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13 years

03 Wednesday May 2017

Posted by in autism, doctors, kids, love, medicine, PTSD, Rape, special needs, Uncategorized

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I am sitting here reading immunology. Cytokine storm, interleukin-1, natural killer cells. I am doing the thing I have been doing for almost 13 years now. I am trying to fix my babies.

Autism and PANS and Lyme and on and on. Their immune systems have betrayed them. They are attacking their own brains. I must stop the marauding hordes. I must. I’m their mother, after all.

I decided to become a doctor almost 13 years ago. Soldier Boy was a few months old. He’d already had more medical tests and seen more specialists than most of us will see our whole lives. Diagnosis after diagnosis. The idiot doctors couldn’t see he was perfect.

He was perfect. He is perfect. But, he’s not. His body betrays him.

I decided to become a doctor for a lot of reasons. Some noble and some not so much. One of the reasons I became a doctor was because I wanted to fix my son. I wanted to save my perfect baby from the many sicknesses he’d been born with.

I had his little brother while I was studying to apply to medical school. He was different. He was not sick. No tests, no specialists. He never even got a cold or had a fever. Ever.

Then, when he was 3 1/2 he stopped eating and began threatening to kill us and… you can read about it here. He got PANS.

Doctors have been no help. I am now finally a doctor all these years later. Almost 13. And now it is my job to figure things out, to help them, to fix them, to save them.

And so I am sitting up, exhausted, reading through immunology slides trying to understand the autoimmune nature of autism. Trying to understand the things I can do for Lyme triggered PANS that has been going on for eight years.

Innate immune system, cellular immunity, microglial activation, …

As I sit looking at the diagrams of these various immune processes, they are familiar to me. You learn so much in medical school they say it’s like drinking from a fire hydrant. You retain the things you use in whatever specialty you wind up in. But I am finding now the things you haven’t thought of in 10 years come back quickly when you need them.

Ten years ago I sat studying Immunology in my living room in Erie. Its a very clear memory. Sitting in the large overstuffed brown arm chair next to the end table with the touch lamp. The same end table I’d placed our Little People manger scene on at Christmas time. We lost baby Jesus and I replaced him with a Matchbox car because… because little boys. The chair was in front of the big bay window where my boys would climb up excitedly when the garbage truck came by.

I remember so clearly sitting there reading my Immunology book the night before the exam. I was behind on studying and I was excited it was clicking. I think I will do well on this test, I thought.

I was behind on my studying because of The Ordeal. Because of Jeremy. I failed the exam the next day.

Amazingly, the unit after that, Neuroanatomy, I rocked. It was considered the hardest course of first year. I was being actively traumatized by a sociopathic sadist, and I somehow managed to kick some ass. I’d gone from scared to pissed off at that point. I’d decided I was going to find a way to turn him in no matter what. Once I got to that place in my head, focusing on studying wasn’t a problem. I’m very good at compartmentalizing my mind when it’s required

But Immunology, I failed. And so I had to remediate it that summer. Immunology and Pharmacology. He did too. I saw him there. It was in those two weeks of remediation that I turned him in. I passed the remediation exam. And then went and turned him in. I was busy.

For so many years this trauma has been at the center of the story I tell of myself. Not so much to other people but to myself. For years it made me believe I was worthless. And then I entered recovery and I became defined as a survivor. Each step closer to becoming an attending physician was marked with a “screw you Sylvia” (Sylvia being the head of my med school who slut shamed me and tried to kick me out) and a “you’re in jail, Jeremy but look at me”.

I had come to accept this. But now, it isn’t true anymore. It isn’t the biggest part of my story.

Being a doctor was always about my boys. And now it is again. They’re the reason I fought to stay in med school when Sylvia was trying to force me out, heaping degradation on me. They’re the reason I stayed up til 2 in the morning studying organic chem long before I ever met Jeremy Noyes. They’re the reason I have started my own practice now. The thing I have been dreaming of for almost 13 years.

In some respects, it is easier to have rape and torture at the center of your story than to have your sick babies there. What mother wouldn’t rather endure suffering herself than to see her babies suffer? But we are not put on Earth to choose the easy path.

I named this blog I’ll Sleep When I’m Dead when I was in residency working 90 hour weeks, 36 hour shifts. But the truth is, for doctors, the sleepless nights and exhaustion pretty much end when graduation day comes and attending life begins. For autism moms, there is no graduation. There is no finish line. We really will wait our whole lives for a sound sleep.

