Tag Archives: true love

That’s me in the corner, that’s me in the spotlight (or, the fault in our star)

03 Tuesday Mar 2020

Posted by in christianity, empathy, Evil, love, medicine, romance, Sin, Uncategorized

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losing my religion:  southern term for losing one’s temper, “flying off the handle,” going insane  etc. Note that the R.E.M. song of this title has nothing to do with religion, despite the common misinterpretation of the phrase.

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up

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I don’t remember which one became my patient first. I think it was Him. But it could have been Her. He was initially more memorable. He liked to show me pictures. Of his woodworking and antiques he’d restored. Of his boys. Of the squirrels they’d killed that year. I asked him not to show me the squirrels but he did anyway. She was quiet. Told me about the jewelry she made and the things she grew in her garden and foraged for in the forest. I do remember the day I realized they were a couple. That he was the he she talked about and she was the she he talked about. The “Ohhhhh” moment. The “oh wait, she’s *that* She and he’s *that* He!” It happens a lot in my rural practice. Six degrees of separation is not a thing in rural northwest Pennsylvania. It’s more like two.
*
They started coming to their appointments together eventually. They would tell me about their garden and their yard and the retaining wall they were battling to put up. And they would tell me about things addiction patients in rural northwest Pennsylvania tell you about. Meth and heroin and jail and stealing from the people you love and five year old kids calling 911 when their mom overdoses. They’d both been clean a long time, but everyone had relatives and friends still lost in it. They were no exception.
*
They gave me things. A piece of amethyst they’d hunted and extracted themselves. A small glass vase with a flower from her garden. She gave me gardening tips, foraging tips, taught me some herbalism.
*
They were always late. Always. That was a given. And that was okay. As long as they came. Sometimes they mixed up their days and we’d get a call a couple days later and fit them in the schedule for another day. I always held my breath until they called. Because you never know. You never really know if something didn’t happen and if they’re really all right.
*
And so it happened that they came in a week or so after their appointment in early February. I wasn’t at my office in northwest PA so they came to my office in Verona. Sam got to meet them for the first time. They got to see my other office, which is fairy tale themed. I knew she’d like it.
*
She wasn’t herself that day, though. She was sad. So damn sad. He had to talk for her for most of the appointment because she couldn’t stop crying. She’d been depressed. But it was more than that. She’d been having pain in her side a while now and it was getting worse. She’d gone to the ER and they’d drawn blood work which came back with an abnormality but when they tried to get an IV in so they could run some imaging tests, the nurse couldn’t get it. They kept poking her over and over and she ended up leaving the ER.
*
I asked her some questions to see if I thought she needed to go to the ER right now (it had been a couple days since leaving the ER and she hadn’t gone back yet). Based on her answers I told her I didn’t think it was an emergency but she needed to go back and get the test done. I said maybe she could try going to a different ER where the nurses were better. We talked about her depression and I started her on an antidepressant and told her to email me in a couple weeks to let me know if it seemed to be helping at all so we could work on the dosing.
*
I had a crystal sitting there. Malachite. A pretty dark green stone. I’d been feeling for a couple of days I was supposed to do something with it. An odd feeling kind of hard to describe. Like, restlessness. But with a stone. And before she left I took it and said, here, I want you to have this. And she told me she had something for me too. It was a necklace she’d made but she’d felt timid about giving it to me. But when I gave her the crystal, she said, she felt okay to give me the necklace.
*
He said, (or maybe she said?) that it was fitting because it had a star on it and pointed to my walls. The room we were in has a Sleeping Beauty theme and is covered in stars. (It is based off something I wrote about kids with PANDAS battling the disorder and emerging from it, like sleeping beauties waking up). I took it and told her I loved it. And I did. When I went to put it on, the chain broke, so I put it in my pocket. My back jeans pocket. And we walked out together and said our goodbyes. And Sam said they were sweet and I said I was worried about her. And I was.
*
Somewhere between there and my kitchen, I lost it. The necklace, that is. I realized it later that night and told myself, it’s here somewhere. It’s not gone. It hasn’t fallen off planet Earth. You’ll find it (this is the same thing I say to my children when they are panicking over something they’ve lost. I find it is helpful to give myself the same talks I give them pretty often). I looked a couple places I thought it must be (the cubby over my coat hook by the front door, the back pocket of those jeans I’d since thrown in the hamper) but it wasn’t. Over the next few days I looked a few other places and it wasn’t there either. I tried to remain calm.
*
Then a week later I found it. I was trying to dig a quarter out of my left coat pocket for a cashier, in line ahead of a grumpy resentful old man in the Giant Eagle “12 Items or Fewer” lane and I pulled it out instead. I was relieved. He didn’t care. At all.
*
I went to coffee with a friend that morning (please note: this is a rare occurrence) and stopped in at the crystal shop across the street (please note: this is not a rare occurrence). It had been quite a while since I’d received that amethyst. A lot had changed. And I now frequented the local crystal shop (thus, the malachite). I was browsing on this particular day and saw a necklace with a stone in it that looked like the one my patient had given me. I excitedly drew the necklace from my left pocket and held it up side by side to the other and they were an exact match. I told the women in the shop the story of the necklace and asked what the crystal was. They told me and I asked if I could take the little card that had the name of it and its meaning and they said yes. And they said how sweet it was my patient had made me a necklace. And I said, yes she’s very sweet.
