Tag Archives: Possibility

silver gray honey

01 Monday Nov 2021

Posted by in love, marriage, narcissism, romance

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We got engaged in December. It was cold and clear. In front of cameras of course (it doesn’t count if no one’s watching).

The next day, it began. It was cold and sharp. In my car along the Turnpike (with no one watching, of course).

I wouldn’t say the real you came out because I don’t think there is a real you.

You are honey mixed with gray silver micah. Lacking form and shape. You cannot be held but you stick and don’t let go. Clinging to my hands and I cannot quite get all of you off my skin. Dirt and remnants of what was and what wasn’t latched on.

I soak them in water. Warm and clear. And I watch as you dissolve and wash down my drain.

Are you a Mary or a Rhoda? Maybe both.(of divorce and white hot suns)

21 Monday Jun 2021

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Someone crying a solitary sad tear

I cried a little on my way into work this morning. Well, not work exactly. I was actually driving to the tire place near my office because I got another flat. Presumably due to hitting the curb too many times trying to squeeze into a parking space in front of my house, a popular place for people from all corners the earth to park. Not that I’m bitter. Anyway, back to the crying. I was crying because I didn’t have a head scarf on. I was crying because my divorce was a little about more final now.

This is not my street but the parking looks similar

I started wearing my headscarves five years ago. Was it really five years? It went so fast. It was after my husband and I had reconciled, for the second time. I decided to wear the scarf for a lot of reasons. I’m sure I’ve written posts about it on here. I covered my head on my spiritual journey of my youth. Covered it studying Judaism, covered it exploring Islam, covered it, ultimately as a Catholic (turned post-Catholic). It was a way for me to remember God each day. But it was also because I was married. Muslim women who wear hijab do so whether they’re married or not. Same with the Amish. But Orthodox Jews cover their hair when they’re married.

And I’m not married anymore. Mostly.

Divorce doesn’t happen in a day. There’s the day you file, the day you tell the kids, the day you tell everyone else, the day you move out, the day you change your name back, the day you write up your custody agreement, the day you divide up your assets and debts (the physical ones anyway. Not sure you ever stop dividing up the blame and resentment but I hope so), the day the decree is handed down. But these are just the outward signs of the true divorce, the one inside you.

I don’t think judges get your wedding rings before pounding their gavel on your divorce decree that looks like an elementary school perfect attendance certificate but maybe I’m wrong

I chose to stop wearing my headscarves this weekend after a year and a half of considering it. I thought and contemplated and prayed and searched my heart and consulted the cards. And I knew it was time. I’m still devoted to God and I’ll still wear it on certain occasions. But, for me, a head scarf is for married women. And I’m not married anymore.

But as I was crying, I thought, why are you crying? It’s not that I miss my husband. I reeeeeeally don’t. It’s definitely not that I wish we were still together. I reeeeeeally don.’t. It was something else. A marriage is more than the two people in it. There are the two of you and then there’s who you thought they were and who they thought you were. There’s the couple you thought you were and the couple they thought you were. There’s all the people in your life and what you thought your marriage was to them. There are your kids and what it was to them. And there are your hopes, the life you thought would unfold over the next 30 or 40 years. Your identity as a married woman, now a twice divorced woman. It is a slow, painful death. But.

But.

It is followed by rebirth. All those contractions and dilating and blood and fluid and pushing until you think you might split in two like a wishbone, are worth it in the end. You emerge bloody and red and crying. You might even have some meconium in your lungs to work out. The air is cold and you miss the comfort of the womb, but there’s no going back. Here you are.

I wish I could say there’s a big boob waiting there to comfort you, but there’s not. After all, you just gave birth to yourself. The only teet is your own. Okay I’m going to drop this metaphor now. It’s getting a little bit too weird.

Where was I? Oh yes, scarves.

When I started covering my head, after we reconciled, if I’m being completely honest with myself, it was about more than God. And it was about more than being married. It was to contain the part of me I had to put deep inside in order to keep my marriage together.

We reconciled because I couldn’t financially afford to leave but we also reconciled because I couldn’t stand to be alone. It took me 40 years to get to a place where I could be alone and not fall apart. Okay, 42; I’ve definitely fallen apart during this divorce process and had to have some very strong external motivators to keep me going. Anyway, when I went back five years ago, it was in resignation. Resignation to the fact I couldn’t afford to leave, resignation to the fact I wasn’t strong enough to leave but I wasn’t strong enough to stay. I knew if I went back this time, that was it. I was in it for the long haul. I couldn’t keep putting my kids through the back and forth. Or myself. I needed to be stable and give them a stable home. I needed to grow up and accept my life for what it was. And so, I knew I had to resign myself to the parts of my husband that always made me want to leave. I had to accept the control and paranoia and misogyny and irrationality and the messy house and everything else. And I had to dim my light, so I didn’t outshine him. And so I covered it with a scarf and said goodbye.

How many of us spend our lives dimming our light to keep the people in our lives happy?

Well, fuck that.

It’s been a long journey of spiritual growth and therapy and a lot of blog entries and a few very good friends. But I have started shining again. Gradually, over these past few years. And now, the scarves are off and I’m aiming for supernova levels.

A photo of me seen this weekend grocery shopping in hoop earrings and platform sandals

It’s not just him. It’s so many people who’ve been in my life. And that’s life. That’s the fallen world we live in where people are insecure and jealous and afraid and don’t realize there’s room for all of us to shine. A million white hot suns. Feel free to stare directly at us, it will not damage your retinas.

And so, I find myself thinking of Gloria Steinem and Rhoda Morgenstern and all the other fabulous, confident, free spirited 40-something women with good hair. I am not someone new. I am just stripping away all the layers I’ve used to dull my shine. The self-imposed vernix. I am becoming more me.

I’m throwing my deep purple scarf in the air, ’cause I’m gonna make it after all.

Lassoing the Beast

24 Friday Apr 2020

Posted by in christianity, empathy, Evil, kids, love, marriage, medicine, my awesome husband, narcissism, PTSD, Rape, Sin, Uncategorized

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I do not think that I have ever seen a case where the sentencing goal of protection of the public figured more predominantly. Anyone who sat through this trial would realize that this defendant is the worst nightmare of every child’s parent. The entirely credible and overwhelming evidence demonstrated that the defendant is a dangerous predatory sadist…
Hon Sean McLaughlin, sentencing of Jeremy Noyes

golden lasso

A package arrived today. A hoody. Oh, how I love a good hoody. Is there anything better? Cozy and comfy and flattering on people of all shapes and sizes. Maybe it’s because I grew up crushing on boys with long hair in hoodies and Vans, but hoodies hold a special place in my heart. Back to present day: the hoody that arrived was blazoned with Beast on the Bay. Because I have decided to run the Beast on the Bay again this year.