I went into medical school to become a different kind of doctor than the ones my son had. Condescending, close minded, clueless. I went undercover. Deep cover. And I unavoidably lost my way. Drank the Kool-Aid because there really is no other way to make it out alive.

But I’m on the other side now and I remember who I was. I am an autism mom who became a doctor. I am an autism mom. I am an autism mom who knows immunology and pharmacology and neuroanatomy. I am an autism mom who gave her soul and body and mind and heart for her medical degree. And I have it. And *that* is the story of me. Jeremy and Sylvia were mere diversions.

I am going to help my children and my patients. I am going to speak out and challenge all they do that is wrong. I am going to sleep very little. Because that’s what autism moms do.

Good night. I have some reading to do. 

Thank you for contacting the Department of Justice, Civil Rights Division, Educational Opportunities Section. This message acknowledges the receipt of your email

21 Friday Oct 2016

Posted by in Evil, outrage, PTSD, Rape, Uncategorized

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97b4387e5e4c8cb774f98aee73ea273d

Eight years ago, in the hot sticky month of June, I called the FBI field office in Pittsburgh to turn in a fellow medical student for trafficking a child. A three year old little girl, specifically. They never returned my call. So, I sat and typed it all out and emailed it to them on their website. I didn’t think I’d ever hear from them. So, I copy and pasted it onto an anonymous blog I was keeping at the time. I didn’t think he’d ever go to prison. And I thought he would probably kill me as he’d promised to do if ever I turned him in. No one in my life knew what had been going on for months. My ordeal. So I pasted it to my anonymous blog. Because you need to speak, no matter what. Because I needed to believe somewhere someone would read it and know my truth. And maybe if I died, the truth at least had a chance of coming out.

He went to prison. He’s in prison for 45 years now. In Arizona. I track him online on this federal prisons website where you can look up any prisoner by name (who knew such a thing existed? Funny how life goes). My victim advocate from the FBI, Bridget, has long since released me from her care, although I wasn’t clear on what she did anyway. When the judge sentenced him, sentenced Jeremy, Jeremy Noyes, he said Jeremy was one of the worst sadistic criminals he’d ever seen. You should be grateful, dear reader, you weren’t at his trial when they showed the images he had on his computer. You would never be the same again. You cannot imagine the evil men are capable of. Men that are medical students, future doctors. I was there. I was there in that beautiful courthouse with its arches and mezzanine (or was it a balcony? It was beautiful either way) when my rapist called me to the stand to question me (did I mention he fired his lawyer and represented himself? That I got the unique experience of being cross examined by my rapist?). There I sat in federal court in Erie, Pennsylvania. Just me and my rapist. And 12 jurors. And the press. And several lawyers. And all the people who just came to watch.

My school was not kind to me for turning this man in. And so, after all these years, I have finally found the courage and the energy to once again email the federal government. I’m once again afraid nothing will happen, so here I am on a blog. Once again. But this time it is not anonymous. I am not ashamed anymore. I am proud. I am a goddamned hero.