*
The next day I was answering the phone (Sam was out of town and I was like a dad on a laundry detergent commercial, drowning in ineptness with a lost look on my face, trying to perform basic office functions). I was relieved when a familiar voice spoke back to me. It was him. And then it happened. One of those moments. One of those moments that create a Before and After in your life. He told me she had cancer. One of the really bad ones. There’s no such thing as a good cancer. But there are such things as really bad ones. That’s what she had. I stopped breathing for a few seconds. Parastalsis slowed. I got goosebumps (the medical term for that is piloerection. It’s the same thing that makes a porcupine’s quills stand up when it sees a predator. It’s supposed to make us look bigger and scarier, in theory. It does not, in practice). In my head I thought, “Fuuuuuuuuccccckkkkk.” I did not say this to him. I asked how she was. I asked him a series of questions trying to get more medical type details. I tried to get him to say something that would make me realize he’d gotten it wrong and it wasn’t actually cancer. It didn’t work. He said she was resting but I should call her later. I said I would. Even though I was scared to. Because there’s nothing really great you can say. Because you’re a doctor and you’re supposed to fix people and this is not something you can fix.
*
Her palliative care doctor called a little while later while I was on the other line with someone considering making a medical marijuana appointment for anxiety. They had a hundred questions and, in the end, said they’d call back once they decided what to do. I listened to his voicemail and frantically wrote down his number and called him right back. He was nice. God help me, he was a genuinely nice, caring doctor. If you knew doctors like I know doctors, the way they actually talk when there aren’t patients around, you’d know how rare a thing that is. He hadn’t seen her yet (the appointment was for the next day) but he wanted to touch base with me since I prescribe her a controlled substance and his role was pain management (also prescribed substances).
*
When I talked to her that night (well, to her voicemail), I let her know the pain doc was good people and would take good care of her. And he did. We have texted and talked since then, each step along the way, She and I. He and I. And even the palliative doc and I. There is more to it than this, various details you might not expect. But the heart of it is this: a really beautiful human being is sick with something she likely won’t survive. She is in a lot of pain. And the man who loves her is doing an amazing job supporting her through it. He is an unlikely romantic hero. Not a sappy, trite one. A genuine romantic hero. And she is a warrior. Strong and smart and intuitive and kind and creative and honest. And she is so damn young. Too damn young for this shit.
*
And so it was that I came to wear a star necklace everyday (I ordered a new chain for it the day he called with the news. I kept it in my pocket until the chain arrived). And so it was that I came to wear that necklace the night I ran into a good Christian I know.
*
The Good Christian looked at it in horror. Genuine fear in his eyes. And he said, “Have you lost Jesus?” He was distressed. I looked at him and said, “What?” And he pointed to my necklace and said it was a witch’s necklace, a Wiccan necklace. I said, it’s a star. A patient made it for me. That doesn’t mean I’ve lost Jesus. He looked… freaked the hell out.
*
And I thought of the word the palliative care doctor had used when he told me about her CT scan. Innumerable mets. Meaning, the cancer had spread to so many spots, the radiologist gave up counting. I remember when he told me that I wondered, at what point do they stop counting? 10, 20, 100? Maybe that particular radiologist was lazy and she really only has 3. But that’s not likely. When he used that word, innumerable, the hope I’d held out faded away. And I began to focus on how we could all support her in finding peace and being comfortable and doing the things with her last months she’d like to do. Because, lets be honest, doctors very rarely actually fix patients anyway. So maybe this very nice palliative care doctor and I could help her with these things. Hopefully I could be of use.
*
I thought of that word, innumerable. And I thought of the cancer growing inside her. And about how brave she is. And how sweet her he is. And I looked at this Good Christian and saw something in him. A different kind of cancer. One with innumerable mets to the soul. Dark and sticky. Inoperable. Incurable.
*
And I thought, this patient knows more about Jesus than you ever will. Because Jesus is love. And she is full of love. And she has brought joy and love to so many people. And she will keep doing that. Despite it all. She will keep inspiring other people to love. And she knows that I love her. And she lets me love her. And loves me back.
*
And that, dear reader, is not something the Good Christian is capable of. Not something he even understands. And that is why a necklace can inspire a look of dread and disgust in him. A star. An innocent little star.
*
I told my kids a bedtime story tonight. The boy in the story was looking up at the night sky when a shooting star appeared. My daughter got so excited and was urgently shouting “make a wish quick! Before it’s gone!” She was nervous the boy in the story would miss it. Because everyone knows if you make a wish on a shooting star, it comes true. Because that is what stars are for. To wish upon, to make our dreams come true as we sleep beneath their lovely glow. They’re magical. And shooting stars? They’re actually little burning meteors,  magical, glowing rocks. Kind of like amethyst or malachite.
*
If taking comfort in that means I’ve lost Jesus, dear reader, then consider me lost. Because not every sleeping beauty wakes back up at the end of the story. Sometimes her true love kisses her goodnight one last time. And releases her to shine down on us and remind us of who we are, innumerable stars in an endless universe connected to one another always.

