s a triumphant thing, I’ve decided to call it my Gala Year. The resumption of fish oil is just the beginning. There’s going to be a whole calendar full of activities commemorating the events, remembering the heroes and making sure it doesn’t happen again.

I was looking for a race to run today. Now that I’m taking fish oil, by God, I ought to be ready to start running again and eat healthy and all that, right? It’s going to take a good while to get me in shape so I Googled “races november 2018 pittsburgh” to give myself ten months. I happened upon one of those obstacle races which I’ve always had an interest in despite being painfully uncoordinated. And it was a charity run for a group that serves people for autism. Perfect, I thought, I can motivate myself to run by raising money for autism. But then when I looked into it further, it wasn’t in November and wasn’t in Pittsburgh after all (thanks Google). It’s called the Beast on the Bay and it’s on Presque Isle in September. Presque Isle, Erie PA. The city of My Ordeal. The home of Sylvia Ferretti. She who sought to shame me out of being a doctor.

And so, please note on your calendar of Gala Year events, the date of September 8th. I will be completing the Beast to raise money for autism services and for The Exodus Road, a nonprofit group that rescues sex slaves throughout southeast Asia, India, and the US using a network of covert surveillance teams and individuals. (i.e. Jeremy Hunters). It will be my first time returning to Erie since his trial in February of 2011 so I imagine there were will be other Gala events added to the calendar for that weekend. Be sure to stay tuned.

2018 will mostly be comprised of healing my children of PANDAS and building up my practice. Of watching my Auggie learn to speak and sending my Lena to kindergarten. Seeing my Max become an excellent cellist and trying not to ball my eyes out on my Mies’s first day of high school (getting dizzy just typing those words). Fighting for my PANDAS patients’ recovery and learning all I can to defeat the Bear once and for all. But it will be my Gala Year too. Let the festivities begin.

the smell of collard greens and sickness: 38 today

24 Friday Mar 2017

Posted by in kids, marriage, my awesome husband, parenting, PTSD, Sin, Uncategorized

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Today was the kind of day you question this whole having-5-kids thing. It’s my birthday and I’ve spent it tending 3 sick kids and taking another one to the psychiatrist. We’re talking wall to wall puke and diarrhea. Kids whining and crying. Wailing and gnashing of teeth. And always, always, the cry from all directions: Mom!

That said, 38 is a good birthday. The sun is shining. My husband surprised me with some beautiful flowers (even more a surprise because I ran into him at the store as he was buying them-he thought it ruined the whole thing but I found it more of a unique thrill). Granted, the 16 month old knocked the flowers and the 2 quarts of water they were in on the floor, but still. Clean up efforts of the spill were difficult secondary to every single rag in the house being in the wash, dirty or currently used as a puke reservoir. But still.

I spent my 28th birthday in the midst of my five month long trauma. So, Hell. I spent my 28th birthday in Hell. The great thing about trauma is that it makes puke and diarrhea look pretty damn good.

I took my sick babies for a walk in the double stroller today around our neighborhood on the river. I ate Thai food and vegan cheese cake with a very nice raspberry sauce, made by my hubs. I drank some wine and even convinced my teetolaller hubs to join me. My kids all made me cards (ten minutes before the party once forced to by the hubs) that were very sweet. My hubs spent the day, when not reducing raspberry sauce or walking our daughter to the dollar store for more pink balloons, working on the medical practice we are opening. The best present ever.

And  I got one other very important gift: time to write this.  Luxury living at its finest. I do not know how I could have made it to 38 without writing. It was my escape as an outcast Aspergery tween, was my voice against oppression in high school and beyond, won me scholarships and fellowships that made me feel like maybe I really did belong in academia, inspired lyrics that gave me the drive and the confidence to sing in a punk band in front of hundreds of people despite being completely terrified, got me published in a legit medical journal at a time when I struggled with feeling like I was a *real* doctor. Most importantly, writing got me through the weeks and months directly after Jeremy was arrested. Through the second trauma of my medical school shaming me and trying to ruin my career. And it preserved my memories. A true privilege few trauma survivors have.

This blog helped me recover from my PTSD. It helps me still. The core of PTSD is shame. The only way to battle shame is to speak your truth. More specifically, to have someone hear your truth. And not walk away. It is a small little blog with a small group of followers, and I am grateful for each and every one of you. You are a precious gift to me on this my 38th birthday.

It surprises me how I begin to write these entries with a problem and think to myself “Why are you dwelling on this problem with no solution? Cut the pity party.” And I start to write and by the time I am done, I have found an unexpected solution or a new way of looking at it, or have found a path to accepting it as it is. It makes me wonder if anyone can recover from PTSD without creating something. Trauma is the opposite of creation. It is destruction. It is the Fall in the Garden, the closing of the gate. What is it that Eve suffered for the Fall? Pain in childbirth. Pain in creation. But she did not lose the ability to create new life.

