• I’ll Sleep When I’m Dead

I'll Sleep When I'm Dead

~ writing my way through motherhood, doctorhood, post-PTSDhood and autism. sleeping very little.

Tag Archives: original sin

The World is Coming to an End

27 Sunday Nov 2016

Posted by elizabethspaardo in kids, love, marriage, my awesome husband, parenting

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Tags

fallen world, family, original sin, residency, truth

My husband is a filmmaker and he made our wedding video. I am blessed like that. He edited it, picked out the music and even hired an animator to make an animated version of the highlights of our relationship. Impressively, he did this while broke and during a really painful separation I had instigated. #MaritalSaint.

We watch it from time to time and we had been meaning to sit and watch it again for the past few months now. Our daughter Lena loves weddings and kept asking when we would watch it. We finally carved out some time to watch it last week. As Lena sat oohing and ahhing over my pretty dress and the “beauuuutyful flowas,” I found myself crying. Which was odd. You see, I am not a crier. I mainly cry when

  1. flooded with pregnancy hormones
  2. when extremely exhausted or
  3. when extremely depressed and heading into a panic attack. When it feels I am falling into the blackness and my world is coming to an end.

I cried several times during the video despite not wanting to do so in front of my sweet, very empathetic Lena. Unlike my boys, she notices any time I am sad or angry. Sometimes she notices before I do. #HighFunctioningAutism. And unlike the boys, I can never lie my way out of it.

I cried as we watched my father give me away and when my nieces walked down the aisle as little flower girls. My wedding was really the last time I saw my sisters and my nieces. I have since then physically seen them a few times, but it was a hollow, awkward exercise. It only served to remind me of what I’d lost.

I watched my two nieces in their pretty little dresses walking down the aisle. The older one was 6 1/2 and the younger one 4 1/2. Smiling and sweet. At the reception the younger one danced with abandon and ran around, often times chased by her father trying to get her to do something. She was quick and evaded capture often. As I watched them, I realized they will forever be caught in this age in my mind. They will never age. Forever sweet, spunky little girls.

I saw them for the first time since the wedding (the first time in 5 years, in 60 months, in 1,825 days) this past summer. 11 1/2 and 9 1/2. They were hard to recognize. They looked so much like their mother now. They looked so grown up. They did not talk to me or my boys.

My boys, especially the Axe, had been asking to see them for five years. He never gave up. He couldn’t understand why he wasn’t allowed. I didn’t understand either and couldn’t figure out how to explain it. I told him, my sister is mad at me and doesn’t want to see us. He asked why she was mad and I said, I don’t know. Because I don’t.

Now, they were strangers.

My sister gave her older daughter my name as her middle name. Because I had helped her through her very long, very difficult, downright heroic labor. It meant a lot to me. An overwhelming lot. I wonder now what she tells her when she asks where her name came from, as I often asked my mother when I was a little girl.

I cried because I will always miss them. Because they will forever be little girls in my mind even as they grow. And that is a very sad thing, to never grow up.

I cried too to see my parents. My father giving me away.

“Who gives this woman to be married?”

” I do.”

But they didn’t really give me away. They couldn’t bring themselves to let me go. They couldn’t stand the thought of letting me grow up. I was forever a little girl to them. *Their* little girl. They could let no one take me away. It did not occur to them I was choosing to go away, that no one was taking me. In their mind, I was theirs and now he was taking me to be his. After all, a little girl is not able to make such decisions.

If they’d let me go, I would have. I really did want to marry my husband and have a home of my own. Every time I’d left my home as an adult I always came back. I went away to college but then transferred to the local school and lived with them. Then I met my first husband and moved away with him and got married. But then I divorced him and again lived with them for four years during medical school. Then I met my forever husband and moved away again. If they’d let me go, I would have stayed with him. But they couldn’t and I didn’t. I left him twice. I left him in a sudden, jarring, couldn’t see it coming way. Twice. And each time returned to them. The first time I physically moved back in with them. The second time, only emotionally so.

And a man shall leave his parents and cleave to his wife. No mention of the wife in that one.