 

***

Oh, life is bigger
It’s bigger
Than you and you are not me
The lengths that I will go to
The distance in your eyes
Oh no, I’ve said too much
I set it up
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
Every whisper
Of every waking hour
I’m choosing my confessions
Trying to keep an eye on you
Like a hurt lost and blinded fool, fool
Oh no, I’ve said too much
I set it up
Consider this
Consider this
The hint of the century
Consider this
The slip that brought me
To my knees failed
What if all these fantasies
Come flailing around
Now I’ve said too much
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
That was just a dream
That’s me in the corner
That’s me in the spotlight
Losing my religion
Trying to keep up with you
And I don’t know if I can do it
Oh no, I’ve said too much
I haven’t said enough
I thought that I heard you laughing
I thought that I heard you sing
I think I thought I saw you try
But that was just a dream
Try, cry
Why try?
That was just a dream, just a dream, just a dream
Dream

Good Friends Are Hard to Find (or, My Brother from Another Mother) (or, Tacos Fall Apart Sometimes and We Still Love Them)

01 Sunday Mar 2020

Posted by in empathy, love, Uncategorized

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It’s the Kalenda of March today. You may have heard of the Ides of March (especially if you took Latin at Indiana Senior High like I did) but probably not the Kalends of March. It is the first day of the month. It comes from the same roots as the word calendar (thank you, Latin class. You rock) and was part of the newly formed Roman calendar which was no longer lunar like all those before it (see, for instance, the Hebrew calendar which leads to holidays falling on different days each year). The lunar year is made up of equal months that follow the waxing and waning moon. The Roman calendar had to make up the idea of a Leap Year to reconcile its imperfection.