After 37 years, I did

03 Monday Oct 2016

Posted by in empathy, kids, love

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I feel different today. I feel lighter.
I am 37 years old and have never stood up to my mother. Never spoken back to her. Not once. Not as a child, not as a teenager, not as an adult no matter what she said or did to me. I have never stood up to my sister either. Yesterday, I did. After 37 years, I did.
*
I have worked hard to turn the other cheek, to look for the log in my eye and not the splinter in theirs. I have tried to be empathetic and loving and kind. To not meet their aggression with mine, as you cannot dismantle the master’s house with the master’s tools. But there is a difference between being aggressive and being assertive. I gave up the passivity that defined my role in my dysfunctional family.
*
It was no great scene. Not emotional or dramatic. I simply told my sister I did not want her dirty money (I don’t. She made it off the backs of the poor) and that someone who’d hurt my children like she did, did not get to dictate the terms of our dispute. And then I told her something true that I’m sure cut her to the bone: that she is just like our mother. Because she is.
*
My mother responded by telling me she knew I’d sent “hateful” texts to my sister. I told her the truth. I told her I’d simply told my sister she was just like my mother and my sister apparently considers that hateful. (it’s kind of funny, looking back on it) She said, I suppose I won’t be hearing from you for a while again (referencing the months I’d taken while in therapy a few years ago to work out my wounds from her and what kind of boundaries I needed to establish. During which she was free to see my children whom adore her, but whom she chose not to see). I replied, No, unlike you I don’t write people off for disobeying me. I wouldn’t hurt my children like that.
*
I texted her today to assure her she was still invited to the three children’s birthday parties we have coming up and that the children would be sad if she didn’t come. No reply. I’m not surprised but I am sad for my children.
*
The narrative of what happened will go down in the family history book like this: crazy Libby did something irresponsible again (believe it or not, this whole thing was precipitated by a dog I’d bought impulsively. Don’t ask) and responsible Becky came in to save her and the poor innocent dog (my mother was considerably more concerned about the puppy she’d know for 24 hours during our exchange than her grandson she once referred to as her “soulmate”). Libby responded vindictively and cruelly.
*
I’ve no doubt my sister Becky, who had shut my parents out of her life for the past five years along with me and my children, will now return to the fold. And so my dysfunctional family will go on as it always has. But without me. Not by my choice but by theirs. And my children will be the ones to suffer. First their cousins taken away and now the grandparents they adore.
*
I hope this doesn’t happen. I hope a distant awkward peace can be made enough that they can bring themselves to see my children.
*
I spent my childhood trying to be the good one, trying to earn their love and never be bad. Good grades, never talk back, extracurriculars, stuff your emotions down, don’t ask for help even when you’re in so much pain inside. I was never good enough. I tried.
*
And so in my lightness today, I am using my energy to write letters to my children. To let them know I love them and I’m proud of them. To let them know I only push them so they can be their best and achieve their dreams and purpose in life. I admit to them I am imperfect but I’m sorry for my wrongs. That they don’t deserve the frustration I take out on them at times. I remind them they have a perfect mother in heaven who is always there.
*
Flesh of my flesh, bone of my bone, I seek a new people now. For mine are gone away. They were never there; I just couldn’t see it.

Of Angels and Devils

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Posted by in christianity, doctors, empathy, Evil, outrage, PTSD, Rape, Sin

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gelfand

From January 2015:

Dr. Steven Gelfand died on January 18th after a brief battle with cancer. He was 66 years old. He was also amazing.

I’m going to tell you about him. And just from reading about it, you’ll be better off for having known what little I can tell you here.

I met Dr. Gelfand July of 2009. He was the attending of my very first clinical rotation as a medical student. The first two years of med school are spent in the classroom and the last two years are spent on rotation. You get to leave the classroom and spend time actually doing medicine.

I’d had PTSD for about a year at this point. My perpetrator, a fellow medical student, had been arrested in August 2008. My trauma officially ended with his arrest I suppose, and then came the PTSD.

After he was arrested, my medical school became upset with me. You see, the FBI released my name (even though they didn’t need to) and implied a lot of things about my personal life, sex life, and mental health in the affidavit they used to arrest the sociopathic child molestor I’d turned in. Some of what they wrote about me was accurate and some of it wasn’t. Two things made very clear by this affidavit were:
1. He was a dangerous sadistic pedophile
2. I had risked my life and the lives of my children to turn him in.

I’d like to think a medical school, an institution charged with shaping the physicians we place our trust in and rely on for our lives and health, would be appreciative of a future doctor risking her life and the lives of her children to stop a fellow future doctor who is a sadistic pedophile from hurting any more women or children. But that’s not how it went.

Quite the opposite.

My school chose to punish me instead. They placed me on probation for having morals below the standards of the community (in reference to the affidavit’s inference that I had engaged in consensual, kinky sex with the perpetrator before The Ordeal began). More than this, they waged psychological warfare on me. They brought in a speaker from the state board of medicine (and an alum of the school) who spoke in front of the entire student body about me, saying I really should leave med school now because I wasn’t fit to be a doctor. Warning them not to be like me. A sexually immoral person. The head of my school told me I would never be a doctor. She said no doctor would take someone like me on for clinical rotations and that even if I somehow managed to become a doctor, I would never have patients because I was so disgusting, they wouldn’t want me touching them.

Such cruel words coming from the head of your medical school, coming to you in an acute post-traumatic state, has such an impact. I didn’t even realize at the time how much I believed her.

I was able to get a lawyer and, after a legal battle, get her off my back (but not before suffering the utter humiliation of being forced to apologize for my behavior to the faculty of my school.) But she had gotten inside of my post-traumatic soul and planted herself there.

Fast forward a year to my first day of clinical rotations. The day she said would never come.

The PTSD had obliterated my self-confidence. Deep inside I was afraid she was right, that I wasn’t going to make it and I should have cut my losses when I had the chance.