There is a certain pain to my writing now that wasn’t there when I was younger. Before my trauma. Before I had my first little boy and was told he was sick at 6 days old (and on the 7th day God rested. I cried the deepest cry I ever have while God rested. He and I are still hashing that one out). Before. But there is still this gift of the ability to create, as God does. And there is a healing in it. And a connection. Maybe not to God so much, but to other people, other survivors–not just of trauma, but all the sad things we live– to time, tradition, cyclical history. And a connection of ideas, of the points of my life, of the people who’ve passed in and out of it. Maybe, just maybe, if I keep writing, it will all make sense. The connections will be drawn, the pattern will show itself. There will be an answer.

I made a big batch of smoky vegan collard greens today for lunch. I made a lovely kale strawberry smoothie for breakfast. I took my medication. I exercised. The day was still utter chaos. I was still pretty damn grumpy for most of it. But I still ate my greens. I did not resolve my ongoing spiritual struggle over the nature of God (he can’t be all loving and  all powerful, so he mustn’t be all powerful so… where the hell does that leave us?)  But I still ate my greens. I was a highly imperfect mother and wife. But I still ate my greens. I was lonely for a lot of reasons. But I still ate my greens.

And so, the house came to smell of sickness and collard greens on this my 38th birthday. But it was 74 and breezy and so we opened the windows and doors and aired the place out. Took the baby out in the yard barefoot. Walked down to the public dock and watched the water. Hung pink streamers and balloons and had a little party. Watched a cheezy terrorist movie starring Morgan Freeman with my husband with the volume down and made up our own dialogue (lip reading did reveal Mr. Freeman called one of the characters “son” as I predicted he would). Spilled some wine on the couch and laughed about it.

We aired the place out because, as I realized shortly before my 29th birthday, I am not in prison. I am alive and I am free. This is not a cell without windows. The sun is not kept from us. And I am not alone. I am eating my greens and cleaning up the messes as they come. The stuff of life. 38 years alive. Booyah.

joy is a choice

19 Monday Dec 2016

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I have been on a diet for a few months now. I’ve lost 30 pounds. Losing steadily week by week. And then a few weeks ago I began to struggle. I stepped on the scale fo r my weekly weigh-in the day after Thanksgiving and had only lost 0.8 pounds. I was upset. I was pissed. This was not acceptable.

I decided I was going to show my diet who was boss. So, I began a fast. I wasn’t not eating at all, I reasoned. And really, Advent is a time you’re supposed to fast anyway, I reasoned. I was, of course, full of shit. I ate very very little for a week and, not surprisingly, when I stepped on that scale a week later I had lost 8 pounds. Eight pounds! In a week! Woo hoo! I’ll be at fighting weight in a few weeks!

I imagine you can guess what comes next.

I continued my oh-so-religious-not-unhealthy-at-all “fast” a few more days and then I crashed. As happens. I ate a whole lotta junk. So, I told myself, well, I’ll just go back to the weight watchers. 30 points a day. fruits and veggies are 0 points. I’ll just go back to that and then I won’t regain the 8 pounds. Still dreaming of the holy grail of being at Goal Weight.  I reasoned that since I don’t have any clothes that fit me right now and since I can’t justify buying any new clothes until I am at my end weight, why it only made sense that I really *needed* to lost 3-5 pounds a week instead of that BS “1-2 pounds a week for healthy weight loss” they were always selling.

I imagine you can guess what comes next.

I didn’t stick to my 30 points. I bargained with myself further: okay, self, if you must eat more than the allotted 30 points a day, then at least *record* everything eaten. At least stay on track *that* much.

I imagine you can guess what comes next.

It’s been two weeks of my Angel making various bargains with my Devil. And the Devil laughing as she inhales candied nuts and dairy free egg nog.

I raised the white flag last night and decided to sit down and journal it out and see what’s going on. There are a lot of factors at play: my hormones are out of whack because I’m weaning my son, it’s THE HOLIDAYS and yummy comfort food is EVERYWHERE, being on a diet for 12 weeks is really hard and gets a little old after a while, I worked six days straight right as this downfall was starting (I work 12 hour urgent care shifts so this is no small thing. Honestly, working more than 3 in a row is pretty awful), and I’m pretty damned stressed since this is my first Christmas without my family. Also, my son with autism starts getting a little… shall we say, difficult this time of year because routines are getting out of whack with the holidays. Also, we’ve all been sick with colds (#UrgentCareLife).

But it isn’t just that I’ve been eating a bit more than I should or saying Yes to more cookies passed my way than I’d planned. I’ve returned to an old pattern of eating I’ve had since I was ten. (See this entry for more on that). So, I journaled away.