My husband would say to me I was too attached to my family and our marriage wasn’t going to work until I grew up and left the nest and learned to put my kids and marriage first. I kept insisting I had and offered up various bits of evidence to support the patently untrue assertion. He was never convinced.

They had made clear while we were dating they didn’t like him. My sisters broke off with me after the wedding. My parents remained and put up a show of liking him. When I left the first time, it was ay my family’s urging and we sat discussing their true feelings about him. When he and I attempted to reconcile shortly after the separation I kept it a secret as I knew they’d be upset. I was right. When they found out from reading text messages on my phone, my mother kicked me out. Me and my three kids. Me with nowhere to go. I remember calling my oldest sister crying uncontrollably, panicking, terrified. Terrified because I had nowhere to go but mostly because when this side of my mother came out, I felt that black hole feeling. That I was being sucked into the abyss. The world was ending.

Our mothers are the source of life. They are supposed to be the safe womb we can always return to in times of distress. Mine was not. It was in times of distress she was most likely to turn from a seemingly sweet cookie baking, nurturing mom to an ugliness words cannot describe. A cold hate would flow from her and destroy me. My world spinning around me, closing in on me, suffocating me into non-existence.  I would go from being a sacrificial devoted mother in her eyes to a crazy, unfit mother who put men before her children. She would threaten to give my ex-husband money to get a lawyer and take my kids away. Crazy. Unfit mother. Woman who puts men before her children. These were the things I feared most. These were the demons that haunted me. Was she right? Is that who I truly was? That doubt, that possibility, was an endless source of shame deep within me.

You never really knew when she would turn. I grew up in a minefield. Trying so hard not to set her off. And always failing.

I remember going back to my bedroom, the room I had slept in all my life, that I had returned to once again, and calling my husband. Speaking in hushed tones and sobs about my mother kicking me out. He couldn’t understand what I was saying. I was terrified for my mother to hear me so I spoke quietly and ended the call quickly. He had no idea what had happened.

My mother soon summoned me to the living room with an offer. She would not kick me and my babies out on condition that:

  1. I send my two boys to live with their father as she did not have the energy for them. My daughter could remain and she would watch her while I completed residency and
  2. I was to cut off contact with my husband. Any time we met for visitation with our daughter, I was to be chaperoned by my father. They didn’t want my manipulative evil husband sucking me back in. After all, I was just a little girl and easily tricked.

I agreed, so scared. I cut off all contact with my husband without even explaining why. They soon rescinded the demand I send my boys to live with their father, but not the second. We met for visitation with my father awkwardly standing with us. My husband brought me gifts, sweet gifts. A CD he’d made me. Sweet, thoughtful gifts and cards. My family rolled their eyes and laughed. How could he think gifts would make up for what a horrible person he was?

In time, I began communicating with my husband again and we decided again to reconcile. This time, I knew I couldn’t let them find out as we prepared, finding a house to live in and meeting as often as we could (he was living 3 1/2 hours away). My parents rarely left the house, but in August there was a family reunion they would be at for a few hours. In those few short hours we packed up my belongings, disassembled my boy’s bunkbeds and moved all of it out to the new house, an hour away, where I was completing residency. I left them a note saying goodbye.

Their little girl had once again been stolen.

In time, I unpacked the dysfunction of my family in therapy. I began slowly to set boundaries and view my family and my childhood for what it was. I realized there was no emotional intimacy. I realized I had been raised to trust no one but the family. I realized how afraid I had been all these years of my mother disowning me, as she had other people in her life. I realized my mother and I were enmeshed and yet not close at all. Not in the ways that matter.

I left my husband again this past summer just as suddenly, just as secretly, just as heartbreakingly. We reconciled again. And my parents said they were fine with it, but began to punish me in subtle unspoken ways. But still I kept them in my life.

The breaking point came a few months later with the dog incident I have explained in previous posts. I found after I broke with them, my marriage was suddenly so much better. My opinion of my husband so much better, my love for him unconditional. I was not expecting this. I came to see all the subtle ways they had undermined our marriage while, on the surface, appearing to be supporting it. How incredibly cruel. To me and to my kids. Crazy. An unfit mother. Projection.