Regular readers may recall that in 2018, I ran the Beast as part of my ten year anniversary of my trauma. It inspired me to get into shape and do something that felt impossible. It also happened to be in Erie, where my trauma occurred and is sponsored by my old med school, who made the trauma significantly worse. I was not able to run the race in 2019 because the previous summer, in the best shape of my life, I had suddenly developed a mysterious autoimmune neurologic disorder a week before I was to run a different obstacle course race, the Spartan. Now, within this surreal time of quarantine, I’ve decided to do it again this September (if it’s not cancelled).

I had come to some new revelations on Easter Sunday. Not regarding God or Armageddon or resurrection. Regarding my immune system.

antibody_1_1

In order for me to explain, let’s rewind to June 2019.

I’d been in training for 14 months and was in peak form. My body fat percentage was its lowest ever. I could run a 9 minute mile. I was pumping out burpees like a champ. I felt amazing. On Sunday, my husband I went to a local Crossfit gym to do a class and practice rope climbing. I’d never climbed a rope in my life. I never even tried in gym class as a kid because I was convinced I couldn’t do it and would just embarrass myself. I knew I needed to climb one for the race coming up the following Saturday so we went and the owners gave me some tips and I did it! I was so damn proud of myself.

The next morning I woke up and felt sick: I was exhausted, my muscles ached and felt weak. It wasn’t the way I felt after a really brutal workout. It was the way I felt when I had the flu. I decided I better give into it and rest as much as possible but I’d been planning on working out leading up until a couple days before the race. I needed to get better quick, though , so I cancelled the workouts. By the time Friday came, I was still exhausted and I knew I needed to cancel the race. I was heartbroken. I’d worked so hard and it meant a lot to me. It was odd I was still feeling just as bad six days in, so on Saturday instead of going to the race, I went to Quest to get some bloodwork drawn.

Over the next few months I saw neurologists and rheumatologists. I had bloodwork, MRIs, EMGs, and EEGs. I began to piece together symptoms I’d been having in the months leading up to my exhaustion. Blistering on my lips I’d assumed were cold sores (they weren’t). Neuropathy in my arms and legs after showering. A tightening of my rib muscles during a run. At one point, my calves swelled and hardened during a run, forcing me to stop. My fine motor skills were off and I was having more of the involuntary muscle movements I’d gotten for years. I was losing my balance more often too.

pemphigus

None of the doctors ever arrived at a diagnosis and I was told to deal with it and be grateful it wasn’t something bad. I wasn’t. How could we know if it would get really bad or not if we didn’t know what it was? I had plenty of patients in the same boat. Vague autoimmune symptoms and slightly off labs but no clear clinical picture of a known disorder. They often found their way to my doorstep looking for help from medical marijuana (Which is smart because it helps both the symptoms and has immune modulating effect which can help longterm outcomes). I was now one of them.

I tried changing to a plant based ketogenic diet but it only seemed to make it worse (and was unpleasant as hell to eat). I tried forcing myself to exercise but it made it worse too. I would have a few days where I felt pretty good, but the symptoms always returned. That is, until November.

In late November, my husband moved out. Our marriage ended. And so did my symptoms. I hadn’t been expecting such a dramatic reaction on the part of my body, but there it was. Fatigue, pain, weakness, skin blistering, muscle jerking, neuropathy. Gone. My toxic marriage had been killing me. My body was sending me one last desperate message before it gave up the fight. And it worked.

What can make you more grateful for the movement of your body than losing it?

There has been a lot going on in my life since then. Divorce, buying a new house and moving in less than two weeks before Christmas, and the in and out of court of a high conflict divorce and custody battle. Finally as February came to a close I felt like things had settled down and I was ready to start working out again and go on a diet to shed the weight I’d gained since June. It went well for a couple weeks and then buh buh buh, quarantine! And it all went to pot. Like it did for all of you.

2AP1TD2-b598c7937e0cb7c3ddb3d98f6d897d82

No more daycare. No more school. Time to homeschool 3 kids and take care of a preschooler. And now you have to take your medical practice and completely restructure it because you can’t do office visits anymore. And no one can help you because it’s a freaking quarantine. And did I mention the high conflict divorce I’m in? Yeah, those don’t improve with quarantine either.

And then we got sick. March 22nd, my four year old and I woke up with a fever, sore throat and cough. Exhausted, body aches, chills, no appetite. Then the other three kids got it. We didn’t qualify for COVID testing so I put us into complete isolation (actually considerably worse than regular quarantine life, believe it or not) and waited for it to pass. But it didn’t. The fever would sometimes for 24 or even 72 hours, but it always came back. We’re now on Day 33. I eventually coerced an urgent care into giving me a test despite not meeting criteria on Day 24 when our fevers went up higher than ever. The test came back negative but they told me false negatives were common and I should consider getting tested again. I consulted with my mentor, the best doctor I know. He said he thought it was COVID and a false negative. I agreed.

bodyHappenFever-1006577818-770x553-650x428

If you consider the other things in the differential diagnosis (cancer, rheumatoid arthritis, Epstein Barr virus, CMV, Lyme disease), none of them made as much sense as COVID.

And so, here we sit in isolation. Now, back to the Beast. I was in a lull of symptoms two weeks ago on Easter Sunday. I was sitting watching a local church service on my big screen TV while my kids ate their candy and watched their iPads, and a verse struck me.

A good man brings good things out of the good stored up in his heart, and an evil man brings evil things out of the evil stored up in his heart. For out of the abundance of the heart the mouth speaks.

And I realized my husband had ruined my relationship with God. Because that’s what abusive people do. They isolate you. From friends and family and, sometimes, if they’re really good at it, God. I realized how far from God I’d gotten, and how I couldn’t separate God from my husband and the harm he does. And I realized it was now time to stop. And I said hello to God again.