I know there is a God because it cannot be chance that I wound up on Dr. Gelfand’s doorstep. By the end of my first day with him he’d shared with me that he had no respect for the head of my school. In fact, he told me, he’d once told her to go f*** herself. He was a Jewish, cursing, bold as all hell, certified angel.

He told me she had once punished a medical student he had rotating with him after he gave the student time off to spend with her mother who was dying of cancer. He responded by sharing his feelings as above.

I ended up telling him what had happened to me. The brave deed I’d done and the evil she’d paid me with. He told me I’d done a courageous thing, the right thing. And he told me not to tell any other doctors like I’d just told him. It could ruin my medical career.

Over the next two years, he became my two special needs sons’ neuropsychiatrist. He was, by far, the best doctor they’ve ever had. He became a mentor for me too. He told me I was going to be a great doctor. And part of me actually believed him somehow.

He was a tough attending. He let you know every single detail you got wrong. But he also let you know when you got something right. And when he did, it really meant something.

He went into medicine for the right reason. He cared about his patients and worked for and advocated for them fiercely. He was good and he knew it, and he earned it.

Dr. Gelfand was right that I shouldn’t tell the other doctors I would be rotating with what she’d done to me. It wasn’t the time for it. She still had the power to end my career. I wasn’t emotionally ready to speak publicly about it yet either.

But I have been healed of my PTSD after seven long years. I am getting ready to graduate from a wonderful, supportive residency. And I’ve never been one to keep quiet.

It was Martin Luther King day on Monday so we talked to our kids about the civil rights movement. We talked about the turning points like Rosa Parks and how those were just moments that sparked off a movement that ha been building for a long time. My son asked me why those particular events set things in motion and I told him no one could say for sure.

The passing of this amazing man has changed things for me. Something has been brewing within me that would inevitably, eventually come out. I didn’t know when.

The silence ends now.

Jeremy Noyes raped me, tortured me, threatened to kill me and my babies. My medical school punished me for risking all of that to do what is right as a physician and as a person. He is now serving 45 years in federal prison. What my school did was wrong and dangerous. They sent a clear message to that school full of future doctors that turning in a child predator could cost you your career. It was unethical, immoral, and unacceptable.

Your seven years is up, LECOM. Let’s talk.

You’re Not a Good Little Girl, You’re a Warrior

28 Friday Nov 2014

Posted by in christianity, Evil, kids, love, marriage, PTSD, Rape

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I watched the first two episodes of a British show recently called “The Bletchley Circle”. It’s about four women who were code breakers for British intelligence during world war two who have now blended into civilian life seven years later. One is a stay-at-home mom, another a housewife, another a waitress, the last a librarian. They reunite when they realize they can stop a serial killer with their code breaking skills. They realize, too, that a piece of them has been suffocating all those years. Their minds, their hearts, their spirits, trapped in an ordinary life they weren’t meant for.

They pursue the killer. When the police aren’t very helpful, they take it upon themselves to go undercover. They visit the gruesome crime scenes before calling the police with the location of the body. They set a trap with one of their own as the bait. In the end, they get their man in a dramatic scene where he gets blown away by one of the ladies as he’s about to kill another one.

So, I like it a lot right up until the last ten seconds. I mean, what’s not to like: feisty, intelligent women banding together and protecting their sisters in a man’s world. Well written scenes subtly addressing the alienation of women in modern society and the problem that has no name. Recognition of how common rape and domestic violence are. Entertaining yet socially relevant. I could relate to them too. They knew trauma. They knew aloneness. They had seen the evil of the world, survived it. It made me feel a little less alone. More optimistic maybe. But then came the ending.

The main character is walking home after nearly being killed by a serial killer who rapes his victims after they’re dead. She went willingly to his house because he said if she didn’t, he would kill her children. If she came, he said, he would spare them. She did what we do for our children. She walked into trauma to save them from the evil. And after she nearly died and was saved and the police came in and she processed it all as well as she could with her three friends who’d gone through it with her, who’d saved her, she went home to her husband and kids. She opens the gate of the little picket fence that surorunds her house. She looks in the window at her husband playing with her kids. She’s going to tell him what happened. She’s going to tell him all of it. He doesn’t even know she was a code breaker during the war. He thinks she was a clerical worker. She’s going to tell him now. About the war, about what she and her friends have really been doing when he thinks they’re off gossiping, about the evil she’s seen and known. More than that, she’s going to tell him about the rush of it all. About how powerful she is. She’s stopped a killer. She’s saved countless women. She’s saved her children. She helped defeat the Nazis.