And so here we are on the Kalends of March, the day after February 29th. That pesky day that tries to make up for the illogic of the Roman calendar. The moon and it’s cycles have always been linked to the Divine Feminine and Nature, so it is no surprise the Romans wanted it squashed. 

March is my birthday month. I will be 41 on the 24th, a few days after the spring solstice. My 40th year has been intense, to say the least.

Some good, some bad, most of it both. 

With me through all the ups and downs have been a few people I managed to stay close to despite the relative isolation I found myself in in recent years. One is a wonderful fellow PANDAS mom, one a good friend from college who was with me through the Jeremy ordeal, and one is my friend and coworker, Sam (he says I can tell you his name. I always get consent, dear reader).

Sam came to my practice at the suggestion of my husband. He recruited him. And for that I am eternally grateful. Sam is warm and sunny and kind and just fills you with positive energy from the second you meet him, whether by person or over the phone as many of our patients do. I cannot tell you how many patients pause in their appointments and say, I have to tell you Sam is wonderful. I say, oh I know! And they look at me very seriously and say, No, I mean it. Truly wonderful, (as though I’m not convinced) I was so nervous when I called here and he made me feel so comfortable and so much better. Never let that one go! I’ve even had patients try to hire him away from me (no joke). They send him chocolate covered strawberries and give him birthday gifts. When I told our grove city patients, who have only talked to Sam on the phone since he doesn’t come up to the grove city office with me, that he was coming up in March, it was like I’d told them a celebrity was coming. The excitement was palpable and real. 

Sam was with me through a lot this year and always there however I needed him to be. He never tried to tell me what to do as I tortured over some big decisions. He listened. He heard me and allowed me to talk it out to figure out the answers I already knew deep inside. He laughed with me. He sat with me as I cried. We drank champagne sometimes; other times we talked about how damn unfair some of our patients lives are and how we wish we could do more. 

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More than once he has run something badly needed to my house at 10 at night (not sure what my neighbors thought he was putting in my mailbox but I can assure you it was all perfectly legal). More than once he has either run my son Mies to school when he missed his van, run my office with me completely unavailable tied up in court, run inconvenient errands for me or ordered me rose water pistachio ice cream (vegan if course) when I really really needed it (and run it over to my house of course. The man runs). 

Sometimes we bitch about men together, even though Sam is a man. Sometimes he lets me bitch about women to him, even though I am myself in fact a woman. I know there’s nothing I can say to Sam that will make him judge me or love me any less. (Well maybe there’s something but it would have to be pretty extreme). 

Sam has reminded me I am a good person. That there are parts of myself I’ve pushed down so many years that deserved to rise back to the surface. That it’s okay to be a contradiction. That it’s okay to not be okay. Because everything is going to be okay. And it is. 

So it is not just female friendship I am reveling in now. The Divine Masculine and Divine Feminine are in us all. We must embrace both. Sam does that beautifully. He is a fabulous moon, orbiting with me. I no longer orbit any person. But I make my way through space , through the cycles, pulling the tide in and out, with some wonderful fellow celestial bodies. You can keep your Leap Day. We will take the solstice and the mother moon (and some champagne lunches from time to time).

The demons they won’t fight

14 Friday Oct 2016

Posted by in empathy, love, Sin

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When I was fifteen, I met a wonderful, intense, intelligent. creative, amazing, intoxicating group of boys who made me feel so alive. They swore and smoked cigarettes and drank beer and smoked pot out of a Coke can bowl. They were nothing like me. I was a quiet, shy girl who’d never sworn or done anything else good girls aren’t supposed to.

I spent the next three years with them, going on adventures always exciting and sometimes terrifying. They introduced me to William S. Burroughs and Jack Kerouac and E.E. Cummings. To grunge and industrial and Irvine Welsh and surrealist art. We were so intensely alive. In love. All of us.

They also did a lot of drugs during these years. I did not. I started to swear, I’ll admit, but I wasn’t into drugs. I was the permanent designated driver for three years straight. I was into political activism and applying to college and various other positive activities they thought were a waste of time. They started out with just pot and beer. They made fun of stoners and burnouts. Kids who did heroin and crack and too much acid. But by the end of high school, they were the kids doing crack and meth and tripping on shrooms.