I realized something else that night as I stayed up late journaling about all my newfound epiphanies. I was ready to get in shape and lose weight again. But I needed something to focus on, a race. I thought of the Beast. But when I thought of it, my stomach dropped. I realized the thought of running it alone, without my husband, scared me. That I felt like his ghost would be haunting me the entire time. And most things that scare you, are the things most worth doing. And then it occurred to me. The timing of the onset of my autoimmune issues. I’ve always noted the cruel irony of it beginning right as I was to run an obstacle course race even harder than the Beast, that I’d trained for for so long. Right at my physical peak. My husband was going to run the Spartan with me just like he’d run the Beast with me. He jumped on the Beast wagontrain late in the game. He said he didn’t think I’d actually train and go through with it so he waited. Like it was such a big freaking honor to have him run it. He took something that was mine and made it his. He was jealous. And he was going to take the Spartan from me too. He had spent years complaining I was fat and had a flat butt but when I got in shape, he was so damn jealous, he did everything he could to undermine me. And he couldn’t let me have the Beast, my moment. I didn’t finish high in the Beast, mind you. I couldn’t do about a third of the obstacles. But I finished. And I was so damn proud. He acted proud too: proud of us, proud of his wife, of himself. His wife, not me. His possession that reflects on him. That was what he showed the world. A few weeks after we finished it, I put a “I Beat the Beast” bumper sticker on my car and he looked at it and said “You didn’t beat the beast. You didn’t finish all the obstacles.” And that, ladies and gentlemen, is what he shows his family. For out the abundance of the heart the mouth speaks. I stood up to him and told him I had finished and tried all the obstacles and that was a big accomplishment for me. He gave me a shitty look and walked off.

MasHNGXj_400x400

He took the Beast from me and my body wasn’t going to let him take the Spartan. Maybe that’s why it shut down. Maybe my heart called up my immune system and said, if he does it to her one more time I’m going to break. And my immune system said, ok, time for the Hail Mary. We will throw the switch and shut the whole plant down and give her some time to sit and think. And if she won’t walk away, we’ll leave her there sitting. And if she does, she’ll run it for her. And my heart blew my immune system a kiss and my immune system blushed. Maybe. Maybe it was a gift from my body.

So, I signed up for the Beast. And ordered a hoody. And the next day fruits and vegetable and water became a thing again at our house. Planning and cooking dinners because a nightly thing. And working out resumed for me and my kids too. Life was good. I was triumphant!

But then life happened. Our fever has taken up residence and work and homeschooling are getting harder instead of easier. Yada yada yada. I’m back down for the count. But I’m not cancelling the Beast. I am running it, come hell or high water or fever or economic collapse. Even if it takes me ten hours, I’m running it.

I cried a good bit during the Beast the last time I ran it. Cried for what Jeremy did to me, for what my school did to me, for what their mom having PTSD took from my kids, for all the other survivors I know who will never see justice like I did. I imagine I will cry this time too, for a whole other set of reasons.

My high conflict divorce has been nastier than ever this past week. We may soon go before the judge via teleconference (ya know, quarantine) and I am scared my husband will convince the judge he’s the guy out there bragging about his wife running the Beast, instead of who he really is, the guy denigrating his wife when she dared to be proud of herself. But this is not my first rodeo, dear reader. I have sat in court with a man who accused me of lies before and I have spoken the truth and justice prevailed. I will lasso the Beast again this time. And I will put on my hoody and take a run and thank my heart for being so damn good to me.

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That’s me in the corner, that’s me in the spotlight (or, the fault in our star)

03 Tuesday Mar 2020

Posted by in christianity, empathy, Evil, love, medicine, romance, Sin, Uncategorized

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losing my religion:  southern term for losing one’s temper, “flying off the handle,” going insane  etc. Note that the R.E.M. song of this title has nothing to do with religion, despite the common misinterpretation of the phrase.