I no longer have my family in my life and so I cried as I watched my father giving me away in my pretty white dress. They say in Catholicism that we are not waiting for the world to end when Christ comes. The world ends many times in our lives. When we get divorced, get a bad diagnosis, lose a loved on. It ended for me when I found out my son was sick at 6 days old, when a guy I’d been in love with broke my heart, when my medical school tried to ruin my career for turning in a child molester. The world ends but a new one begins. It prepares us for death, they say. For it is in dying that we are born again.

My world has come to an end once again as it has before. But this time I can see clearly the new world that has been created in its place. My children growing up healthier and happier than I, my marriage finally solid, my body and mind stronger than they’ve ever been, my connection to God growing.

They couldn’t give me away and so now I have left of my own will. I am not a little girl. I have grown up.

I have slept in the bed with evil

09 Wednesday Nov 2016

Posted by elizabethspaardo in autism, Evil, PTSD, Rape, Sin

≈ 1 Comment

Tags

autism, fallen world, original sin, PTSD, rape, trauma, truth

I am wearing all black today. I am in mourning. I am not going to make a joke about my goth days in high school. I am not going to compare the title of this post to that awful made-for-TV movie from the nineties starring Tori Spelling, “Mother May I Sleep with Danger.” This is no joke. This is not a nightmare we will wake up from tomorrow, a bipolar fugue we will not remember when it ends and we find ourselves far from home. It may be the 1930s.

I do not use the word evil lightly. A lot of people have referred to Hillary Clinton as evil in this election cycle. I am as big a critic of Bill Clinton’s policy and Hillary’s record on free trade, her foreign policy, and her “super predator” comments as anyone. But she’s hardly evil.

For four months, I slept in the bed of a man who can rightly be called evil. A man who loved raping and torturing little girls above all else, who admired Hitler, who raped me again and again and again and threatened to kill my children. A man who disturbed even the seasoned federal judge and the FBI agent who were involved in his case. He was a medical student on his way to becoming a doctor. Nobody suspected. None of us even knew such evil existed as it all came out, certainly not that our fellow medical student possessed the evil.

Trauma changes you. It changes your relationship with yourself, with your family and friends, with God, with the world itself and every person you encounter day by day. They say the fundamental experience of trauma is the feeling you have been abandoned. By the people you love, by the ones who were supposed to protect you, and by God himself.

My Ordeal changed me in so many ways but one of the worst was the knowledge of just what evil exists in our world. Evil I did not know existed. And I had not lived a sheltered life to that point. I was not naïve. And yet I was. My fear now is that we as a country are being naïve. Despite our very violent history.

We cannot underestimate the possibilities of this new world. We cannot afford to be naïve. I do not know what will happen but I know it could be very, very bad.

A few years ago we were at a festival at a place called City Island in Harrisburg. Our three sons went off on their own while my husband and Princess (still a baby) and I stayed and chatted with some friends. Eventually two of our sons came back, but not the third. Our legally blind, autistic son was not with them. They told us they’d had some kind of fight with him and decided to leave him. They were too young to know not to do this. Too naive.

My husband and I split up to cover the island looking for him. And as I looked in booths and the dense woods that framed the island, pushing Princess in the stroller, terror went through my body. My mind went to Jeremy. To the people he talked to on the internet who also loved raping and torturing children. Who sent him images of their horrific acts, recorded in stills and movies. The ones presented at trial that took any remaining innocence from anyone in that courtroom. I cried as I looked. I pictured what might happen to him. Things that are worse and more common than we allow ourselves to believe. I didn’t want to scare Princess, but I could not hold back the tears. My husband found him and I ran up to him, shaking and crying and finding it hard to bring the oxygen into my lungs.