One didn’t graduate. Another dropped out of college the third day. Another dropped out a year or two later. They all descended into more and more drugs and alcoholism. I would see the poetry and genius in them every now and then but it became less and less common. I knew they were in there somewhere. Somewhere. Deep inside.

I wanted to help them. Wanted to save them. I tried. They knew they needed to change and they would try every now and then to quit. They would try giving up beer and just drinking liquor. Giving up pot and just drinking. Giving up alcohol and just smoking pot. Giving up cocaine and just taking pills. It never worked.

I felt bad for them. I knew there was a sadness in them so deep and so wide. They were trying to fill it with drugs. I wanted to save them from that darkness. They were capable of so much. I loved them so much. But it wasn’t enough.

I realized one day that they loved drugs more than they loved me. More than they loved each other. Maybe it was the night they let one of their friends die from an overdose rather than dump him at the ER because they were afraid of getting caught and I was the only one who seemed to care. Maybe it was no special day in particular. I looked at them and knew. Knew they loved drugs more and it was time to let them go. As much as I loved them, they didn’t really love me anymore. You can’t save someone who doesn’t want to be saved and all that. It was time to let go.

People criticized me for it. Said I should have helped them more. How could I abandon my poor lost friends like that. And I’ll admit it made me sad at the time. But I never regretted doing it. Never regretted saving myself. Never doubted the fact that they would never change.

A time like this comes to all the relationships we end in life. The day you figure out the person you love, loves something or someone else more than they love you and that’s not all right. You stop asking, do they love me or not? They do, but not enough. They do not love you more than their dysfunction, the demons they won’t fight.

When you let them go and with them your guilt, you are light. You are free. You have fought the good fight and given them your best. And now you are free. For better things.

What Love Really Means

14 Saturday Feb 2015

Posted by in love, marriage, my awesome husband, PTSD, Rape, romance

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trenchfoot

This week is the 50th anniversary of the assassination of Malcolm X, El Hajj Malik El Shabbaz. I read The Autobiography of Malcolm X when I was 21 and it changed my life. Changed it enough that I named my second born after him. Malcolm X was Godly and brilliant and brave. But the thing I’ve always been most inspired by in him was how much he changed and grew in his life. Why am I writing about this on Valentine’s Day? Because I wanted to write a Valentine for my husband.

He was born in the summer of ’69, a couple weeks after man walked on the moon and a couple weeks before Woodstock. He made his first film at age ten. He was an entrepeneur from the start doing everything from delivering papers, mowing lawns, to selling Grit magazine. He grew up and went away to a small town three hours away in Western Pennsylvania for college. My hometown. I was in elementary school then (I was born in 1979, the year of the collapse of the industrial economy in America. Not quite as cool). He went into computers and had a good job but he left behind the security of it to go to film school, to pursue his calling. He came home and made two independent films and got married and had a son. He found God and set about following Him. When God called him to open a cafe, he did. Crazy as people told him it was. And then he got this email from this girl who’d seen his picture on the interwebs and he decided to write her back. It turned out she’d been raped by a madman in med school and she had two kids who were dealing with mental health challenges of their own. On the day they got married she was $400,000 in debt and had failed to match into a residency and might never be able to make a decent living. He married her anyway. He’s not afraid to take risks. He follows God into the fray.

In the years since then, he has found himself facing the sacrifices of residency and the hell of PTSD. He has driven roughly 35,000 miles going back and forth between residency and our son back home. He has devoted himself to our hooligans. He has been a major factor in the amazing transformation of our son Malcolm. He has washed and scrubbed and shoveled and fixed and cooked and shopped and juiced. Wiped butts and cleaned up vomit and blood. Endured temper tantrums, meltdowns, wiped tears, kissed boo boos. He has listened to my frustrations and guarded the bedroom door from invading children when I needed to sleep.