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up

IMG_39BE05EDA837-1

I don’t remember which one became my patient first. I think it was Him. But it could have been Her. He was initially more memorable. He liked to show me pictures. Of his woodworking and antiques he’d restored. Of his boys. Of the squirrels they’d killed that year. I asked him not to show me the squirrels but he did anyway. She was quiet. Told me about the jewelry she made and the things she grew in her garden and foraged for in the forest. I do remember the day I realized they were a couple. That he was the he she talked about and she was the she he talked about. The “Ohhhhh” moment. The “oh wait, she’s *that* She and he’s *that* He!” It happens a lot in my rural practice. Six degrees of separation is not a thing in rural northwest Pennsylvania. It’s more like two.
*
They started coming to their appointments together eventually. They would tell me about their garden and their yard and the retaining wall they were battling to put up. And they would tell me about things addiction patients in rural northwest Pennsylvania tell you about. Meth and heroin and jail and stealing from the people you love and five year old kids calling 911 when their mom overdoses. They’d both been clean a long time, but everyone had relatives and friends still lost in it. They were no exception.
*
They gave me things. A piece of amethyst they’d hunted and extracted themselves. A small glass vase with a flower from her garden. She gave me gardening tips, foraging tips, taught me some herbalism.
*
They were always late. Always. That was a given. And that was okay. As long as they came. Sometimes they mixed up their days and we’d get a call a couple days later and fit them in the schedule for another day. I always held my breath until they called. Because you never know. You never really know if something didn’t happen and if they’re really all right.
*
And so it happened that they came in a week or so after their appointment in early February. I wasn’t at my office in northwest PA so they came to my office in Verona. Sam got to meet them for the first time. They got to see my other office, which is fairy tale themed. I knew she’d like it.
*
She wasn’t herself that day, though. She was sad. So damn sad. He had to talk for her for most of the appointment because she couldn’t stop crying. She’d been depressed. But it was more than that. She’d been having pain in her side a while now and it was getting worse. She’d gone to the ER and they’d drawn blood work which came back with an abnormality but when they tried to get an IV in so they could run some imaging tests, the nurse couldn’t get it. They kept poking her over and over and she ended up leaving the ER.
*
I asked her some questions to see if I thought she needed to go to the ER right now (it had been a couple days since leaving the ER and she hadn’t gone back yet). Based on her answers I told her I didn’t think it was an emergency but she needed to go back and get the test done. I said maybe she could try going to a different ER where the nurses were better. We talked about her depression and I started her on an antidepressant and told her to email me in a couple weeks to let me know if it seemed to be helping at all so we could work on the dosing.
*
I had a crystal sitting there. Malachite. A pretty dark green stone. I’d been feeling for a couple of days I was supposed to do something with it. An odd feeling kind of hard to describe. Like, restlessness. But with a stone. And before she left I took it and said, here, I want you to have this. And she told me she had something for me too. It was a necklace she’d made but she’d felt timid about giving it to me. But when I gave her the crystal, she said, she felt okay to give me the necklace.
*
He said, (or maybe she said?) that it was fitting because it had a star on it and pointed to my walls. The room we were in has a Sleeping Beauty theme and is covered in stars. (It is based off something I wrote about kids with PANDAS battling the disorder and emerging from it, like sleeping beauties waking up). I took it and told her I loved it. And I did. When I went to put it on, the chain broke, so I put it in my pocket. My back jeans pocket. And we walked out together and said our goodbyes. And Sam said they were sweet and I said I was worried about her. And I was.
*
Somewhere between there and my kitchen, I lost it. The necklace, that is. I realized it later that night and told myself, it’s here somewhere. It’s not gone. It hasn’t fallen off planet Earth. You’ll find it (this is the same thing I say to my children when they are panicking over something they’ve lost. I find it is helpful to give myself the same talks I give them pretty often). I looked a couple places I thought it must be (the cubby over my coat hook by the front door, the back pocket of those jeans I’d since thrown in the hamper) but it wasn’t. Over the next few days I looked a few other places and it wasn’t there either. I tried to remain calm.
*
Then a week later I found it. I was trying to dig a quarter out of my left coat pocket for a cashier, in line ahead of a grumpy resentful old man in the Giant Eagle “12 Items or Fewer” lane and I pulled it out instead. I was relieved. He didn’t care. At all.
*
I went to coffee with a friend that morning (please note: this is a rare occurrence) and stopped in at the crystal shop across the street (please note: this is not a rare occurrence). It had been quite a while since I’d received that amethyst. A lot had changed. And I now frequented the local crystal shop (thus, the malachite). I was browsing on this particular day and saw a necklace with a stone in it that looked like the one my patient had given me. I excitedly drew the necklace from my left pocket and held it up side by side to the other and they were an exact match. I told the women in the shop the story of the necklace and asked what the crystal was. They told me and I asked if I could take the little card that had the name of it and its meaning and they said yes. And they said how sweet it was my patient had made me a necklace. And I said, yes she’s very sweet.
*
The next day I was answering the phone (Sam was out of town and I was like a dad on a laundry detergent commercial, drowning in ineptness with a lost look on my face, trying to perform basic office functions). I was relieved when a familiar voice spoke back to me. It was him. And then it happened. One of those moments. One of those moments that create a Before and After in your life. He told me she had cancer. One of the really bad ones. There’s no such thing as a good cancer. But there are such things as really bad ones. That’s what she had. I stopped breathing for a few seconds. Parastalsis slowed. I got goosebumps (the medical term for that is piloerection. It’s the same thing that makes a porcupine’s quills stand up when it sees a predator. It’s supposed to make us look bigger and scarier, in theory. It does not, in practice). In my head I thought, “Fuuuuuuuuccccckkkkk.” I did not say this to him. I asked how she was. I asked him a series of questions trying to get more medical type details. I tried to get him to say something that would make me realize he’d gotten it wrong and it wasn’t actually cancer. It didn’t work. He said she was resting but I should call her later. I said I would. Even though I was scared to. Because there’s nothing really great you can say. Because you’re a doctor and you’re supposed to fix people and this is not something you can fix.
*
Her palliative care doctor called a little while later while I was on the other line with someone considering making a medical marijuana appointment for anxiety. They had a hundred questions and, in the end, said they’d call back once they decided what to do. I listened to his voicemail and frantically wrote down his number and called him right back. He was nice. God help me, he was a genuinely nice, caring doctor. If you knew doctors like I know doctors, the way they actually talk when there aren’t patients around, you’d know how rare a thing that is. He hadn’t seen her yet (the appointment was for the next day) but he wanted to touch base with me since I prescribe her a controlled substance and his role was pain management (also prescribed substances).
*
When I talked to her that night (well, to her voicemail), I let her know the pain doc was good people and would take good care of her. And he did. We have texted and talked since then, each step along the way, She and I. He and I. And even the palliative doc and I. There is more to it than this, various details you might not expect. But the heart of it is this: a really beautiful human being is sick with something she likely won’t survive. She is in a lot of pain. And the man who loves her is doing an amazing job supporting her through it. He is an unlikely romantic hero. Not a sappy, trite one. A genuine romantic hero. And she is a warrior. Strong and smart and intuitive and kind and creative and honest. And she is so damn young. Too damn young for this shit.
*
And so it was that I came to wear a star necklace everyday (I ordered a new chain for it the day he called with the news. I kept it in my pocket until the chain arrived). And so it was that I came to wear that necklace the night I ran into a good Christian I know.
*
The Good Christian looked at it in horror. Genuine fear in his eyes. And he said, “Have you lost Jesus?” He was distressed. I looked at him and said, “What?” And he pointed to my necklace and said it was a witch’s necklace, a Wiccan necklace. I said, it’s a star. A patient made it for me. That doesn’t mean I’ve lost Jesus. He looked… freaked the hell out.
*
And I thought of the word the palliative care doctor had used when he told me about her CT scan. Innumerable mets. Meaning, the cancer had spread to so many spots, the radiologist gave up counting. I remember when he told me that I wondered, at what point do they stop counting? 10, 20, 100? Maybe that particular radiologist was lazy and she really only has 3. But that’s not likely. When he used that word, innumerable, the hope I’d held out faded away. And I began to focus on how we could all support her in finding peace and being comfortable and doing the things with her last months she’d like to do. Because, lets be honest, doctors very rarely actually fix patients anyway. So maybe this very nice palliative care doctor and I could help her with these things. Hopefully I could be of use.
*
I thought of that word, innumerable. And I thought of the cancer growing inside her. And about how brave she is. And how sweet her he is. And I looked at this Good Christian and saw something in him. A different kind of cancer. One with innumerable mets to the soul. Dark and sticky. Inoperable. Incurable.
*
And I thought, this patient knows more about Jesus than you ever will. Because Jesus is love. And she is full of love. And she has brought joy and love to so many people. And she will keep doing that. Despite it all. She will keep inspiring other people to love. And she knows that I love her. And she lets me love her. And loves me back.
*
And that, dear reader, is not something the Good Christian is capable of. Not something he even understands. And that is why a necklace can inspire a look of dread and disgust in him. A star. An innocent little star.
*
I told my kids a bedtime story tonight. The boy in the story was looking up at the night sky when a shooting star appeared. My daughter got so excited and was urgently shouting “make a wish quick! Before it’s gone!” She was nervous the boy in the story would miss it. Because everyone knows if you make a wish on a shooting star, it comes true. Because that is what stars are for. To wish upon, to make our dreams come true as we sleep beneath their lovely glow. They’re magical. And shooting stars? They’re actually little burning meteors,  magical, glowing rocks. Kind of like amethyst or malachite.
*
If taking comfort in that means I’ve lost Jesus, dear reader, then consider me lost. Because not every sleeping beauty wakes back up at the end of the story. Sometimes her true love kisses her goodnight one last time. And releases her to shine down on us and remind us of who we are, innumerable stars in an endless universe connected to one another always.