It’s this feeling that I have this hunger in me that will never be filled. Like I could consume the whole universe and I would still not be satisfied. It would still not be enough. I try and try to fill it. It’s exhausting. It’s a big black hole that won’t go away.

Because it is not something that can be filled with food. It’s trite but it’s true.

It is a hunger so wide and so deep. An ocean. No land in sight. And I am alone on a little boat. You can scream all you want but no one will hear.

It is something that must be filled with love and joy and speaking your truth and having someone hear and knowing you’re resilient and having faith it’s going to be okay. all of it. Filled with my son’s drawings and my daughter’s songs and my other son finally learning addition and my baby saying Uh oh! Filled with God and his saints and Hebrew prayers and oplatka and incense and chanting. Filled with the rhythm of the year and laughing when you really want to cry and doing what’s right even when it’s hard. Because life brings pain but we decide how much we suffer. And joy is a choice.

I am blessed with four beautiful children. I am blessed to be a physician. I am blessed to have been called to Catholicism. I am blessed to live in a warm home and drive a safe car and to be able to buy my children the things they need and some of the things they want. I am blessed to have grit. I am blessed because I am not alone. And it is not an endless ocean. Just puddles we’re jumping through. And in between, we laugh.

 

pretending to grill in the garden of eden

04 Sunday Dec 2016

Posted by in love, PTSD, Rape, Uncategorized

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I have lost some weight recently. A goodly amount, I think it’s fair to say. Only ten more pounds to go. I weighed 150 pounds nine years ago when my trauma began and by 2013 I was 224 pounds. I ate for a lot of reasons. I’ll tell you about it some time.

Today I am thinking about a picture of me grilling. Well, pretending to grill. It was 2007 and I had left my first husband and was just starting medical school. I was young. So damned young. 28 to be precise. I just knew my soul mate awaited me out there. And I would of course find him on the internet. A single mom going to med school doesn’t have time to go out, so she would of course take advantage of online dating. But, I needed a profile picture. This was before the advent of selfies and not too many of us had a gaggle of carefully angled, flattering pictures of ourselves lying around in our smart phones. I didn’t even have a smart phone. So I asked my mother to take a picture of me.

I wanted to look natural so I said, take a picture of me in the kitchen cooking spaghetti. (Because everyone has a picture of them in full make up smiling as they cook spaghetti. So natural. And maybe I could use it if I ever decided to sell my own brand of jarred spaghetti sauce. Kill two birds with one stone. Bam) Unfortunately, the lighting in the kitchen was bad so we went out on the back patio of my little ranch house in Erie. Unsure of how to keep up the natural theme, I went for the grill. Here, I said, take a picture of me pretending to grill.

And so here I am today, looking at a picture of me with my hair perfectly done, pink lip gloss shining, smiling with my mouth and my eyes (so it wouldn’t look fake. Even though it was). Holding a large grilling spatula in my hand, the cold grill lid opened. No sign of my special needs toddlers to be seen. None of the dark circles I’d soon earn staying up late studying. The flat stare of depression that had occupied my face most of my life, the fear of the abuse I’d lived under, the wide eyes of my mania, absent. I’m beaming with hope in that picture. An endless stream of possibility before me. Faith that I will have a wonderful life. (I did work in the Jimmy Stewart Museum in high school, after all).

I do have a good life now. Nine years later. I have been blessed and I have fought for it. I certainly do not have the life I imagined then, when I was young. How many of us do? I have walked through my darkness these years and come out on the other side.

I am now almost to the weight I am in that picture. And as I have dropped each pound, run each mile, I have thought, this is a victory over my trauma. I have reclaimed my mental health and now I am reclaiming my physical. He can’t take this from me. I am leaving behind my trauma pound by pound. I am escaping a body that is not really mine. Getting back to being myself after so long.

But now I am close to the weight in the picture, to wearing the clothes I wore then, all of which I have saved in anticipation of this day. And I look in the mirror and I have not returned to looking like myself at all. I am not the girl at the grill.

My stomach has gone from that of a 28 year old whose had 2 kids to that of a 37 year old whose had 4 and gained and lost a lot of weight. My face has crow’s feet and laugh lines it didn’t then. And my eyes don’t smile the same. They’ve seen too much to smile so damned naïve. They smile not with happiness, but with the joy that comes from knowing sadness.

I’ll be honest with you, I wish my body looked like it did back then. I’d love to be a good feminist and not feel that way. I know I shouldn’t subconsciously convey such attitudes to my sweet daughter. But, life’s a process, okay? And I wish I was a little firmer, a little perkier. Less stretch marks. Less lines. But I don’t wish my eyes were perkier. I don’t wish these past nine years had been different. Don’t wish I could return to being naïve.