More than that, he has gotten down in the mud, crawled on his belly, down in the trenches. He has done the real work of marriage, the emotional work. He has faced down his demons and mine. And that is the bravest, hardest, most loving thing there is. He has come with me as I travelled into the heart of my PTSD and faced my spiritual crisis. Been there through the anger and the bitterness and neediness and depression and the one-step-forward-two-steps-back-is-this-ever-going-to-end. He has come to be as outraged as I am about rape. Sometimes I think he’s moreso. When the petition we signed to stop the Bill Cosby performance at Heinz Hall worked, he was more excited than I was.

Dorothy Day, founder of the Catholic Worker movement, said, “I have long since come to believe that people never mean half of what they say, and that it is best to disregard their talk and judge only their actions.” You can keep your long stemmed roses and diamonds. I have real love.

I love you, Poobah. I’m so proud to be your best friend. Forever.

Remembrance

08 Wednesday Oct 2014

Posted by in love, marriage, movies, romance

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I watched a movie tonight called Remembrance about a woman who was in a Nazi concentration camp during World War II and was saved by a man whom she loved. The movie takes place 30 years later. She’s living in New York City, married with a daughter. She had thought he had died but then she goes to the dry cleaner to pick up linens for a dinner party and hears his voice on a television being interviewed about the camps.

She goes home and is trying to make phone calls to try to find him all throughout this dinner party. Her husband wants to know what’s wrong and she says she won’t say and he says, it’s not just your problem, it’s ours. No, she says, this time it is just mine.

She eventually tracks him down and goes to see him in Poland with her husband’s blessing. The movie ends with her getting off the bus in his hometown in Poland and his gaze and hers meeting.

I have become so… disappointed with most romantic movies they make because I think they really do us all a disservice when it comes to living out marriage. They fill our heads with a lot of awful ideas. They tend to end right as the relationship is starting. The whole focus is on finding THE ONE. If you’d just find THE ONE, you’d live your happily ever after. Big romantic gestures and winning the person over and finally raealizing why you always wind up with the wrong person and now you’ve learned and found THE ONE.

Remembrance is based on a true story (read about it here) that doesn’t have a very happy ever after to it. There’s a big romantic gesture at the start but then some really bad timiing and a disappointing ending. But ya know what? I kinda like that about it.

As I was watching the movie, I found myself really relating to the main character and her current husband and how this was affecting their marriage. I felt for the guy. How do you compete with a guy who saved your wife from the Nazis?? He saved her and disappeared and they never had to deal with bills and kids and whose fault it was that the minivan’s inspection was overdue and you got a ticket and…. How can you compete with that? In a romantic sense, you can’t. It’s like expecting a mother of three whose been to hell and back and eaten her way through it to compete with a man’s idealized vision of what she ought to look like. It’s a shallow, immature vision of love.

Love is a feeling, yes, but while it may first come into being by virtue of romantic notions, it certainly is not sustained that way and it certainly does not grow that way. Real love comes when we let go of what we thought it would look like. Maybe you wanted a girl with a small waist and a big booty and demure manner but instead you find yourself with an apple who curses like a sailor sometimes. Maybe you wanted a guy who’d be so emotionally intelligent he’d put Jesus himself to shame and would always say the right thing but instead you’re lying in bed at night next to a well intentioned guy who requires an awful lot of psychoeducation and tends to speak before he thinks.

Grand romantic gestures and charm and poetry and perfect beautiful bodies are nice and all, but it’s the sprinkles of this life not the ice cream. It’s not even the fudge or the whipped cream. Don’t get me wrong, I love sprinkles, but who wants to eat a bowl full of sprinkles? Love is mostly vanilla ice cream with the occasional sprinkle on top. The sprinkles are a wonderful treat, but it’s the ice cream that fills your belly.

I had a really really rough week recently that involved a really really awful 36 hour long day. I came home at the end of it and my husband surprised me with flowers and a card. He’d gotten three of our kids to sign it (including Princess) and the older two had written in things like “thank you for working hard for us.” I appreciated the flowers, I did, but it was the card that got me.

Our culture markets these ideals to us, these expectations. Of what our soul mate will look like, and act like, and do, and say. It’s only when we let go of these caricatures that we truly find love. And finding it is only the beginning.