 

***

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
Every whisper
Of every waking hour
I’m choosing my confessions
Trying to keep an eye on you
Like a hurt lost and blinded fool, fool
Oh no, I’ve said too much
I set it up
Consider this
Consider this
The hint of the century
Consider this
The slip that brought me
To my knees failed
What if all these fantasies
Come flailing around
Now I’ve said too much
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
That was just a dream
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
Try, cry
Why try?
That was just a dream, just a dream, just a dream
Dream

Good Friends Are Hard to Find (or, My Brother from Another Mother) (or, Tacos Fall Apart Sometimes and We Still Love Them)

01 Sunday Mar 2020

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It’s the Kalenda of March today. You may have heard of the Ides of March (especially if you took Latin at Indiana Senior High like I did) but probably not the Kalends of March. It is the first day of the month. It comes from the same roots as the word calendar (thank you, Latin class. You rock) and was part of the newly formed Roman calendar which was no longer lunar like all those before it (see, for instance, the Hebrew calendar which leads to holidays falling on different days each year). The lunar year is made up of equal months that follow the waxing and waning moon. The Roman calendar had to make up the idea of a Leap Year to reconcile its imperfection.

And so here we are on the Kalends of March, the day after February 29th. That pesky day that tries to make up for the illogic of the Roman calendar. The moon and it’s cycles have always been linked to the Divine Feminine and Nature, so it is no surprise the Romans wanted it squashed. 

March is my birthday month. I will be 41 on the 24th, a few days after the spring solstice. My 40th year has been intense, to say the least.

Some good, some bad, most of it both. 

With me through all the ups and downs have been a few people I managed to stay close to despite the relative isolation I found myself in in recent years. One is a wonderful fellow PANDAS mom, one a good friend from college who was with me through the Jeremy ordeal, and one is my friend and coworker, Sam (he says I can tell you his name. I always get consent, dear reader).

Sam came to my practice at the suggestion of my husband. He recruited him. And for that I am eternally grateful. Sam is warm and sunny and kind and just fills you with positive energy from the second you meet him, whether by person or over the phone as many of our patients do. I cannot tell you how many patients pause in their appointments and say, I have to tell you Sam is wonderful. I say, oh I know! And they look at me very seriously and say, No, I mean it. Truly wonderful, (as though I’m not convinced) I was so nervous when I called here and he made me feel so comfortable and so much better. Never let that one go! I’ve even had patients try to hire him away from me (no joke). They send him chocolate covered strawberries and give him birthday gifts. When I told our grove city patients, who have only talked to Sam on the phone since he doesn’t come up to the grove city office with me, that he was coming up in March, it was like I’d told them a celebrity was coming. The excitement was palpable and real. 

Sam was with me through a lot this year and always there however I needed him to be. He never tried to tell me what to do as I tortured over some big decisions. He listened. He heard me and allowed me to talk it out to figure out the answers I already knew deep inside. He laughed with me. He sat with me as I cried. We drank champagne sometimes; other times we talked about how damn unfair some of our patients lives are and how we wish we could do more. 

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More than once he has run something badly needed to my house at 10 at night (not sure what my neighbors thought he was putting in my mailbox but I can assure you it was all perfectly legal). More than once he has either run my son Mies to school when he missed his van, run my office with me completely unavailable tied up in court, run inconvenient errands for me or ordered me rose water pistachio ice cream (vegan if course) when I really really needed it (and run it over to my house of course. The man runs). 

Sometimes we bitch about men together, even though Sam is a man. Sometimes he lets me bitch about women to him, even though I am myself in fact a woman. I know there’s nothing I can say to Sam that will make him judge me or love me any less. (Well maybe there’s something but it would have to be pretty extreme). 

Sam has reminded me I am a good person. That there are parts of myself I’ve pushed down so many years that deserved to rise back to the surface. That it’s okay to be a contradiction. That it’s okay to not be okay. Because everything is going to be okay. And it is. 

So it is not just female friendship I am reveling in now. The Divine Masculine and Divine Feminine are in us all. We must embrace both. Sam does that beautifully. He is a fabulous moon, orbiting with me. I no longer orbit any person. But I make my way through space , through the cycles, pulling the tide in and out, with some wonderful fellow celestial bodies. You can keep your Leap Day. We will take the solstice and the mother moon (and some champagne lunches from time to time).

June 19, 2008 (or, Tequila!)

19 Tuesday Jun 2018

Posted by in kids, love, marriage, medicine, my awesome husband, PTSD, Rape, Uncategorized

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It was raining this morning as I headed out for my run. Ten years ago on this day, though, it was hot and sunny. I know this because I can remember the beads of sweat rolling down the back of my legs as I sat in my green minivan in that long, heavy, black Land’s End skirt I’d bought on clearance a few weeks before. My air conditioner was broken and the van churned out warm air as I sat staring down at my phone.

I’d programmed the phone number for the Pittsburgh field office of the FBI into it a couple months before under the name “Hope.” It was finally time to call. I knew he might kill me. Knew he might kill my two boys. Mies had just turned 4. Max was 2 1/2. I asked God to please protect them but told Him if something happened to them, I knew it just was what it had to be. I had to turn him in. I could never face my babies again if I didn’t. I didn’t want them to live in that kind of world. Abraham, I am feeling you, brother.

I operated purely through adrenaline at that time. Until he was arrested in August. And released on bail to a local podiatrist. And jailed again since he, ya know, had threatened to kill me and my kids and all. And then as I fought to stay in school as my med school slut shamed me and tried to get rid of me. Once the adrenaline stopped flowing continuously later that Fall, the real hell began. PTSD.

I wanted to give up but I somehow got to a place where I told myself, this isn’t it. Someday things will get better. You will watch your babies grow up. You will become a doctor and take care of your patients. You might even get married and have more babies. Maybe a daughter. Maybe. I fought off the hopelessness. I convinced myself there was possibility.

Here I am ten years later. With five beautiful kids (including a sassy-sweet daughter). With a handsome, devoted husband. With a practice of my own, complete with amazing patients I care about more than I knew I could. Healed of my PTSD. Having forgiven Jeremy and even Sylvia, the head of my med school, and all those professors who betrayed me. Training for a semi-impossible obstacle course race with my husband and a trainer, for goodness sake. A trainer. More than I dreamed possible.

I am so grateful to God my babies are alive. That I am alive. That I am a doctor. That I have the husband and kids I do.

I skipped work today and drove through the country to Deer Lakes park to go running. The rain and grey gave way to fluffy white clouds and sunshine in a beautiful blue sky. I held my hand out the sunroof as I drove. I felt the sweat run down my legs from my run as I drove.I sang along to Tequila! like a fool. I’m sure I looked and sounded ridiculous.