But then she pauses. She looks at them playing happily, blissfully ignorant of it all. She remembers what one of the other women told her. She can’t tell him, she said. She looks at them and she changes her mind. She does what good little trauma survivors do. She swallows it down and hides it away. It’s not enough to have saved so many lives, she must protect them from the knowledge of evil too. To keep them safe in body and mind and spirit.

That’s when they lost me. That’s when my heart sunk and I felt cheated. And I felt pissed.

I wrote in an earlier entry about sin eaters. About swallowing the evil down and keeping it away from the rest of the world. About how I didn’t want to tell anyone about the evil I’ve known because they couldn’t possibly understand. I wanted to be a good little trauma surivor and hold it inside but I can’t. I wanted to be like those war veterans who refuse to tell their families what happened, who maybe don’t even tell them they fought in the war at all. To be like the woman in London who pretened to be a clerical worker turned stay-at-home mom instead of telling her husband who she really was, a warrior. The pain of trauma, the thrill of saving lives.

I haven’t protected my husband from the evil. I have told him all of it in detail. He came to the perpetrator’s trial and saw the graphic pictures of the brutality and perversion. I have told him what he did and how it felt and how it has haunted me. I have been honest about my existential crisis that has started in recent weeks, seven years after the events that changed my life. That changed his. He didn’t even know me then. He was finding Jesus and doing missionary work and writing scripts and raising his beautiful son. It may be harder for him to hear the unholy thoughts I have had lately than the details of the violation.

But I have been brutally honest about those doubts and thoughts and feelings, about the rage I feel for God right now. About my daydreams of violent revenge on my perpetrator which have resurfaced. About how exhausted I am to be seven years out and feeling like I’m back where I started. This is PTSD, I tell him. Why can’t you just get over it, he asks. Why can’t it be over? This is PTSD, I tell him. It will get better, but it will keep coming back. I could go twenty years and be pretty good and then it could come back all over again. And living with that knowdlege in and of itself is cruel enough. We are married for life and so the PTSD is a life sentence for him too.

It is not right to want to violent revenge, he tells me. God calls us to forgive, he reminds me. I said I’d forgiven the perpetrator. I had prayed for him. I had seen him as a poor banished child of Eve. Like a good girl. But I am not a good girl now because I have come to realize I spent all these years being a good girl because I thought maybe if I was good enough, bad things wouldn’t happen to me. I’ve blamed myself all these years because it gave me a sense of control. I realized, really realized, a few weeks ago that it wasn’t my fault. He alone chose to do the things he did. I had no choice. I could not have been so good he wouldn’t have done what he did. I cannot be so good I am safe. And so, I am not going to concentrate my being into being good. I am going to feel the anger I need to feel, I am going to doubt the goodness and power of God as is inevitable with trauma, I am not going to hide from the reality we live in a patriarchy maintained through brutality of body, mind, spirit.

I bring this to him because he’s my husband. I bring it to him first. But I’m not planning to stop there. This is a series of events set in motion in that cold February of 2008. Set in motion by him. I used to think I had such a choice in how I responded to what he did. I used to think I chose to go back to his apartment over and over again because I had made the choice to save my children and to save that little girl. The only choice I had was my body and mind versus my soul. Something would be lost. There was no good choice. I have no good choice now either. Keep it all inside and go on living the nice external life we’ve built up for ourselves or speak the truth and risk losing that external life. Body or soul. Ignore my fellow survivors, the little girls suffering out there, move on and tell myself finding health and happiness is the best revenge. Or be honest.

He’s my husband and my fate is his. His is mine. And God with us. The three of us. And so the three of us have PTSD. The three of us had the good choices taken from us seven years ago on that cold winter day in that motel room in Appalachia.

I will tell my children what happened one day when they are older. It happened to them too. A piece of their mother stolen never to return. A warrior born. I will tell them of the evil in the world and of the not good choices it leaves us. I will tell them I chose my soul over my body and mind. I will tell them he took something from them too. I will tell them the no good choice between body and mind and your soul is at the very core of this fallen world. Because I cannot protect them from the truth of this world but only do my best to prepare them for it. You see, what those good little trauma survivors in the movies don’t know is that you cannot be a good enough girl to keep bad things from happening.

Stop being good and be the warrior you are.