I do not know how so many people at Penn State stood by while little boys were raped and did little or nothing. I will never comprehend that. The coaches, the janitor, Mike McQuery whatever the hell he was. I could have been killed. My children could have been killed. I laid down my body. I laid down my mind. I lost seven years of my life to PTSD. So did my children and husband, lost seven years of me being truly present in our lives. I have no regrets and never have. Not for a second. But I know the men of Penn State are much more common than people like me. And this election confirms it.

Evil can flourish, slowly, insidiously. I see friends who loved Bernie so much now so glad they voted Trump. I can see the mainstream Republicans now falling in line or being eliminated (we’re assured by Trump’s people the are making “a list” of “his enemies”). I can see the inevitable persecution of journalists and violent crackdown on peaceful protests. Hate crimes and sexual assault rates rising (if you don’t believe me, look at what happened in the aftermath of Brexit). Muslims forced to wear badges identifying them (yes, Trump said this).

You think I exaggerate. You think this couldn’t be the 1930s. And I hope you’re right. But I know in my bones you probably aren’t.

God bless and protect the Union.

 

You will sleep soundly because we don’t

15 Saturday Nov 2014

Posted by elizabethspaardo in doctors, Evil, Rape, Sin

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Tags

feminism, Justice, medicine, original sin, rape, Sin eater

“Professor Evans of the Presbyterian College, Carmarthen, actually saw a sin-eater about the year 1825, who was then living near Llanwenog, Cardiganshire. Abhorred by the superstitious villagers as a thing unclean, the sin-eater cut himself off from all social intercourse with his fellow creatures by reason of the life he had chosen; he lived as a rule in a remote place by himself, and those who chanced to meet him avoided him as they would a leper. This unfortunate was held to be the associate of evil spirits, and given to witchcraft, incantations and unholy practices; only when a death took place did they seek him out, and when his purpose was accomplished they burned the wooden bowl and platter from which he had eaten the food handed across, or placed on the corpse for his consumption.”

I gave a talk on PTSD in women to a room full of doctors today. I talked about incest and oral rape to a room full of doctors today. I started off my talk by telling them the next 45 minutes were going to be unpleasant and uncomfortable because discussing trauma, thinking about trauma, is an innately unpleasant, uncomfortable thing. And for the first five minutes or so they did look uncomfortable. Which made sense. And then they didn’t. They stopped looking uncomfortable and began to look the way they always do during a lecture. Some of them listened attentively and made eye contact. Some of them dozed off.

It went pretty much as lectures do. There were questions and comments afterward. About screening and medication and epidemiology.

I told them something else before the lecture started too. I told them I have PTSD and that I was talking to them about PTSD that day (not hypertension or diabetes or depression or all the hundred other diseases it would have been so easy to talk about) because I wanted to help all the survivors I’ve met along the way.

I have not told many doctors over the years that I have PTSD because the admission of the disease, quite unlike other diseases, is a confession of having lived something. In this case, something horrible and terrifying and evil. I’m not supposed to tell them what happened to me in medical school. Everyone who knows tells me so. We are a society that blames the victim and the medical world is no different. But these people who tell me this, these well meaning people who want to protect me, they don’t know how awful a thing it is to not tell.

What good is it to gain the whole world for the price of your soul? And a medical career, after all, is hardly the whole world.

The thing that keeps me from telling them what happened to me is not fear. I left fear behind the day I turned him in knowing he very well might kill my children, knowing very well bad men like him rarely go to jail for very long. The reason I don’t tell them is that they wouldn’t care, not enough anyway. They do not know evil as those of us who’ve lived it do. They do not have the darkness in them. When evil surfaces, we listen for a moment and tell her we feel so bad for her and tell her she’s so brave. And then we forget. Because anyone who can, will. And the reason we can is because of the sin eaters.

We swallow down the darkness for the rest of the world. It sits in us, contained in us, and you are safe.

It will never change. It is not patriarchy or capitalism or imperialism. It is evil, it is fallen Man.

I stood up there and I taught those doctors about the three stages of recovery from PTSD. I made them feel so good about the whole thing. These women will always have this chronic disease, they’ll never get justice for what happened to them, but they’ll be okay because they’ll break their silence and push through their fear and integrate the trauma experience into the story of their lives. They’ll be redeemed by learning acceptance. Not resignation, acceptance. Cue the music, fade out as the heroine smiles through her tears and heads out to conquer the world with her loving supportive man at her side.