I pray the little girls he hurt find the peace I have. I pray he does too.

I am so grateful for today. I am alive, I am free. Thank you God.

Tequila!

Fish oil and marshmallow foldovers will be served at our Gala banquet

10 Saturday Feb 2018

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I had fish oil the other day for the first time in a decade. I’d bought an especially high quality one called OmegaCure for my two littlest ones who can’t swallow pills and was excited when it arrived. It is flavorless according to what I’d heard from my sources and I was hopeful I could get it past them. I made them each a peanut butter and marshmallow foldover and put a glug in between the peanut butter and mini marshmallows. They gobbled it right up. Now, marshamllows are such a treat for them it’s possible I could have put just about anything in there and they’d still have inhaled it. But I was pretty confident it was due to the true flavorlessness of the oil. The next morning I opened the fridge to get some berries out for my morning smoothie and the beautiful glass bottle of golden oil was there shimmering at me. I thought, why not put a tablespoon in my smoothie? And I did. And I drank it. I ran into the laundry room and excitedly told my husband the news.

“I had fish oil!”

Silence

“I had fish oil! For the first time since 2008!”

Silence

More laundry folding

“Ya know?”

Silence. Folding,

“Since Jeremy. I couldn’t take it because of the trauma…”

“Ok good.”

Clearly not something that broke his usual daily laundry folding routine

For me, it’s a big deal. For me, the question “why not put a tablespoon in my smoothie,” has a lot of answers.

The first time I asked that question and ended up vomiting was in 2012. I was pregnant with my daughter Lena and knew I should be taking fish oil heavy in DHA for brain development. It was even more important for me than a lot of moms because I already had a son with autism and malformation of his brain and optic nerves which meant any baby I carried was at higher risk for having issues and needed the best possible start, including fish oil, folic acid and vitamin D. I managed the vitamins fine but the fish oil did me in. When my husband asked me why I wasn’t taking the fish oil capsules he’d gotten me, I had to admit to myself I wasn’t throwing them up because I was pregnant. It was because of *him*. Jeremy. The Ordeal.

No big story attached to it. Jeremy made me take fish oil capsules daily, amongst his other weirdities. Some people are health nuts. He was a health sociopath.

I’ve attempted fish oil a few times since then and it was always a No Go. Couldn’t bring myself to swallow them. The one time I forced myself to swallow them and keep them down, the resultant fishy burps sent me into a daylong relapsing remitting flashback. From that point on, I decided I was going to concede the battle for fish oil. We lose certain things to trauma. It just is. You have to fight to save the things that really matter but you have to learn to let go of the things you can afford to. Lose the battle, win the war. And all that.

But as I stood peering into my fridge this week, that fish oil looked so lovely. (Like nectar collected by little hummingbirds and their magical fairy friends. I’m not kidding. See for yourself, it’s gorgeous.)And I know my kids need me healthy. And so, I figured, why not? What’s the worse that could happen? A day of fishy burp induced flashbacks again? I’ll live.

No fish burps and no flashbacks. It was a little hard to get myself to drink it, I admit. I’ve never been so afraid of a smoothie. But my two littles were sitting there with me at the table watching and I knew I had to play it cool. So down the hatch it went. And stayed.

2018 is a big year as far as my trauma goes. A decade since the trauma started, since I turned him in, since his arrest, since my school initiated their illegal persecution of me for my decision to turn him in, since I got the school’s suspension overturned, since the PTSD began.

It’s not a sad thing. It’s a triumphant thing, I’ve decided to call it my Gala Year. The resumption of fish oil is just the beginning. There’s going to be a whole calendar full of activities commemorating the events, remembering the heroes and making sure it doesn’t happen again.

I was looking for a race to run today. Now that I’m taking fish oil, by God, I ought to be ready to start running again and eat healthy and all that, right? It’s going to take a good while to get me in shape so I Googled “races november 2018 pittsburgh” to give myself ten months. I happened upon one of those obstacle races which I’ve always had an interest in despite being painfully uncoordinated. And it was a charity run for a group that serves people for autism. Perfect, I thought, I can motivate myself to run by raising money for autism. But then when I looked into it further, it wasn’t in November and wasn’t in Pittsburgh after all (thanks Google). It’s called the Beast on the Bay and it’s on Presque Isle in September. Presque Isle, Erie PA. The city of My Ordeal. The home of Sylvia Ferretti. She who sought to shame me out of being a doctor.

And so, please note on your calendar of Gala Year events, the date of September 8th. I will be completing the Beast to raise money for autism services and for The Exodus Road, a nonprofit group that rescues sex slaves throughout southeast Asia, India, and the US using a network of covert surveillance teams and individuals. (i.e. Jeremy Hunters). It will be my first time returning to Erie since his trial in February of 2011 so I imagine there were will be other Gala events added to the calendar for that weekend. Be sure to stay tuned.

2018 will mostly be comprised of healing my children of PANDAS and building up my practice. Of watching my Auggie learn to speak and sending my Lena to kindergarten. Seeing my Max become an excellent cellist and trying not to ball my eyes out on my Mies’s first day of high school (getting dizzy just typing those words). Fighting for my PANDAS patients’ recovery and learning all I can to defeat the Bear once and for all. But it will be my Gala Year too. Let the festivities begin.

“I’m sorry but I can’t look you in the eye because you remind me of my rapist. Nothing personal. I’m just fairly terrified right now.”

23 Tuesday Jan 2018

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I went into a patient room at my urgent care day job today to see a patient with chief complaint “sinus symptoms.” A routine visit, I was in and out in 3 minutes flat. It’s a very mechanical process when you’re seeing 50 a patients today, 95% of whom have one of ten diagnoses seen over and over. I walked in, though, and said, “I’m Dr. Spaar. I understand you’ve been having sinus symptoms,” as I always do. And I turned and got some hand sanitizer from the pump om the wall as I always do. And turned around to face the patient as I always do. And I’m sure he said something like, “Yeah it’s just all this pressure right here,” and he probably gestured to his face like patients always do when they present with a sinus infection. But I didn’t hear him.

Something about him, something about the look he gave me, reminded me so much of Jeremy. The look in his eyes. My stomach dropped. My body went numb. My heart started racing and things started closing in and going black. I quickly moved away from him to get the otoscope off the wall as he talked. I couldn’t look at him, at his eyes. And I needed a moment to panic without him seeing. I went about examining his ears and sinuses and lungs and asked the questions I was supposed to. I finished as quickly as I could and told him his diagnosis and plan and escaped the room. I did not look him in the eye.