I’ve never believed in regret. It’s never made sense to my logical autistic brain. If you can’t do something over, why would you possibly sit around thinking about what might have been? It is what it is, I often say. Life is what it is.

I have no regrets about choosing the medical school I did. About pursuing the awful man I did. About turning him in as I did. Never have, never will. But I have been continuing to labor under the false idea we get after trauma. The idea that keeps us from moving on, that locks us into PTSD if we believe it enough. The idea that we can make this trauma not matter. That it can become a minor footnote in our life story. That we can go back to being who we were before. Before. Before *it*. You know, that event that doesn’t matter anymore. Even though it’s the yardstick we now measure every accomplishment by. Constantly claiming victory. Telling yourself, living well is the best revenge. Tallying up everything you have that your perpetrators never will. Telling yourself, I’m not like those whiny survivors who blame all their problems on their trauma. I’m different. I have overcome.

The truth is, your life was divided the day the trauma began. There was before the trauma and after. And it drives you mad. You just want that damned line erased. You want your life whole again. A beautiful continuous flowing story arc. With twists and turns and dips and peaks, but unbroken. But that fucking chasm, fault, break, schism, crack, gully, canyon, whatever you call it, it’s still there. Won’t budge. It’s not something you can remove. Because it’s not something. It’s the absence of something. You can try and try to fill it, but it’s still there. Go ahead, dump in food, pills, booze, drugs, sex, work, reckless driving, overspending, self injury, reality television, starvation, obsessive relationships, obsessive religion, hours of staring blankly at walls… It’s still there. Fill it til it overflows. It’s still there.  It. Will. Always. Be. There.

The Garden of Eden will not be restored. The fallen world remains.

And that’s okay. Well, it’s not *really* okay. It’s trauma. And trauma’s hell. But… it is what it is. It doesn’t have to be okay. It just is. And you have to learn to accept that it is. Over. And over. And over. You build up a life on the other side of it. You peer down into it and thank God you haven’t fallen into it. That you’re here. Looking back at it as you run, mile by mile.

I swallowed a vitamin yesterday. A really big vitamin. I’ve always been good at swallowing pills. So are my kids. Family skill. (baggy esophagus maybe? we’re not the most coordinated family so it’s certainly not that we have an especially athletic swallowing mechanism). The thing is, Jeremy raped me a lot of ways but the scariest one was the oral rape. Because I thought I would die. He would suffocate me and count to ten slowly and I thought he might just hold me there long enough to kill me and I’d never see my babies again. I felt so utterly powerless. I was so utterly powerless. He would tell me he was training the gag mechanism out of me.

It didn’t work and ever since then, I have had trouble swallowing certain things like big pills. Vitamins in particular I guess since he had me on a vitamin regimen of sorts. It wasn’t something I ever wanted to deal with. I  just took gummy vitamins. But yesterday my husband said, these are really good vitamins, maybe you could try and see. And so I did. I put this rather large vitamin and my probiotic capsule and my two medications in my mouth and took a big gulp of water and threw my head back. And they all went down. Down the hatch.

I felt so victorious. I thought, I wish I could tell someone. I was so happy that he’d now taken one less thing from me. I thought about telling people, though, and how I would need to explain that whole oral-rape-until-you-suffocate thing. And then I remembered the whole orally-raped-until-I-suffocated thing. And I felt so powerless. So utterly powerless. There in my living room, my babies’ toys strewn on the floor, the fireplace I love, the pictures of our wedding and our first communion at the Easter vigil and… I felt so terrified and so sad and… I thought to myself, a really awful thing happened to me. A freaky, awful thing. A thing no one deserves. That happened. It happened to me. And it can’t be undone.

The moment passed quickly. In a matter of seconds it was done and I was back to my life. To my beautiful fireplace and crazy bubalink babies and my devoted husband and I stumbling through Catholicism. And now I was doing all that with the benefit of a wonderful multivitamin.

You tell yourself, you need to stop running *from* the trauma and start running *towards* the good things. And the truth is, I do have runs where I think about the healthy habits I’m giving my kids and going on hikes with my husband, maybe learning tennis or kickboxing. How good it feels to be lighter on my feet, to get around easier, to know I’m probably going to dodge the bullet of diabetes type 2 and keep the arthritis at bay as long as I can. But sometimes I think of how far I’ve come. Sometimes I think of him, of her (the head of my medical school),  of the sickness in their hearts that makes them do the things they do. Of the happiness they tried to deny me.

They did, in a way. They took from me the naïve happiness I had then. They put a fault in my life. Made it into a before and after. But I have made a home on the other side. I am not hanging off the edge. I am not in the darkness of it. My happiness has given way to joy and wisdom and a greater love than I could have known. The fault is there to stay. And that’s okay. Well, it’s not okay. But it is. It is what it is. And after all, it really is a wonderful life.