I swallowed down the darkness for them. And there it sits.

I write this now not for those of you who will read this who do not know the darkness. You will never change. You can’t. You will forget this in a few minutes or a day. I write this for the sin eaters. So I might feel a little less alone for a moment before I head back to work, to the land of the those we protect who will never really know.

The Unspeakable Beauty of Being Broken

04 Thursday Sep 2014

Posted by elizabethspaardo in christianity, empathy

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Tags

addiction, original sin

I accidentally drove to Cranberry this past weekend. I’d meant to drive 2 hours east to Harrisburg but somehow drove 2 hours west to Cranberry instead. I called my husband Poobah and said, “I have to tell you something but you have to promise not to get mad at me.” Not the words he was hoping to hear I am sure. He agreed to the fairly absurd request (one can’t choose to not have at least an initial angry impulse if that’s what’s stirred in them after all) and I told him where I was. He didn’t get angry but he was certainly confused. How is it I had driven for two hours on the Pennsylvania Turnpike the wrong way? Hadn’t I noticed all the signs for the exits that lead to Pittsburgh? I really didn’t know how to explain it and simply told him I’d done it before and that we would try to make the best time we could over to Harrisburg now.

How it happened is not really so complex or mysterious. I’m not on my way to early onset Alzheimer’s or Lewy body dementia. I didn’t have a psychotic break and lose touch with reality. I was just really stressed out with life in general and then climbed into a Honda Civic with three young kids for a three and a half hour drive.

Still, it scared me. It didn’t seem like something a normal person would do. I’d done it before. I’d probably do it again. And it just isn’t normal. Therefore, I’m not normal.

Now, don’t get me wrong. I’ve never been a big fan of normal. I’ve always wanted to be unique, to be myself exactly as I am. I’ve taught my kids the same thing. Truth is, I love my oddball patients the most. I’ve always been a fan of the underdog.

What was scaring me now was the fear that I’m not just unique or special, that I’m somehow… wrong. There lies in me a fear I think we all have to one extent or another: the fear that I’m a fraud. In me, I suspect, it runs deeper and wider than it does in most.

I feel sometimes that my whole life is a house of cards precariously standing by the grace of so many cards all pushing against one another with just the right amount of force, positioned just so for balance. And at any moment, it might just collapse. It all just might fall apart and I will be left with nothing more than a pile of scattered cards. I could just lose it all, just like that, in an instant. I could lose it all because I am not who we all think I am, me included.

It all feels so fragile to me at times. The thing I have to remind myself is that it is. It is fragile. All of it. Everything any of us thinks we have. Anyone’s house of cards could come crashing down. And yes, maybe it would be my fault if it happened. Maybe I would make a mistake and cause it all to fall.

It’s already fallen. The world. Nothing’s owed us. We’re all broken, all imperfect, all sick. Any one of us could knock it all down on any given day. I tend to think that those of us that know how broken we are, are maybe actually the wise ones. I sat in on a drug rehab group recently and listened to a beautiful group of people trying to get their lives back in order after addiction. They laid themselves bare to one another, talking about the wounds of their past, of those who’d loved them and those who hadn’t, of those they’d hurt and betrayed and deceived along the way. Their cards lie scattered and they knew it and they knew it was their own doing. They knew even if they could begin to build again, it would still be a fragile thing and that it very well might fall into chaos again. I hated to leave the group to return to the real world, full of the superficial interactions that make up the day to day of life. I have felt the fragility of it all since I was a little girl and have found so many either don’t know yet, or wish to ignore it or pretend it away. I suppose for many of us, it’s a necessary lie.

Like the woman at Jesus’s feet, cleaning them with her tears and drying them with her hair, breaking open her alabaster jar to anoint him with perfume, we are all but whores at the feet of the Lord. A pile of cards that will one day be made whole again when we leave this broken world for something so much better.

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