And afterwards I found myself thinking, I wish I could have just said to him, “I’m sorry but I can’t look you in the eye because you remind me of my rapist. Nothing personal. I’m just fairly terrified right now.” It would have made me feel better, I think. And if rape survivors did this, wouldn’t the world be a better place? Why do we carry the burden alone? I think about what he did to me daily and yet there are so many people allowing themselves the comfort of pretending rape and child trafficking are not common. And it will never end as long as so many people remain so comfortable.

And maybe I’m wrong about this patient. Maybe he’s a rape survivor too. But rape is a systematic method of oppressing women and so I speak of women here as survivors and men as perpetrators and those conspiring in silence. Because statistics.

I rarely get triggered these days. It was a small blip in my day. But so many women are not as lucky as I am. They are living in the day in day out hell of PTSD. It is holding them back from who they are supposed to be. Creating a space for mediocre men to take the rightful place of exceptional women in many cases. Very few women in my situation would have graduated medical school, gotten a residency and graduated it as well. How many women have dropped out of college and grad school because of rape? How many have set aside ambitions and settled for a small life? And how many men have benefitted from this?

Perhaps the next time this happens I will tell the patient what I am feeling and why. And perhaps he will complain and I will be reprimanded. But I have learned long ago it is the keeping quiet that destroys your career, not the speaking out. Because it is the keeping quiet that takes your soul. There will always be another way forward even if your school or your job or your family or your husband reject you. Silence will eat you from the inside and take it all away. You will pretend at being alive until you can’t anymore.

And so perhaps next time I will tell the patient what I am feeling and why as I go about examining his sinuses and writing his prescription. Because a life of silence, however small, is not living.

Aluminum and gold

21 Thursday Dec 2017

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The CBS national news is featuring a story today that I appeared in as a PANDAS expert. PANDAS is a medical condition affecting kids where their immune system attacks their brain when they get sick and gives them things like tics, OCD, anorexia, rage and cognitive impairment. It’s vital that awareness is raised because so many kids get misdiagnosed and don’t get the treatment they need.

Check it out here

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End of PSA. Here’s the deal:

The story is a personal vindication for me. After my trauma, the story-slash-international-sex-scandal hit the AP wire and was featured in national and international news. It was not a flattering story for me. My name isn’t mentioned; I’m called simply, Noyes’s sex slave (should have read RAPE slave. there I fixed it for them). It led to a public shaming that contributed to my chronic PTSD settling for seven long years.

The head of my med school said I’d never be a doctor because of my moral failings. Not only am I a doctor (make that, an expert) but I am using my degree to fight the good fight. Quite the opposite of what she uses hers for.

Forgive them Lord for they know exactly what they do and do it anyway but you are a merciful God. Good way to flex your mercy muscles.

2017 is drawing to a close and here I am again, writing another reflective end of year post. I haven’t written in this blog in quite some time as I have a blog on my medical practice’s website now. This blog is really about trauma (although that’s not what I intended when I started it. Life’s funny that way I suppose). It’s about trauma in general and about one trauma in particular. The trauma Jeremy brought to me that cold snowy winter of 2008.

The trauma started January 2008. I began healing in January 2009. I got the subpoena written out by he himself to testify at his trial January 2011. I had my final healing from PTSD January 2015. And so…. January. January is coming again.

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It will be ten years since The Ordeal. An anniversary. What are you supposed to give as a gift for your tenth anniversary? I looked it up and it said tin/aluminum for traditional and diamond jewelry for the modern gift tradition. It’s too bad I skipped our ninth anniversary because that one’s leather (get it? He was into BDSM. Leather. Get it? It’s ok. You can laugh. Or look at me awkwardly. You do you)

So what should I get to commemorate the occasion? A tin man? A Coke can? Perhaps an aluminum foil hat to block aliens from stealing his thoughts?

The thing I have in common with him is that he and I both think about The Ordeal everyday of our lives without fail. No one else does. Not consistently. Not without prompting.

My relationship with Jeremy has changed over time but I will always have one with him. From Stockholm Syndrome to fear to anger to forgiveness and then back and forth a few times. To compassion. Ok, sarcastic compassion at times, but compassion nonetheless.

My husband is reading a book about domestic violence right now and we ended up having a conversation last night about the importance of being able to confront an abuser and bring them to task.

“Did you ever do that with Jeremy,” he asked me

“No. I sent him to prison for the rest of his life. I really didn’t need to say anything”

“No but did you ever assert yourself with him verbally. In the courtroom maybe? I wasn’t there when you testified.”

“No… no. He was completely out of touch with reality. He said “I forgive you.” to me”

Eric continued on about the importance of this confrontation of the abuser and I interrupted him and shut him down. Just… no. No. This conversation wasn’t happening. I had no energy for it.

His point was that Jeremy needed that in order to come to terms with what he’d done. Bullies will never change if no one stands up to them. My point was that Jeremy is delusional and believes my sister and I orchestrated a grand conspiracy to frame him with the entire FBI backing us. He honest to Jesus Joseph and Mary believes that raping little girls is actually good for them, so… I’m really not seeing this asserting myself thing doing a whole lot. And quite frankly, if sitting staring at prison bars for 45 years doesn’t cause you to do a little soul searching, I’m pretty sure a sassy physician confronting you ain’t gonna do it either.

He continues the discussion of abusers as bullies and you need to stand up to bullies and all that and my mind wanders back to the courtroom. Back to the bedroom. Bitter, grey Erie. That uneasy feeling in my stomach. That fight or flight in my muscle fibers. In my eyes, always darting, scanning for danger. As it laid next to me.

There was a discussion at work today about what each of us would do if we won the lottery. Conversation drifts to the importance of buying land as it’s a limited resource and I find mySelf saying “or gold.” They begin discussing the merits of gold versus silver for price stability and my mind wanders back to the gold shop in Erie.

Jeremy was fixated on buying gold. He thought he could make money buying and selling it. He watched the gold markets obsessively. He never slept. I remember that. He was up all night on his computer. Barely slept. He watched the markets and talked to Alex in New ZeLand and researched evil.

He thought he was amazingly smart. Smart enough to outsmart the police. Smart
enough to make it rich buying and selling little gold bars. (Spoiler alert: he’s not)

At some point in The Ordeal he had me take my money and buy gold. I lived off student loans At the time so the money I was to live off of was dispersed in two
payments: one in August and one in January. He had me lend him this money I had set aside to live off of later in the year so he could buy gold. He would then sell it back and pay me back and keep the interest I suppose. I don’t remember the details. I remember very little about it. I remember driving to the bank near the Moe’s to withdraw the money (Welcome to Moe’s!)

I remember sitting in the Cheesecake Factory with my sisters that spring and mentioning the gold to them. I remember the look on my sister’s face and the way she spoke. She spoke to me the way you’d speak to someone holding a gun in their hand about to shoot. She looked horrified. She spoke calmly and slowly. She told me I needed to sell the gold back and put the money back in my savings account. I told her I would. I was glad she wasn’t angry. I was worried by the way she’d talked. Was I crazy, I wondered. She talked to me like I was crazy.

I remember insisting Jeremy give me the gold back in June. He said, the price of gold has gone down. You should wait and I’ll sell it and you won’t lose money. But I insisted and he complied. I don’t know what excuse I gave him. It worked. That’s all that matters.

I needed to get the money back because I was turning him in. Soon the government would seize his assets. I remember sitting there in the minivan with the broken air conditioning outside the gold shop in Erie. Sweating in my heavy black Land’s End skirt.

I still have that skirt. Still looks good. Damn good quality skirt.

Purple scrubs now, standing in urgent care a few lifetimes later. I walk away from the lottery discussion to work on notes. The memory of the Cheesecake Factory is unsettling. It fills me with shame. What decisions I made at that time of my trauma were mine and which were not? Maybe I would have done something crazy like buying up gold even if I hadn’t been in a situation where he controlled me through force.

If so, do I deserve to feel ashamed? No. I remind myself of this. I take a deep breath and let the shame go. Sort of. Hey, life’s a process. Don’t rush me.

So maybe I should get Jeremy something gold for our anniversary? No. Gold was a mistake. I’ll definitely stick with aluminum this time. Maybe foil for the rabbit ears on the prison TV so he can learn about PANDAS and the good fight.

13 years

03 Wednesday May 2017

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I am sitting here reading immunology. Cytokine storm, interleukin-1, natural killer cells. I am doing the thing I have been doing for almost 13 years now. I am trying to fix my babies.

Autism and PANS and Lyme and on and on. Their immune systems have betrayed them. They are attacking their own brains. I must stop the marauding hordes. I must. I’m their mother, after all.

I decided to become a doctor almost 13 years ago. Soldier Boy was a few months old. He’d already had more medical tests and seen more specialists than most of us will see our whole lives. Diagnosis after diagnosis. The idiot doctors couldn’t see he was perfect.

He was perfect. He is perfect. But, he’s not. His body betrays him.

I decided to become a doctor for a lot of reasons. Some noble and some not so much. One of the reasons I became a doctor was because I wanted to fix my son. I wanted to save my perfect baby from the many sicknesses he’d been born with.

I had his little brother while I was studying to apply to medical school. He was different. He was not sick. No tests, no specialists. He never even got a cold or had a fever. Ever.

Then, when he was 3 1/2 he stopped eating and began threatening to kill us and… you can read about it here. He got PANS.

Doctors have been no help. I am now finally a doctor all these years later. Almost 13. And now it is my job to figure things out, to help them, to fix them, to save them.

And so I am sitting up, exhausted, reading through immunology slides trying to understand the autoimmune nature of autism. Trying to understand the things I can do for Lyme triggered PANS that has been going on for eight years.

Innate immune system, cellular immunity, microglial activation, …

As I sit looking at the diagrams of these various immune processes, they are familiar to me. You learn so much in medical school they say it’s like drinking from a fire hydrant. You retain the things you use in whatever specialty you wind up in. But I am finding now the things you haven’t thought of in 10 years come back quickly when you need them.

Ten years ago I sat studying Immunology in my living room in Erie. Its a very clear memory. Sitting in the large overstuffed brown arm chair next to the end table with the touch lamp. The same end table I’d placed our Little People manger scene on at Christmas time. We lost baby Jesus and I replaced him with a Matchbox car because… because little boys. The chair was in front of the big bay window where my boys would climb up excitedly when the garbage truck came by.

I remember so clearly sitting there reading my Immunology book the night before the exam. I was behind on studying and I was excited it was clicking. I think I will do well on this test, I thought.

I was behind on my studying because of The Ordeal. Because of Jeremy. I failed the exam the next day.

Amazingly, the unit after that, Neuroanatomy, I rocked. It was considered the hardest course of first year. I was being actively traumatized by a sociopathic sadist, and I somehow managed to kick some ass. I’d gone from scared to pissed off at that point. I’d decided I was going to find a way to turn him in no matter what. Once I got to that place in my head, focusing on studying wasn’t a problem. I’m very good at compartmentalizing my mind when it’s required

But Immunology, I failed. And so I had to remediate it that summer. Immunology and Pharmacology. He did too. I saw him there. It was in those two weeks of remediation that I turned him in. I passed the remediation exam. And then went and turned him in. I was busy.

For so many years this trauma has been at the center of the story I tell of myself. Not so much to other people but to myself. For years it made me believe I was worthless. And then I entered recovery and I became defined as a survivor. Each step closer to becoming an attending physician was marked with a “screw you Sylvia” (Sylvia being the head of my med school who slut shamed me and tried to kick me out) and a “you’re in jail, Jeremy but look at me”.

I had come to accept this. But now, it isn’t true anymore. It isn’t the biggest part of my story.

Being a doctor was always about my boys. And now it is again. They’re the reason I fought to stay in med school when Sylvia was trying to force me out, heaping degradation on me. They’re the reason I stayed up til 2 in the morning studying organic chem long before I ever met Jeremy Noyes. They’re the reason I have started my own practice now. The thing I have been dreaming of for almost 13 years.

In some respects, it is easier to have rape and torture at the center of your story than to have your sick babies there. What mother wouldn’t rather endure suffering herself than to see her babies suffer? But we are not put on Earth to choose the easy path.

I named this blog I’ll Sleep When I’m Dead when I was in residency working 90 hour weeks, 36 hour shifts. But the truth is, for doctors, the sleepless nights and exhaustion pretty much end when graduation day comes and attending life begins. For autism moms, there is no graduation. There is no finish line. We really will wait our whole lives for a sound sleep.

I went into medical school to become a different kind of doctor than the ones my son had. Condescending, close minded, clueless. I went undercover. Deep cover. And I unavoidably lost my way. Drank the Kool-Aid because there really is no other way to make it out alive.

But I’m on the other side now and I remember who I was. I am an autism mom who became a doctor. I am an autism mom. I am an autism mom who knows immunology and pharmacology and neuroanatomy. I am an autism mom who gave her soul and body and mind and heart for her medical degree. And I have it. And *that* is the story of me. Jeremy and Sylvia were mere diversions.

I am going to help my children and my patients. I am going to speak out and challenge all they do that is wrong. I am going to sleep very little. Because that’s what autism moms do.

Good night. I have some reading to do.